Basic Info for New Readers Who Read About Me in the Hartford Courant

Hartford  Courant columnist Rick Green featured me and my book, No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advanced Reproduction, in a column in today’s paper. He and I had a long and far-ranging conversation last week; I am grateful for his time and attention, and the way he brought in larger questions about the increasingly difficult choices that parents-to-be face as prenatal testing grows.

The photo accompanying the Courant column. Is it just me, or do Daniel and Leah (in back) have a sort of Addams family look to them? Need to tell them to lighten up a bit...

In the hope that some Courant readers will find their way to my blog this week, looking for more information on me and my book, here are a few links especially for new readers:

For more information about me and my story, read my “About” page here or visit my web site.

For more information about No Easy Choice (including ordering info, endorsements, and reader reviews), visit its Amazon page. For links to additional reviews and other things I have written, visit the “Publications” page of my web site.

For information on upcoming events where I will be speaking and/or reading from the book, visit the “Events” page of my web site. And please keep in mind that I am always looking for more speaking opportunities—book groups, parent groups, church groups, libraries, classes focused on topics such as ethics and contemporary issues, etc.

Finally, Rick asked me many questions that didn’t make it into his column, including two that I fleshed out in a couple of blog posts last week:

Who should read my book? And why?

Why did I write a “wishy-washy” book? “Wishy-washy” is my word, and I’m using it tongue in cheek. The question is why I wrote a book focused on raising lots of questions and encouraging conversation around reproductive technology, rather than writing a book that states clearly whether I think use of such technology is good or bad, and why. The answer to this question says a lot about me, my story, my book, and my goals as a writer.

 

About Me

I’ve decided the best way to introduce myself and what I write about is to explain the tagline that appears in my blog header: “Parenthood, disability, ethics, and the crooked way of grace.”

That said, I’m going to start by discussing a term that doesn’t actually appear in the tagline: faith. My faith perspective underlies most of what I write and landed me here on Patheos.

Faith: I am a Christian. Beyond that, I use several different labels to describe how I live out my Christian faith.

  • Episcopalian – I was raised in the Episcopal Church, my dad being an ordained Episcopal minister. After exploring other traditions in my college and young adult years, I’m an Episcopalian once again. I appreciate Episcopal liturgy, as well as the “big tent” approach that welcomes people of diverse backgrounds, opinions, and practices.
  • Evangelical – In college, InterVarsity Christian Fellowship (IVCF) provided much-needed community and deepened my faith with its emphasis on fostering a relationship with God. I also learned to love a great guitar-strumming praise song.
  • Ecumenical – In my 20s, I attended a small, nontraditional church that met in a coffee house in Washington, D.C. I made lifelong friends there (including my husband!) from a great variety of religious backgrounds. I continue to thrive on connecting with Christians willing to respectfully engage with those who believe, worship, and minister differently. From this church, I also learned to appreciate certain spiritual practices, including silent retreats, centering prayer, and tithing (which is not to say that I practice those disciplines all that well most of the time).
  • Conservative – My theology is conservative, in that I embrace traditional Christian doctrines about Jesus Christ, including the fact of the resurrection.
  • Progressive/Liberal–Informed by my faith, I take liberal to moderate positions on social and political issues.

Parenthood: I have three children: Leah (12), Meg (8), and Ben (6). While I am now building a part-time writing career, my primary vocation for the past 12 years has been being their mom. I use the word “vocation” deliberately, as I figured out that God was calling me to motherhood long before I met and married my husband, Daniel.

Disability: I have a genetic bone disorder called osteogenesis imperfecta (OI). The hallmark symptom of OI is bones that break easily. I have had about three dozen broken bones, mostly in my legs. Most of my fractures occurred in childhood. Now, fractures are less an issue than severe arthritis, from years of walking with an uneven gait due to scoliosis and a leg-length discrepancy. My oldest daughter inherited OI. So I write as someone both living with a disability and raising a child with a disability.

Ethics: After our oldest daughter inherited OI, my husband and I explored the use of reproductive technology to screen embryos and allow us to have additional children who would not have OI. That led to my interest in reproductive ethics, particularly the need to faithfully explore the moral questions raised by technologies such as IVF, preimplantation genetic diagnosis (PGD), prenatal diagnosis, surrogacy, etc. I write about reproductive ethics with one primary agenda: To encourage informed, compassionate, and respectful conversation. I do not advocate a particular position concerning whether use of reproductive technology is right or wrong, although I occasionally offer an opinion about particular practices or guidelines.

Crooked Way of Grace: I’m using the word “way” in two different…well…ways! The first is the idea of a “way” as a path, and the fact that the journey of faith is rarely (never?) straightforward. We don’t travel smoothly from Point A to Point B, racking up revelations until we have everything figured out. Rather, the way of grace is crooked and winding, often doubling back on itself. That is true of how I write about faith as well; I’m often figuring things out as I write, as opposed to having a clear conclusion in my head and sitting down to write a linear account of how I reached it. The second sense is “way” meaning “how things are,” as in, “That’s just her way.” The way of grace is to be surprising, to lead us in unexpected directions, so that we find God not just (or even primarily) in church or prayer, but in the most ordinary daily stuff. For me, the nitty-gritty of motherhood and managing a home have revealed God’s nature, my failings, and my gifts more clearly than any church experience or religious book has. Finally, I use the word “crooked” deliberately too. Due to OI, my body is literally crooked. And while I am not grateful for my pain and disability per se, I am grateful for the ways that my crooked, broken body has literally provided me with a crooked way to understand more about God’s grace.

Beyond these common themes, blog posts will vary widely. They may be practical or poetic, biting or comforting, funny or not one little bit funny.  I hope you’ll let me know what you think by leaving comments. Speaking of which, this is a good time to point out my comment policy, which I’ll share in a separate post and link to in the sidebar.

Welcome. I look forward to some good conversations.

A Fresh Start

Welcome to my new blog here on Patheos!

The time is right for me to go in some new directions with blogging, and I’m excited that the folks at Patheos invited me to do so here, in the company of so many other great writers. I encourage you to check out the company I’m keeping at the Patheos blog page, particularly the Progressive Christian Portal.

For the past few years, I have maintained two blogs: Five Dollars and Some Common Sense, where I have written about faith, family, and disability from all sort of angles; and Choices That Matter, where I have focused on the ethical questions raised by technologies such as in vitro fertilization (IVF) and preimplantation genetic diagnosis (PGD). Exploring those questions from a Christian perspective is the focus of my new book, No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advanced Reproduction, which will release on January 17, 2012.

Keeping up with two separate blogs is unwieldy. So I am discontinuing my two previous blogs in favor of a single blog here at Patheos. If you have followed me here from one of those blogs, I invite you to subscribe to this one via e-mail or RSS feed (see the appropriate tools in the right sidebar to do so). Of course, I invite you to do so if you are a new reader too!

I plan to write about the same stuff I’ve always written about. The difference is that all of my blog posts, whether they focus on reproductive ethics or more generally on faith, family, and/or disability, will be shared in one place—here—instead of being split between two blogs. My goal is to provide plenty of content to appeal to readers of both of my previous blogs. Rather than migrating old content here, I’ll be 1) leaving both blogs up for the time being, and 2) reposting/reworking old posts here from time to time. So if you have followed me here from Choices That Matter or Five Dollars…, you may see some familiar content. I will provide plenty of new stuff as well.

Besides writing original posts on my core topics, I’ll also post links to anything I publish elsewhere, write book reviews, and point readers toward other writers, blogs, web sites, and resources that I have found helpful, inspiring, or entertaining. I always welcome recommendations from readers. I plan to post at least three times per week.

In my next post, I’ll share more about me and what I write by explaining the tagline above: Parenthood, disability, ethics, and the crooked way of grace. Thanks for visiting. I look forward to continuing some great conversations, and starting some new ones.