No Easy Choices When It Comes to Genetics, Disability, and Reproductive Decisions

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TIME Magazine online picked up my post from earlier this week on whether a parent might regret bearing a child who inherits a difficult, painful genetic disorder. (TIME.com has a cooperative agreement with Patheos that allows them to select several Patheos posts every week for publication on their site.) The post is being shared widely, by [Read More...]

Can You Regret Having a Child Who Inherits Your Genetic Baggage?

Photo courtesy of Speak Up/Gerry Green

But while I sometimes wish I could have spared my daughter her genetic fate, I’m also profoundly grateful that it was not in my power to decide what kind of kid I would get. [Read more...]

A Letter to My 16-Year-Old Self

To my 16-year-old self: When people tell you that your scars are a kind of beauty mark, that they don’t even notice your physical impairments any more, that you are beautiful and loved, believe them. Believe them the first time they say these things, and every time after. [Read more...]

Abiding with the Living and the Dying: Thoughts on “Holding Silvan”

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This assumption—that a life marked by suffering is not worth living—leads us to believe that bodies subject to pain and limitation ought to either be heroically rescued or hastened to death, rather than embraced and abided as they are, in their living and their dying. [Read more...]

“Inspiration Porn” Objectifies People with Disabilities

Admire me for what I do—for writing well or raising decent kids or having a lovely garden. But don’t admire me just for existing, just because I live a mostly unremarkable life with scars and a limp and a history of dozens of broken bones. [Read more...]

A Broken Body, Redeemed

Eight years ago, when my three children were still very young, we traveled to Omaha for an Osteogenesis Imperfecta (OI) Foundation conference. Both I and my oldest daughter have OI, a genetic collagen disorder that causes brittle bones, short stature, and other symptoms. As we were checking in at the conference hotel, I glanced up [Read More...]

Yes, We Can Change Cultural Assumptions About Disabilities. Here’s How.

Last night, I gave a lecture at the University of Hartford to students in a humanities seminar studying ideas of utopia and dystopia. I gave my usual talk about my story as told in my book, No Easy Choice, and included some reflections on how dystopian novels, particularly Lois Lowry’s The Giver, can illuminate the purposes and pitfalls [Read More...]

A Christian Response to Genetically Modified Babies

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An New York Times op ed by Marcy Darnovsky of the Center for Genetics and Society cautions against FDA approval of a technique that could produce genetically modified babies. The FDA is considering mitochondrial manipulation technologies, which would allow women at risk of bearing children with mitochondrial disease to have healthy, genetically related children. In mitochondrial [Read More...]


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