Abiding with the Living and the Dying: Thoughts on “Holding Silvan”

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This assumption—that a life marked by suffering is not worth living—leads us to believe that bodies subject to pain and limitation ought to either be heroically rescued or hastened to death, rather than embraced and abided as they are, in their living and their dying. [Read more...]

“Inspiration Porn” Objectifies People with Disabilities

Admire me for what I do—for writing well or raising decent kids or having a lovely garden. But don’t admire me just for existing, just because I live a mostly unremarkable life with scars and a limp and a history of dozens of broken bones. [Read more...]

A Broken Body, Redeemed

Eight years ago, when my three children were still very young, we traveled to Omaha for an Osteogenesis Imperfecta (OI) Foundation conference. Both I and my oldest daughter have OI, a genetic collagen disorder that causes brittle bones, short stature, and other symptoms. As we were checking in at the conference hotel, I glanced up [Read More...]

Yes, We Can Change Cultural Assumptions About Disabilities. Here’s How.

Last night, I gave a lecture at the University of Hartford to students in a humanities seminar studying ideas of utopia and dystopia. I gave my usual talk about my story as told in my book, No Easy Choice, and included some reflections on how dystopian novels, particularly Lois Lowry’s The Giver, can illuminate the purposes and pitfalls [Read More...]

A Christian Response to Genetically Modified Babies

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An New York Times op ed by Marcy Darnovsky of the Center for Genetics and Society cautions against FDA approval of a technique that could produce genetically modified babies. The FDA is considering mitochondrial manipulation technologies, which would allow women at risk of bearing children with mitochondrial disease to have healthy, genetically related children. In mitochondrial [Read More...]

The Problem with the Honey-and-Cinnamon (& Every Other) Miracle Cure

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A post making the Facebook rounds claims that “a mix of honey and cinnamon cures most diseases.” Mix honey and cinnamon together and your arthritis pain will vanish, your lost hearing will be restored, the flu virus ravaging your body will be killed, and your eczema and ringworm will disappear! I know I should ignore [Read More...]

Looking for God in a Long Winter

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Last Wednesday was the breaking point for me. The last straw. The bottom of the iceberg. We were midway through a school vacation in which we had no plans, I was trying to work four or five hours a day as usual, most of our first floor was inaccessible because of a kitchen renovation, and [Read More...]

Separate Sex from Procreation….& End Up in Dystopia?

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We progressive Christians like to roll our eyes at the Roman Catholics for their official stance on reproductive issues, such as contraception and reproductive technology. Many of us assume that they are just old-fashioned, or out of it, or have a serious case of wishful thinking, or just don’t know what they’re talking about, seeing [Read More...]


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