No Easy Choices When It Comes to Genetics, Disability, and Reproductive Decisions

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TIME Magazine online picked up my post from earlier this week on whether a parent might regret bearing a child who inherits a difficult, painful genetic disorder. (TIME.com has a cooperative agreement with Patheos that allows them to select several Patheos posts every week for publication on their site.) The post is being shared widely, by [Read More...]

Resemblances

“Look at those fingers! And her toes! So long and skinny…just like yours, Ellen.” I don’t recall how many people uttered those words during the early weeks of my firstborn’s life. Maybe only two or three. But I felt bombarded by this innocent observation. Shortly after my daughter’s birth, my husband, who accompanied her for [Read More...]

Why Do Parents Choose to Screen for Disabilities?

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Imagine you are standing at an intersection with your child, waiting for a walk light so you can safely cross the street. The traffic light turns red, the “walk” sign lights up, you grab your child’s hand, and just as you are about to step off the curb, a mysterious voice from above says, “Stop! [Read More...]

College Hookup Sex is Built on a Troubling Ethic of Achievement at Any Cost

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After reading Kate Taylor’s New York Times article on the culture of casual hookup sex at elite colleges, I had to fight the urge to call my two daughters into the room issuing dire warnings of the world that awaits them in college. The world Taylor describes, in which driven young women drink their anxieties [Read More...]

When Conflicting Stories Are Both True: Illness, Identity, and the Tales We Tell of Living with Disability

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In his vast and gripping book, Far from the Tree: Parents, Children, and the Search for Identity, journalist Andrew Solomon discusses the two narratives that we use when we talk about life with disability in general, and/or with particular conditions, such as dwarfism, deafness, Down syndrome, autism, or my own genetic disorder, osteogenesis imperfecta (OI). [Read More...]

The Dangers of “Solutionism” Applied to Our Always Less-than-Perfect Children

In the New York Times Sunday Review yesterday, Evgeny Morosov defines “solutionism” as “an intellectual pathology that recognizes problems as problems based on just one criterion: whether they are ‘solvable’ with a nice and clean technological solution at our disposal.” Observing that “Silicon Valley’s technophilic gurus and futurists have embarked on a quest to develop [Read More...]

I’m Taking a Blogging Break (But Here’s Some Other Stuff to Read)

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I’m taking a short blogging hiatus (for the rest of this week, possibly into next week) to devote time to some other pressing work. I owe blog posts and essays to several people, I haven’t yet filed my taxes, and my bathrooms are really dirty. Plus it’s parent-teacher conference week at my kids’ schools, which [Read More...]


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