The Life and Death of My Tattoo: Postscript

People keep talking about my tattoo. Everyone has a different take on the story of how I considered getting a tattoo (for very concrete reasons having to do with my disability), went as far as choosing artwork, and then decided not to get a tattoo when my 8-year-old strenuously objected. (Here is the story for [Read More...]

We Pushed Our Luck, and Got This Guy: Deciding to Have the Third Baby

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(Editorial Note: I’m including an excerpt from my book below, so this is more an online article than a blog post, much longer than my usual. If you have the time and inclination to read it, thanks! I’ll be back tomorrow with my usual shorter blog post.) Last week, the New York Times’ “Motherlode” parenting [Read More...]

Valuing Life, Preventing Suffering: A Central Tension in Genetic Screening for Disability

I’m attending and speaking at the 3rd annual Summer Institute on Theology and Disability, held this year at the Catholic Theological Union in Chicago. This afternoon, I will read from my book, No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advanced Reproduction, and host a conversation on the promises [Read More...]

A Conversation About Reproductive Decisions and Faith

I was privileged to have a wonderful conversation several weeks ago with Martha Manikas-Foster, who hosts a show called Inside Out for Family Life Radio. Martha and I have talked and corresponded over the past couple of years about several topics, most recently my book No Easy Choice: A Story of Disability, Parenthood, and Faith [Read More...]

Basic Info for New Readers Who Read About Me in the Hartford Courant

The photo accompanying the Courant column. Is it just me, or do Daniel and Leah (in back) have a sort of Addams family look to them? Need to tell them to lighten up a bit...

Hartford  Courant columnist Rick Green featured me and my book, No Easy Choice: A Story of Disability, Parenthood, and Faith in an Age of Advanced Reproduction, in a column in today’s paper. He and I had a long and far-ranging conversation last week; I am grateful for his time and attention, and the way he [Read More...]

Who Should Read My Book? And Why?

Yesterday, I had a great conversation at a local coffeehouse with Rick Green, a columnist from the Hartford Courant. Rick concluded his interview by asking two very important questions: Who should read No Easy Choice? And why? (He also asked why I didn’t end the book with a clear conclusion that reproductive technologies are a [Read More...]

A Mom Asks Santorum to “Meet My Son”

Presidential contender Rick Santorum recently criticized the Obama administration’s health care reform because it requires provision of free prenatal testing for pregnant women. Santorum stated that, “Free prenatal testing ends up in more abortions and therefore less care that has to be done because we cull the ranks of the disabled in our society.” Responding [Read More...]

The God of Whiners

Last Thursday, my writer-blogger-OI-mom friend Rachel and I (we refer to ourselves as the “OI giantesses,” because at 5′ 1″ and 4′ 8″ respectively, we are indeed huge by the standards of OI, the genetic bone disorder we share) spent the day together; it was our first face-to-face meeting after about a year of online [Read More...]


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