We Must All Live Truthfully

Ali Family Autism Truths #30 – April 30, 2016I read an article in the other day about prenatal testing, about a family of two scientist-parents who invented a machine that could sequence and separate genes to better and earlier tell if an unborn baby would have Downs Syndrome or a host of other disabilities.The article was titled, “How A Prenatal Test is Transforming Modern Medicine.” One of the main scientists interviewed in the piece, who has an adult son with Downs, said that after eve … [Read more...]

Conversations with D

Ali Family Autism Truths #29 – April 29, 2016Setting: In our Kitchen one evening. I have made brownies, and they are cooling on the counter. Everyone has eaten dinner, and D is drawn back to the kitchen by the smell of something heavenly. He comes up to me, standing at the counter, and pushes his face close to make eye contact – a rarity. It means something important if he leans in to look you straight in the eye. Otherwise, eye-to-eye contact is difficult for him. Overwhelming, I sus … [Read more...]

He is Not Less Than Anyone Else Because He Has Autism

Ali Family Autism Truths #28 - April 28, 2016Editor's Note: For the last five days of April, I'm out of town and am getting creative with our Ali Family Autism Truths posts. Today's and the last two days' posts are brief interviews my friend Jamie Pacton did with Syrian autistic children and their families, who have been helped by A Global Voice for Autism. Jamie writes about autism for Parents.com. A Global Voice for Autism is a wonderful organization that helps autistic individuals and … [Read more...]

We Cannot Give Up on Our Children

Ali Family Autism Truths #27 - April 27, 2016Editor's Note: For the last five days of April, I'm out of town and am getting creative with our Ali Family Autism Truths posts. Today's, yesterday's and tomorrow's posts are brief interviews my friend Jamie Pacton did with Syrian autistic children and their families, who have been helped by A Global Voice for Autism. Jamie writes about autism for Parents.com. A Global Voice for Autism is a wonderful organization that helps autistic individuals … [Read more...]

In Our Society, Autism is Seen as Damaged

Ali Family Autism Truths #26 - April 26, 2016Editor's Note: For the last five days of April, I'm out of town and am getting creative with our Ali Family Autism Truths posts. Today's and the next two day's posts are actually brief interviews my friend Jamie Pacton did with Syrian autistic children and their families, who have been helped by A Global Voice for Autism. Jamie writes about autism for Parents.com. A Global Voice for Autism is a wonderful organization that helps autistic … [Read more...]

The Truth is, It’s Very Hard, This Autism Living

Ali Family Autism Truths #25 - April 25, 2016The goal is being as independent as possible. Not needing us, not needing support, as much as possible.The premise of this makes me smile because in the culture we were brought up in (Indian, Muslim), the focus was on achieving success and living a good life but always being close to one's family. The family unit should always stay together and rely on each other. The respect for one's elders is tantamount in our family. Respect for elders, … [Read more...]

Life Cannot Be Locked Out

Ali Family Autism Truths #24 - April 24, 2016Life cannot be locked out. Nor can safety or protection be locked in.The truth is, like it or not, when raising a child with autism, locks can be a large part of your world. Some autistic individuals have a tendency to bolt or run away, which means better and more locks on doors to the outside.(There was a terrible, frightening period when D did this, and in the span of 48 hours before we could get extra locks installed on all doors … [Read more...]


CLOSE | X

HIDE | X