On Autism and Trust: The Saddest Happy Person

I’m either the happiest sad person in the world, or the saddest happiest person.We have the whole day to ourselves, just me and D. So I ask him – what do you want to do? We can go swimming! We could go to Jumpology! We could go to the park. We could go get fries. Whatever you want.He pauses for a minute, contemplating his choices, and then pulls me to our bed, which I’ve deliberately left unmade. We become a tangle of pillows and blankets, arms and legs in the ultimate cuddl … [Read more...]

People of Faith Encourage Presidential Candidates to Address Disability Concerns

Editor's Note: This is a guest post by my friend, Curtis Ramsey-Lucas, the director of interfaith engagement with the American Association of People with Disabilities, calling for the 2016 presidential candidates to address disability concerns. I also have been keeping a close watch on how the candidates are addressing the questions and concerns of those with disabilities and their families, and believe faith groups should sign on to this letter urging candidates to support life-changing … [Read more...]

We Must All Live Truthfully

Ali Family Autism Truths #30 – April 30, 2016I read an article in the other day about prenatal testing, about a family of two scientist-parents who invented a machine that could sequence and separate genes to better and earlier tell if an unborn baby would have Downs Syndrome or a host of other disabilities.The article was titled, “How A Prenatal Test is Transforming Modern Medicine.” One of the main scientists interviewed in the piece, who has an adult son with Downs, said that after eve … [Read more...]

Conversations with D

Ali Family Autism Truths #29 – April 29, 2016Setting: In our Kitchen one evening. I have made brownies, and they are cooling on the counter. Everyone has eaten dinner, and D is drawn back to the kitchen by the smell of something heavenly. He comes up to me, standing at the counter, and pushes his face close to make eye contact – a rarity. It means something important if he leans in to look you straight in the eye. Otherwise, eye-to-eye contact is difficult for him. Overwhelming, I sus … [Read more...]

He is Not Less Than Anyone Else Because He Has Autism

Ali Family Autism Truths #28 - April 28, 2016Editor's Note: For the last five days of April, I'm out of town and am getting creative with our Ali Family Autism Truths posts. Today's and the last two days' posts are brief interviews my friend Jamie Pacton did with Syrian autistic children and their families, who have been helped by A Global Voice for Autism. Jamie writes about autism for Parents.com. A Global Voice for Autism is a wonderful organization that helps autistic individuals and … [Read more...]

We Cannot Give Up on Our Children

Ali Family Autism Truths #27 - April 27, 2016Editor's Note: For the last five days of April, I'm out of town and am getting creative with our Ali Family Autism Truths posts. Today's, yesterday's and tomorrow's posts are brief interviews my friend Jamie Pacton did with Syrian autistic children and their families, who have been helped by A Global Voice for Autism. Jamie writes about autism for Parents.com. A Global Voice for Autism is a wonderful organization that helps autistic individuals … [Read more...]

In Our Society, Autism is Seen as Damaged

Ali Family Autism Truths #26 - April 26, 2016Editor's Note: For the last five days of April, I'm out of town and am getting creative with our Ali Family Autism Truths posts. Today's and the next two day's posts are actually brief interviews my friend Jamie Pacton did with Syrian autistic children and their families, who have been helped by A Global Voice for Autism. Jamie writes about autism for Parents.com. A Global Voice for Autism is a wonderful organization that helps autistic … [Read more...]


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