I want to go do nothing.I want to eat chips and Pringles.I want to take a break.I want to go home.I want to go to the bathroom.Our 16-year old son D is autistic, profoundly so. If you have in any way been a reader of this blog, you know plenty about him, about our family and about how important D’s iPad is to his and our lives. He is nonverbal, but by no means not non-communicative. As his family, we understand the various ways he communicates as best we can. But for the w … [Read more...]
How will Autistic Travelers be Affected by the Banning of iPads, etc, on Flights from Several Muslim-Majority Countries?
Nearly five years ago, we sat in a room – myself, my husband, D’s teacher and principal at the time plus representatives from our county’s exceptional education department. We were at the tail end of a long, difficult, heart-breaking fifth-grade year for D, trying to come to an agreement regarding his future schooling and education.By this point, D had spent five years in our public-school system in two different self-contained autism classrooms under the tutelage of two capable teachers and … [Read more...]
Um, where was this when I lived in New York City with D and his baby sister A more than a decade ago and used to practice walking up and down the aisles of our local grocery store with D, praising him for keeping himself together and giving him an M&M at the end of every aisle?(Yes, I know it was classic ABA, classic Pavlovian training, all that. But it was pretty much the only thing out there at the time in regards to autism behavior therapy.)Grocery stores, any stores have always … [Read more...]
Like millions of other Americans (and global citizens), my husband, daughter and I gathered together to watch the first of the 2016 presidential debates between Republican candidate Donald J. Trump and Democratic candidate Hillary R. Clinton. A mere ten minutes into it though, I was ready to check out.Not because I was fed up or frustrated with the debate, but because it was approaching D’s bedtime. So I headed to his room to hang out with him until he was fully sleepy and ready to call it a … [Read more...]
I’m either the happiest sad person in the world, or the saddest happiest person.We have the whole day to ourselves, just me and D. So I ask him – what do you want to do? We can go swimming! We could go to Jumpology! We could go to the park. We could go get fries. Whatever you want.He pauses for a minute, contemplating his choices, and then pulls me to our bed, which I’ve deliberately left unmade. We become a tangle of pillows and blankets, arms and legs in the ultimate cuddl … [Read more...]
Editor's Note: This is a guest post by my friend, Curtis Ramsey-Lucas, the director of interfaith engagement with the American Association of People with Disabilities, calling for the 2016 presidential candidates to address disability concerns. I also have been keeping a close watch on how the candidates are addressing the questions and concerns of those with disabilities and their families, and believe faith groups should sign on to this letter urging candidates to support life-changing … [Read more...]