Conversations with Daughter A: Laying Down Truths in School

Ali Family Autism Truths #7  April 7, 2016Scene: In the car, today, after I picked up daughter A (who is 12 years old) from school then drove over to get D from his school. The following conversation ensued. It’s not word for word accurate, but pretty much spot on.A: So there are these two girls in my gym class, and I don’t mean to be mean about them but …Me: What?A: They’re saying stuff about another boy in P.E. He has some sort of disability – I don’t think its autism – I don’t … [Read more...]

It Takes a Village to Live this Autism Life

Ali Family Autism Truths #6 - April 6, 2016In the span of three weeks, D’s two trusted, tried and true therapists/care givers both gave their notice. One took a different job in town and couldn’t fit after-school home therapy for D into his schedule anymore. The other took a job out of state and is moving on to new adventures.I hate seeing good therapists/care givers go, though I always wish them well. When we first started bringing therapists and caregivers into our home to help D more t … [Read more...]

Somethings in Life Cannot be Fixed – They Can Only be Carried

Ali Family Autism Truths #5 - April 5, 2016Somethings in life cannot be fixed. They can only be carried.I am not the originator of that profound and immense thought. I wish I was. Surely I have felt it in my soul numerous times.Like so many people, I have numerous articles and links saved in different places – on Facebook, on my computer, copy and pasted into a note in my phone, or cut out of magazines (yes, I still read actual magazines and newspapers and – gasp – books from time to … [Read more...]

A No Filters Life

Ali Family Autism Truths #4 - April 4, 2016Two separate comments from autism families – one right here where I live and one across the world in India – kind of said it all today.From a dear friend, who has two sons with autism, both of whom have been D’s classmates over the years (pardon the language): Autism makes people bitter or burns off the bullshit.From a friend in India, whom I’ve gotten to know online over the years, who posted this about his son in reference to the notion tha … [Read more...]

The Spring Break that Wasn’t a Break

Ali Family Autism Truths #3, April 3, 2016In a home full of kids (including my own and my visiting nieces), D and I may be the only ones who are happy Spring Break is over, and he (and everyone else) is headed back to school.Because when is a break really a break? A break from what? Autism? No.Like many on the spectrum, D has never been a fan of long breaks from school. A week is about his max tolerance, and even that can get dicey. Other friends of mine have autistic children who … [Read more...]

My Truth Lies with Him

April 2, 2016 - Ali Family Truths #2The irony is not lost on me.Two years ago today, on World Autism Awareness Day, D was dealt such a blow to his health that my heart was irrevocably broken. We sat, waiting for him to wake from his anesthesia, waiting for the doctor to come out and tell us what he had found.The news was not good.Later that day, as I sat on our deck and watched D, now fully recovered from the anesthesia, playing in our backyard and swinging in the hammock in the … [Read more...]

Autism Truths and the Humanity of Us All

April 1, 2016 - Ali Family Truths #1D came up from the basement earlier today, hungry for dinner. Or rather, hangry – losing it in a way I know so well. Mood was restored after dinner was consumed, but that was when I noticed his right forefinger.Bloodied.Whoa, whoa, whoa – wait a minute, I said. Let’s take care of that. And so he willingly allowed me to wash and clean the finger and bandage it. But I still haven’t figured out how it happened. I’m just glad I caught it.D wasn’t ab … [Read more...]