Ali Family Autism Truths #7 – The Places We Go

April 7, 2015 - Autism Awareness Month, Ali Family Autism Truths #7We're in that stage now where D doesn't want to go much of anywhere. If he can stay home, then that's just fine by him. There was a long period of time, until maybe about four of five years ago, that we went nearly everywhere as a family. If for whatever reason where we were going just wasn't going to work for D, his Baba or I would stay back with him. Hiring babysitters and caregivers just to hang out with him so the rest of … [Read more...]

Ali Family Autism Truths #6 – Finding Our Okay

April 6, 2015 – Autism Awareness Month, Ali Family Autism Truths #6 Our milestones and firsts have never been other family's milestones or firsts. When it comes to D, we follow his timeline on progress and no other. We face our firsts, sometimes with sadness and fear, sometimes with great joy -- always truthfully. I wrote this today on Facebook:More milestones in Autism land for the Ali Family. Every time things feel complacent and just our "norm," I'm reminded of all the cheerful (and d … [Read more...]

Ali Family Autism Truths #5 – How Inclusive was Your Easter or Passover Service?

April 5, 2015 – Autism Awareness Month, Ali Family Autism Truths #5 In private conversations with friends today, friends celebrating Easter or having celebrated Passover, we shared some of our frustrations in trying to participate in religious ceremonies and attend services at Houses of Worship with our autistic children. While many churches, synagogues (and even some mosques) and other Houses of Worship have made great strides in tailoring services for all in their congregation, or at the very … [Read more...]

Ali Family Autism Truths #4 – Two Different Worlds, One Home

April 4, 2015 - Autism Awareness Month, Ali Family Autism Truths #4There are days when it feels like two completely different world exist under my roof.There is D, spending the majority of this first day of his spring break spinning his beads in our bedroom, or in the basement bedroom where his grandparents sleep. The connection is distant today between him and the rest of us, as we enter in that final furious stage of shopping/packing/cooking/readying for a spring break trip and a big … [Read more...]

Ali Family Autism Truths # 3 – Spinning in Circles

April 3, 2015 - Autism Awareness Month, Day Three of Ali Family Autism Truths"A" came with me today when I went to pick up D from school. She and her little brother, H, had half-days, as Spring Break has now begun. With H off to Jummah prayers with his grandparents, A kept me company on my afternoon drive. The other kids rarely come with me when I get D. They're both coming home on busses at that time themselves. So it was a little disconcerting to A to see her older bro pulling his arms … [Read more...]

Ali Family Autism Truths #2 – Autism Doesn’t Get Better, We Get Better

April 2, 2015, Autism Awareness Month (World Autism Day) - Day Two of Ali Family Autism TruthsOn the drive to school, D's not feeling it. Arms drawn into shirt, the cries are starting and soon enough, he is banging his head intermittently on the back of my seat. He's not really hurting himself because the seats are soft, but it's distressing. He's obviously off -- something is amiss. He isn't feeling well; he is upset about something, The cogs inside are jangled up. There's nothing I can do … [Read more...]

Ali Family Autism Truths #1 – Learning from Each Other

April 1, 2015 - Autism Awareness Month - Day One of Ali Family Autism TruthsD is sitting downstairs right now picking through his dinner, while one of his therapists, who is playing the care giver role, sits with him. I've kicked the rest of the family out for dinner, and I'm sitting upstairs keeping an ear out for any issues that may come up. Call this a dry run. Call this part of my hypervigilance in making sure he is cared for and supported in a manner that will be best for him. Next week … [Read more...]