Ali Family Autism Truths #30 – We Will Live Truthfully

D smiling_resized

April 30, 2015 - Autism Awareness Month, Autism Truths #30Why should you care? Really, why should you care? There is an earthquake that has devastated Nepal causing the deaths of nearly 4,000 people. In Baltimore, following the death of Freddie Gray while in police custody, the city is crying for justice, and African Americans across the country are warning that this cannot go on, that post-racial America is a myth, that #BlackLivesMatter. ISIS continues to wreak havoc. California is … [Read more...]

Ali Family Autism Truths #1 – Learning from Each Other

April 1, 2015 - Autism Awareness Month - Day One of Ali Family Autism TruthsD is sitting downstairs right now picking through his dinner, while one of his therapists, who is playing the care giver role, sits with him. I've kicked the rest of the family out for dinner, and I'm sitting upstairs keeping an ear out for any issues that may come up. Call this a dry run. Call this part of my hypervigilance in making sure he is cared for and supported in a manner that will be best for him. Next week … [Read more...]

Ali Family Autism Truths for Autism Awareness Month – The Last Ten

Daanish and Mama holding hands

The blank screen on my phone stared back at me, waiting for me to write the last Ali Family Autism Truth on the last day of April -- Autism Awareness Month. I was at a blank. How do I sum things up? Is that even possible? Because there is no summation to Lil D's life with autism, or our life with him. It's ongoing, and just because April was ending didn't mean our autism truths were ending. Autism doesn't end like that.The last ten days of truths left me anxious, because there was so much to … [Read more...]

Autism Doesn’t End Like That

A rare moment of holding hands as we leave his school.

So much -- and so little -- can happen in 30 days.The woods that spread out from our house are coming to life, with branches going from winter-bare to being covered in lush green. Spring is finally ushering its way in. I sat on our deck on April 2 – World Autism Day – devastated after a heartbreaking day of shocking news about you, and I watched you play. You swung back and forth on the hammock and jumped with abandon on our trampoline. The silence of our neighborhood was punctured by the hap … [Read more...]

30 Ali Family Autism Truths for Autism Awareness Month – the Second Ten

Daanish_Maymont

When we fast in the holy month of Ramadan, our family has a saying -- the first 10 are easy. You fast with full spiritual joy and intensity, ready to really experience Ramadan. The second ten fasts are the hard ones.  You start to grow weary in body, mind and soul. Keeping up spiritual and faith practices grow hard during the second ten days. And then in the last ten days you feel a renewed exuberance. You are ready to recommit to your Ramadan goals, to push through to the end.The second set … [Read more...]

30 Ali Family Autism Truths for Autism Awareness Month – The First 10

Daanish_park

April is Autism Awareness Month. And as much as individuals with autism and those in the autism community feel that we are waaaaaaay beyond awareness and must be focused on action, I've come to realize in my nearly three years of chronicling our autistic son's (and our family's) life -- there is still so much people don't know or understand. For those who do not directly know someone with autism, they are still so unaware.Unaware about what it means to be autistic, what sorts of challenges … [Read more...]

Did Autism Speak?

Autism_Awareness_puzzle pieces

Autism Awareness Month, or as many in the autism community like to call it, Autism Action Month, is ending today. For some of us -- we are happy to see it go, as the response to autism and the awareness of what this developmental and neurological disability is nowhere near where it should be.Some in the autism community, including self-advocates with autism, look at the increasing numbers (1-50 school age children have autism spectrum disorder, or ASD, according to the latest reports from … [Read more...]


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