Ali Family Autism Truths for Autism Awareness Month – The Last Ten

Daanish and Mama holding hands

The blank screen on my phone stared back at me, waiting for me to write the last Ali Family Autism Truth on the last day of April -- Autism Awareness Month. I was at a blank. How do I sum things up? Is that even possible? Because there is no summation to Lil D's life with autism, or our life with him. It's ongoing, and just because April was ending didn't mean our autism truths were ending. Autism doesn't end like that.The last ten days of truths left me anxious, because there was so much to … [Read more...]

Autism Doesn’t End Like That

A rare moment of holding hands as we leave his school.

So much -- and so little -- can happen in 30 days.The woods that spread out from our house are coming to life, with branches going from winter-bare to being covered in lush green. Spring is finally ushering its way in. I sat on our deck on April 2 – World Autism Day – devastated after a heartbreaking day of shocking news about you, and I watched you play. You swung back and forth on the hammock and jumped with abandon on our trampoline. The silence of our neighborhood was punctured by the hap … [Read more...]

30 Ali Family Autism Truths for Autism Awareness Month – the Second Ten

Daanish_Maymont

When we fast in the holy month of Ramadan, our family has a saying -- the first 10 are easy. You fast with full spiritual joy and intensity, ready to really experience Ramadan. The second ten fasts are the hard ones.  You start to grow weary in body, mind and soul. Keeping up spiritual and faith practices grow hard during the second ten days. And then in the last ten days you feel a renewed exuberance. You are ready to recommit to your Ramadan goals, to push through to the end.The second set … [Read more...]

30 Ali Family Autism Truths for Autism Awareness Month – The First 10

Daanish_park

April is Autism Awareness Month. And as much as individuals with autism and those in the autism community feel that we are waaaaaaay beyond awareness and must be focused on action, I've come to realize in my nearly three years of chronicling our autistic son's (and our family's) life -- there is still so much people don't know or understand. For those who do not directly know someone with autism, they are still so unaware.Unaware about what it means to be autistic, what sorts of challenges … [Read more...]

Did Autism Speak?

Autism_Awareness_puzzle pieces

Autism Awareness Month, or as many in the autism community like to call it, Autism Action Month, is ending today. For some of us -- we are happy to see it go, as the response to autism and the awareness of what this developmental and neurological disability is nowhere near where it should be.Some in the autism community, including self-advocates with autism, look at the increasing numbers (1-50 school age children have autism spectrum disorder, or ASD, according to the latest reports from … [Read more...]

When Prayer and Rituals Change Us, Not Our Circumstances

Dilshad and Daanish falls shot

Spring break has started here, and the kids are home. I sent my younger two off to Jummah namaz (Friday prayers) with my inlaws. Lil D and I are hanging at home, doing our own Friday prayer ritual today. With his recent bouts of escapism and wandering, I don't feel comfortable taking him to the mosque today, so we are doing our own thing at home, and much of that "own thing" has come from the advice I received after writing about the Jekyll and Hyde of autism, advice that I later detailed in my … [Read more...]


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