Ali Family Autism Truths #30 – We Will Live Truthfully

D smiling_resized

April 30, 2015 - Autism Awareness Month, Autism Truths #30Why should you care? Really, why should you care? There is an earthquake that has devastated Nepal causing the deaths of nearly 4,000 people. In Baltimore, following the death of Freddie Gray while in police custody, the city is crying for justice, and African Americans across the country are warning that this cannot go on, that post-racial America is a myth, that #BlackLivesMatter. ISIS continues to wreak havoc. California is … [Read more...]

Ali Family Autism Truths #25 – The Right of Choice

iPad_resized

April 25, 2015, Autism Awareness Month, Autism Truths #25D brought his iPad to me just a few minutes back to request something to eat. We discovered something new with his ability to make choices a few weeks ago when he requested chips off his iPad - that all chips are not the same.A few weeks back, he pressed the button for "I want" and then pressed "chips," saying kippa to us (his verbal approximation of the word, chips). But when I presented him with a snack-size packet of Lays potato … [Read more...]

Ali Family Autism Truths #7 – The Places We Go

D knocking on Nanijan's (his grandmother) door

April 7, 2015 - Autism Awareness Month, Ali Family Autism Truths #7We're in that stage now where D doesn't want to go much of anywhere. If he can stay home, then that's just fine by him. There was a long period of time, until maybe about four of five years ago, that we went nearly everywhere as a family. If for whatever reason where we were going just wasn't going to work for D, his Baba or I would stay back with him. Hiring babysitters and caregivers just to hang out with him so the rest of … [Read more...]

Ali Family Autism Truths #2 – Autism Doesn’t Get Better, We Get Better

D shaking hands with the governor of Virginia, Terry McAuliffe

April 2, 2015, Autism Awareness Month (World Autism Day) - Day Two of Ali Family Autism TruthsOn the drive to school, D's not feeling it. Arms drawn into shirt, the cries are starting and soon enough, he is banging his head intermittently on the back of my seat. He's not really hurting himself because the seats are soft, but it's distressing. He's obviously off -- something is amiss. He isn't feeling well; he is upset about something, The cogs inside are jangled up. There's nothing I can do … [Read more...]

Ali Family Autism Truths #1 – Learning from Each Other

April 1, 2015 - Autism Awareness Month - Day One of Ali Family Autism TruthsD is sitting downstairs right now picking through his dinner, while one of his therapists, who is playing the care giver role, sits with him. I've kicked the rest of the family out for dinner, and I'm sitting upstairs keeping an ear out for any issues that may come up. Call this a dry run. Call this part of my hypervigilance in making sure he is cared for and supported in a manner that will be best for him. Next week … [Read more...]

Ali Family Autism Truths for Autism Awareness Month – The Last Ten

Daanish and Mama holding hands

The blank screen on my phone stared back at me, waiting for me to write the last Ali Family Autism Truth on the last day of April -- Autism Awareness Month. I was at a blank. How do I sum things up? Is that even possible? Because there is no summation to Lil D's life with autism, or our life with him. It's ongoing, and just because April was ending didn't mean our autism truths were ending. Autism doesn't end like that.The last ten days of truths left me anxious, because there was so much to … [Read more...]

Autism Doesn’t End Like That

A rare moment of holding hands as we leave his school.

So much -- and so little -- can happen in 30 days.The woods that spread out from our house are coming to life, with branches going from winter-bare to being covered in lush green. Spring is finally ushering its way in. I sat on our deck on April 2 – World Autism Day – devastated after a heartbreaking day of shocking news about you, and I watched you play. You swung back and forth on the hammock and jumped with abandon on our trampoline. The silence of our neighborhood was punctured by the hap … [Read more...]


CLOSE | X

HIDE | X