Ingratitude in the Face of Gratitude – the Autism Oxymoron

Daanish adn Dilshad nose to nose

I finally broke at 1:02 a.m. this morning – July 26, on the 17th fast of Ramadan the day before our big trip. The deluge began with this text to one of my best friends:“I am so sad to leave Lil D. Eff autism. Not fasting right now – I can say that, right?”To which my friend replied, “I’ve been waiting for this text …”And I answered, “Eff eff eff eff eff autism. He should be coming with me. … I should not be leaving my son for a month. … I’m feeling like a bad mom …”And we went bac … [Read more...]

Absence Makes the Heart Grow Fonder

miss-you

Growing up, I can only recall one time when my parents left us in the care of a babysitter. Part of it was where we grew up (in a small Midwestern town away where there wasn’t much by way of entertainment). Another part was just how my parents were – more of homebodies who just weren’t inclined to leave their children. They didn’t seem to have a lot of complaints or difficulties, even when I ask them now, when it came to our upbringing.Were we easier kids to parent than our own children are n … [Read more...]

The Epilogue – The RV Adventure and a Life Worth Living

Daanish on the RV

The kids are back in school and adults are back at work. And many parents with ASD (autism spectrum disorder) children are breathing a sigh of relief that they have survived another vacation. As for us, we returned our RV this morning, after clearing it out yesterday and removing all touches of the 2012 Ali Family Grand Adventure.Did we really do what we just did? It came and went so fast, and there was so much potential for disaster that it’s rather difficult to believe we are back. It is a … [Read more...]

My Fractured Family and Autism – Lessons Learned

help

This is part two of two posts on making tough choices, the blessing of having a supportive family, and the fractured family syndrome. Read part one here.It’s taken me a while to write this part two of my “Fractured Family Syndrome” posts. As time passes from our Memorial Day weekend trip to Toronto -- the stress of leaving Lil D at home during a difficult time, of stifling every fiber of maternal instinct that screamed “Stay!”, of realizing that it was as important to let my family help us as … [Read more...]

Autism and the Fractured Family – Making A Choice

Broken-Heart

This is part one of two posts on making tough choices, the blessing of having a supportive family, and the fractured family syndrome.When I was pregnant with Hamza, my now nearly five-year-old, I had a recurring nightmare that grew more frequent and harrowing during my third trimester. The nightmares would place me in various disastrous situations alone with Lil D, Amal, and my future baby. I and the children would be trying to escape whatever was happening (sometimes we were stuck in a … [Read more...]


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