Ali Family Autism Truths #12 – More Right Than Wrong

right and wrong_resized

April 12, 2015 - Autism Awareness Month, Ali Family Autism Truths #12Sunday night and we're in the homestretch. Another spring break under our belt - seven days off from the school/home therapy routine. I'm pretty proud of D for rolling with the punches and trying new things. We began the week going in different directions, with the rest of the family headed out of town to a big wedding, and D and I hanging back at home. And, it was a comfortable week: D and I drove a few hours to visit my p … [Read more...]

Ali Family Autism Truths #7 – The Places We Go

D knocking on Nanijan's (his grandmother) door

April 7, 2015 - Autism Awareness Month, Ali Family Autism Truths #7We're in that stage now where D doesn't want to go much of anywhere. If he can stay home, then that's just fine by him. There was a long period of time, until maybe about four of five years ago, that we went nearly everywhere as a family. If for whatever reason where we were going just wasn't going to work for D, his Baba or I would stay back with him. Hiring babysitters and caregivers just to hang out with him so the rest of … [Read more...]

Ali Family Autism Truths #4 – Two Different Worlds, One Home

Two roads diverged_600

April 4, 2015 - Autism Awareness Month, Ali Family Autism Truths #4There are days when it feels like two completely different world exist under my roof.There is D, spending the majority of this first day of his spring break spinning his beads in our bedroom, or in the basement bedroom where his grandparents sleep. The connection is distant today between him and the rest of us, as we enter in that final furious stage of shopping/packing/cooking/readying for a spring break trip and a big … [Read more...]

Ingratitude in the Face of Gratitude – the Autism Oxymoron

Daanish adn Dilshad nose to nose

I finally broke at 1:02 a.m. this morning – July 26, on the 17th fast of Ramadan the day before our big trip. The deluge began with this text to one of my best friends:“I am so sad to leave Lil D. Eff autism. Not fasting right now – I can say that, right?”To which my friend replied, “I’ve been waiting for this text …”And I answered, “Eff eff eff eff eff autism. He should be coming with me. … I should not be leaving my son for a month. … I’m feeling like a bad mom …”And we went bac … [Read more...]

Absence Makes the Heart Grow Fonder

miss-you

Growing up, I can only recall one time when my parents left us in the care of a babysitter. Part of it was where we grew up (in a small Midwestern town away where there wasn’t much by way of entertainment). Another part was just how my parents were – more of homebodies who just weren’t inclined to leave their children. They didn’t seem to have a lot of complaints or difficulties, even when I ask them now, when it came to our upbringing.Were we easier kids to parent than our own children are n … [Read more...]

The Epilogue – The RV Adventure and a Life Worth Living

Daanish on the RV

The kids are back in school and adults are back at work. And many parents with ASD (autism spectrum disorder) children are breathing a sigh of relief that they have survived another vacation. As for us, we returned our RV this morning, after clearing it out yesterday and removing all touches of the 2012 Ali Family Grand Adventure.Did we really do what we just did? It came and went so fast, and there was so much potential for disaster that it’s rather difficult to believe we are back. It is a … [Read more...]

My Fractured Family and Autism – Lessons Learned

help

This is part two of two posts on making tough choices, the blessing of having a supportive family, and the fractured family syndrome. Read part one here.It’s taken me a while to write this part two of my “Fractured Family Syndrome” posts. As time passes from our Memorial Day weekend trip to Toronto -- the stress of leaving Lil D at home during a difficult time, of stifling every fiber of maternal instinct that screamed “Stay!”, of realizing that it was as important to let my family help us as … [Read more...]


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