Ali Family Autism Truths #18 – Sometimes the Truth Hurts

My hand on D's head in a rare moment of quiet cuddling.

April 18, 2015 - Autism Awareness Month, Autism Truths #18We are winding down our Saturday, me sitting on my bed banging this post out, and D chilling and winding down on the chaise lounge in my room, twirling his beads on an especially long piece of plastic. I'll be asking him to relinquish his beads soon, as the final lapse toward sleepy time will be hard to come by if he keeps stimulating himself with the beads.Between two soccer games for A and H, starting early this morning, an … [Read more...]

Ali Family Autism Truths #17 – Brotherly Love

D lying on top of and hugging his little brother, H.

April 17, 2015 - Autism Awareness Month, Autism Truths #17His brief seven years on this earth is littered with the best exchanges with his big brother, D.Driving home from school the other day:D bhai, do you know that you have a mustache? He says to his 14-year-old brother.Ya! His brother answers back. I stifle my laughter as I drive the car.Or, a few months earlier:Mamma, will you come downstairs with me? (He wants to play on the X-Box and hates going into the basement … [Read more...]

Ali Family Autism Truths #16 – Siblings Who Roll with It

D and his sister, A.

April 16, 2015 - Autism Awareness Month, Autism Truths #16My daughter came home after school today and told me she had changed her mind after talking to her friends. Of course. After talking to her friends.There is some after-school spring festival happening tomorrow, and I asked her twice earlier in the week if she wanted to go, because a yes answer would require some planning from me -- you know, picking the boys up, who would watch them, would I take them all with me, lots of kids, … [Read more...]

Autism Awareness Truths #14 – (Dis)Respect the Stim

D spinning his beads. It's magical.

April 14, 2015 - Autism Awareness Month, Ali Family Autism Truths #14Perseveration, according to Merriam-Webster.com, is a "continuation of something (as repetition of a word) usually to an exceptional degree or beyond a desired point." According to good old Wikipedia, "in psychology and psychiatry, perseveration is the repetition of a particular response, such as a word, phrase, or gesture, despite the absence or cessation of a stimulus, usually caused by brain injury or other organic d … [Read more...]

Ali Family Autism Truths #13 – To Witness A Miracle

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April 13, 2015, Autism Awareness Month, Autism Truths #13When D was seven years old, he proved to me that miracles do indeed happen. I saw it with my own eyes in a way that was clearly obvious, like a bright beam of light being shown down on him.After several attempts to toilet train D as a toddler, I was growing a bit desperate with the idea that it would never happen. His school and after-school therapy program didn't want me to try a particular toilet-training method until he had … [Read more...]

Ali Family Autism Truths #12 – More Right Than Wrong

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April 12, 2015 - Autism Awareness Month, Ali Family Autism Truths #12Sunday night and we're in the homestretch. Another spring break under our belt - seven days off from the school/home therapy routine. I'm pretty proud of D for rolling with the punches and trying new things. We began the week going in different directions, with the rest of the family headed out of town to a big wedding, and D and I hanging back at home. And, it was a comfortable week: D and I drove a few hours to visit my p … [Read more...]

Ali Family Autism Truths #11 – Life Gets In the Way

April 11, 2015, Autism Awareness Month, Autism Truths #11There is a lot going on today, and sometimes the business of living gets in the way of documenting that living. So the truth for today is this: Sometimes we make decisions regarding D and his autism that are not ones we want to make. But he is not the only one in our family. There is 11-year-old A, seven-year-old H, their Baba and me. There are obligations and needs and wants for every family member. And, like all parents of multiple … [Read more...]


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