Ali Family Autism Truths for Autism Awareness Month – The Last Ten

Daanish and Mama holding hands

The blank screen on my phone stared back at me, waiting for me to write the last Ali Family Autism Truth on the last day of April -- Autism Awareness Month. I was at a blank. How do I sum things up? Is that even possible? Because there is no summation to Lil D's life with autism, or our life with him. It's ongoing, and just because April was ending didn't mean our autism truths were ending. Autism doesn't end like that. The last ten days of truths left me anxious, because there was so much to … [Read more...]

Autism Doesn’t End Like That

Daanish holding hands

So much -- and so little -- can happen in 30 days. The woods that spread out from our house are coming to life, with branches going from winter-bare to being covered in lush green. Spring is finally ushering its way in. I sat on our deck on April 2 – World Autism Day – devastated after a heartbreaking day of shocking news about you, and I watched you play. You swung back and forth on the hammock and jumped with abandon on our trampoline. The silence of our neighborhood was punctured by … [Read more...]

30 Ali Family Autism Truths for Autism Awareness Month – the Second Ten

Daanish_Maymont

When we fast in the holy month of Ramadan, our family has a saying -- the first 10 are easy. You fast with full spiritual joy and intensity, ready to really experience Ramadan. The second ten fasts are the hard ones.  You start to grow weary in body, mind and soul. Keeping up spiritual and faith practices grow hard during the second ten days. And then in the last ten days you feel a renewed exuberance. You are ready to recommit to your Ramadan goals, to push through to the end. The second … [Read more...]

30 Ali Family Autism Truths for Autism Awareness Month – The First 10

Daanish_park

April is Autism Awareness Month. And as much as individuals with autism and those in the autism community feel that we are waaaaaaay beyond awareness and must be focused on action, I've come to realize in my nearly three years of chronicling our autistic son's (and our family's) life -- there is still so much people don't know or understand. For those who do not directly know someone with autism, they are still so unaware. Unaware about what it means to be autistic, what sorts of challenges … [Read more...]

Life Goes On

life-goes-on

They prayed for my son at Friday prayers last week. Another milestone I never imagined would’ve happened as part of our parent-child journey. But life goes on. It seems altogether wrong and disloyal and nonsensical that life should be going on. We sat in the waiting room of the doctor’s office last week, making nervous small talk with my parents while we waited for the doctor to come out and give us Lil D’s test results. Husband and I had run through the scenarios in our head, from … [Read more...]

You are Enduring Love

Dilshad and Daanish falls shot

My darling boy, The sun is shining and the air is warm with the scents and sounds of a spring most awaited. You are swinging in the hammock in the backyard, spinning your beads on a twig with your hoodie pulled over your head and sunglasses perched on your face. God, you are handsome. It seems fitting that on today, World Autism Day 2014, we have come to a point in our autism journey where the path has played a cruel, cruel trick on us. Where there seems to be no alternate route, where the … [Read more...]

It’s Ok to Say, Why?

why

Maybe I’m wrong. I could very well be entirely wrong on this, but I am reminded of a hadith saying that Allah (God) loves us 70 times more than our own mother. And so I feel I’m allowed to do this. We are all allowed to lift up our arms in anger and frustration to Him, to vent as we would vent to our mother, husband or best friend, and He will Love us just the same. That at times expressing my anger and frustration in no way takes away from the trust I have that there is something to all … [Read more...]


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