Ramadan, Autism and the Trials of Our Hearts

Daanish_Maymont

At 4 a.m. there was a party going on at my house. With my nieces and nephew having spent the last 24 hours at our place having a sort of epic, ongoing Ramadan sleepover, and my sister-in-law and her husband coming over to do sehri (the pre-fasting meal) with us before taking their kids home – the atmosphere was noisy and fun.Come on, finish eating! There’s only a few minutes left!Quick, drink that water! Time’s almost up!Who’s coming to the masjid to pray fajr?And then through th … [Read more...]

Praying for Ramadan Blessings and a Respite from Ramadan Despair in Autismland

Daanish on the RV

On a brilliant sunny afternoon, when the potted plants are certifiably glinting with shine and promise on my deck, when there is a buzz permeating the house as my children and my father-in-law eagerly wait for the evening so they can look for the moon in anticipation of the start of Ramadan, one would think that excitement and hopefulness would be the mainstays our collective family mood.And they are – for everyone else. And to an extent, I am excited too. I’m about ready to launch a great “3 … [Read more...]

The Worrywart

worry

The words have been stuck in my head for several days now. I mean, it’s who I am. It’s who so many of us are. But I don’t want to be defined that way.Mamma, you worry a lot. Like, you worry all the time. Why do you worry so much?My 10-year-old casually threw this comment out at me two weeks back after hearing me on the phone discussing my concerns about Lil D. I usually try not to discuss my myriads of daily concerns about him in front of the kids, but I guess I had been slipping.Why … [Read more...]

Eligibility Where it Matters Most

Search For Solution

Have you read the report, Mrs. Ali?Do you have any questions?One by one, they asked me these two questions – regarding the observation report, speech and language evaluation, education report and the newest one – a functional vision assessment. (We waived the need to do a psychology evaluation this time, as everyone on the team agreed nothing had changed in that area.)Yes, I have read the report.No, I don’t have any questions.(I have a million questions, but none of them perta … [Read more...]

There is No Timeline on Progress in Autismland

Yellow bath sponge

There is no timeline on progress.There is no deadline on learning.It never ends, it never stops; the door is always ajar, waiting to nudged open, slowly but surely, or even kicked wide open.Lil D will be turning 14 this summer. And he has come so far in various aspects of his life while spinning his wheels in other areas. Sometimes we try to teach him something, some new skill, only to realize after a while that the backburner is where that skill needs to go. Maybe even off the … [Read more...]

Envious of Each Other’s Struggles and the Place I Need to Be

Daanish through the window

How will they know they are accepted by Allah? When the joy from their blessings and the trouble and despair from their afflictions are the same to them. -- paraphrased from a saying of Rabiah al Basri - a sahabi (companion) of the Prophet Muhammad (saw).The Facebook statuses I am reading today, this Jummah (Friday) are so very real and raw and honest. Several friends who are in Jerusalem and tried to get to Masjid al Aqsa for Friday prayers wrote about how men under the age of 45 were de … [Read more...]

Bismillah and the Road Less Traveled

bismillah

Bismillah-hir-rahman-hir-rahim.In the name of God, the most Beneficent, the most Merciful.In the name of the One who is the most charitable, the most helpful, the most mercy-giving, the most generous, compassionate, forgiving, gracious, kindhearted, forbearing, lenient and sympathetic.I’ve been thinking about this phrase, Bismillah, and how Muslims invoke it at the start of any new endeavor, when faced with any big trial, when placing forth any effort, any step and well, anything. We … [Read more...]


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