Why Did You Leave Me?

Lil D hoody smiling

I picture it happening like this: He walks in the door, weary after traveling thousands of miles and sitting for hours on a plane, then driving nearly three hours more – across time zones and battling jet lag – and drops his bags and calls out to his son. The edges of the picture fade into a blur and the room goes silent as the focus turns with a sharp clarity onto Lil D, spinning his beads and pacing the length of the family room. It’s time for the big moment, the story-book reunion between fat … [Read more...]

This is Not the Way – Reflecting on the Death of Alex Spourdalakis

alex

They show up in my news feed a lot – stories of children and adults with autism who wandered off, bolted, went missing and were found dead in a pond less than a mile from home, or something similar. Or news articles about a special needs child who was abused on his bus or in school by some teacher’s aide, or bullied by a classmate, or killed by a member of his own family when caring for him and helping him manage/overcome the most difficult aspects of his special needs became “too much. … [Read more...]

It’s Not Just About You

Amal sheparding Lil D on the beach

The only thing predictable about autism and Lil D in our house is that it and he are unpredictable. You can say that about life in general. It’s not a unique characteristic owned by autism or my child in particular. And yet, it is unique to us in its manifestation.We met with Lil D’s speech and occupational therapists last week at school at my request to discuss some things we want to change/try with his assistive communication device (his iPad), as well as figuring out a plan to help deal wi … [Read more...]


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