I Hit (and Scream, Pinch, Bite, Kick, Cry or Drop) for a Reason

puzzleandhand3

I am often stressed by the sheer number of decisions I make for Lil D; making educated guesses at what he wants, what he likes, what he needs, when he must follow through on a something or endure a situation, and when we should cut him some slack. What therapies we try, what treatments we pursue, which doctors we see and when we let things ride.Two articles I recently read have burrowed their way into my head, one from an adult with autism and one from a special education consultant. Both … [Read more...]

Sometimes All You Can Do is Live in the Moment

Daanish and Baba

As the moments pass, as things happen, I can hear the words unfurl in my head. The sentences form and the emotions breathe life into the words in the time following any mundane or noteworthy thing happening in this life I live with Lil D, Amal, Hamza, husband, in-laws, Islam and autism.I watch Lil D link arms with his father or lean on the table next to him while he eats, anxiously seeking his undivided attention; or Lil D and I share a moment of intimate eye contact at the dinner table … [Read more...]

Answering the Prayer of A Mother, A Traveler, and One Who is Fasting

Mideast Saudi Hajj

Big day tomorrow. We’re off to the Washington, D.C. metro area for a follow up appointment with a specialist for Lil D.As we have traversed this panic-fueled, emotionally-laden path since last January to try and figure out why so many things had taken a turn for the worse with our 11-year-old son, why self-injurious behaviors and some OCD behaviors had taken over his life, why school and home life became so awful for him, our investigations led us from an in-hospital stay for  multiple te … [Read more...]

The Bismillah – Preserving Dignity in an Autism Life

quran

Family and guests are arriving, the food is cooked to feed everyone at the house, the batwas (party favors) have been filled and labels added, the laddus (classic Indo-Pakistani dessert) are made, the decorations for the hall are ready, and the food for the party is coming together. It’s Bismillah time at our house.A Bismillah is a cultural/religious occasion (it’s not mandated in Islam), a ceremony that marks when a child is ready to learn how to read the Quran. Typically, it happens when a … [Read more...]

My Fractured Family and Autism – Lessons Learned

help

This is part two of two posts on making tough choices, the blessing of having a supportive family, and the fractured family syndrome. Read part one here.It’s taken me a while to write this part two of my “Fractured Family Syndrome” posts. As time passes from our Memorial Day weekend trip to Toronto -- the stress of leaving Lil D at home during a difficult time, of stifling every fiber of maternal instinct that screamed “Stay!”, of realizing that it was as important to let my family help us as … [Read more...]


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