The Teenage Years

Lil D lounging

We were out running errands on Sunday while Lil D hung out at home with a beloved care giver. I had given her different ideas of things to do to get him out of the house, since he had come home on Friday and had pretty much refused to venture out.What’s the big deal, my husband said to me, if he just wants to stay home?No, I stubbornly said. He should do something! We’re making our other kids get up off their butts and go out with us!I suggested to our care giver that she show Lil D t … [Read more...]

EnabledMuslim – Tackling Disability Inclusion in the Muslim Community

EnabledMuslim logo

Sometimes I wonder – what does it matter to him, whether he sets foot in any type of masjid/mosque? My son is definitely unMosqued, as is my entire immediate family, to some degree. Oh, we go to events and Jummah prayers at a mosque where we live, but that connection, that sense of belonging that feeling of strong community? – Yeah, not so much.By this point in our lives, though I want for our mosques and our communities to grow more inclusive of individuals with special needs and their fam … [Read more...]

Autism Road Trippin’

Lil D lying down in the back seat, arms drawn in, hood up, spinning his beads, at the end of a very long road trip.

The whole summer was leading to this moment, this trip, this foray back into autism road trippin'. Were we up for the challenge? Would we be fools for trying? Was it too much to ask of Lil D? Was it too much to ask of our other children, of each other?When is it worth it to pursue a family vacation, to push each other's limits, to stretch against the bubbles of our comfort zones in the name of family togetherness, in the name of life lessons, in the name of growth? And when do we say, no, … [Read more...]

Fourteen

Usually you have the third row of the car all to yourself, but with your Nanajan (maternal grandfather) catching a ride with us, I’m sitting with you in the back, encroaching upon your space. But you don’t seem to mind. You are unexpectedly happy to have the company.So this is the perspective from where you sit every time. It’s bouncier back here, and though the people in the front – usually me and your Baba – are less than seven feet in front of you, somehow we seem far away, our voices muff … [Read more...]

Praying for Ramadan Blessings and a Respite from Ramadan Despair in Autismland

Daanish on the RV

On a brilliant sunny afternoon, when the potted plants are certifiably glinting with shine and promise on my deck, when there is a buzz permeating the house as my children and my father-in-law eagerly wait for the evening so they can look for the moon in anticipation of the start of Ramadan, one would think that excitement and hopefulness would be the mainstays our collective family mood.And they are – for everyone else. And to an extent, I am excited too. I’m about ready to launch a great “3 … [Read more...]

Eligibility Where it Matters Most

Search For Solution

Have you read the report, Mrs. Ali?Do you have any questions?One by one, they asked me these two questions – regarding the observation report, speech and language evaluation, education report and the newest one – a functional vision assessment. (We waived the need to do a psychology evaluation this time, as everyone on the team agreed nothing had changed in that area.)Yes, I have read the report.No, I don’t have any questions.(I have a million questions, but none of them perta … [Read more...]

Envious of Each Other’s Struggles and the Place I Need to Be

Daanish through the window

How will they know they are accepted by Allah? When the joy from their blessings and the trouble and despair from their afflictions are the same to them. -- paraphrased from a saying of Rabiah al Basri - a sahabi (companion) of the Prophet Muhammad (saw).The Facebook statuses I am reading today, this Jummah (Friday) are so very real and raw and honest. Several friends who are in Jerusalem and tried to get to Masjid al Aqsa for Friday prayers wrote about how men under the age of 45 were de … [Read more...]


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