Life Goes On

life-goes-on

They prayed for my son at Friday prayers last week. Another milestone I never imagined would’ve happened as part of our parent-child journey. But life goes on. It seems altogether wrong and disloyal and nonsensical that life should be going on. We sat in the waiting room of the doctor’s office last week, making nervous small talk with my parents while we waited for the doctor to come out and give us Lil D’s test results. Husband and I had run through the scenarios in our head, from … [Read more...]

You are Enduring Love

Dilshad and Daanish falls shot

My darling boy, The sun is shining and the air is warm with the scents and sounds of a spring most awaited. You are swinging in the hammock in the backyard, spinning your beads on a twig with your hoodie pulled over your head and sunglasses perched on your face. God, you are handsome. It seems fitting that on today, World Autism Day 2014, we have come to a point in our autism journey where the path has played a cruel, cruel trick on us. Where there seems to be no alternate route, where the … [Read more...]

Do You Remember 13?

Lil D through the window

Do you remember 13? Seventh grade or eight grade maybe? A mixture of hormones, uncertainty, a growing sense of self and figuring out how to fit in with the right friends without compromising your true self? And what is that true self? Is it growing out of what your parents taught you, or is it developing independently apart from the external influences in your life? Do you remember 13? Not wanting to hang around your family all the time, wanting to be out of the house more, but you aren’t … [Read more...]

Words Matter in Autism Land and Beyond

words matter

One might call me a pushover – my husband often does, saying that I’d rather keep quiet and not ruffle any feathers, except when it comes to Lil D. And even with him, in forging relationships with his teachers, therapists, aides, caregivers, bus drivers and bus aides, babysitters and everyone else throughout the years, my approach has been to win them and teach them with kindness, firmness and openness. To try and be open-minded as to what they feel and know in their relationships with … [Read more...]

To Have and to Hold

Daanish bed

Last night after putting you to bed, after turning off the bedroom light and turning the closet light on and leaving the door ajar, after turning on your white noise machine, after uttering my usual nighttime prayer for you, after rubbing coconut oil on the lingering scars on your face and your consistently chapped lips, after covering you with your favorite heavy blanket and kissing your forehead, I left the room and shut the door. Throughout all this you said nary a word to me. You giggled, … [Read more...]

Br. Omar Suleiman Speaks About People with Special Needs and their Families

First I was tagged in the video. Then it was posted to my wall and sent to me via a private message from a friend. Then, every faith-based, especially Muslim-based special needs group I am a part of on Facebook posted this video posted to their respective walls. And though I'm not on Twitter hardly, I'm sure the link is being shared generously there. I'm talking about this video by Imam Omar Suleiman, director of the Islamic Learning Foundation and an instructor at Mishkah Univesity, Al Maghrib … [Read more...]

It was Everything

Lil D and his therapist in the pool.

On our sixth (fifth, or was it the seventh? Who knows? I’ve given up counting) snow day, when it was deemed too unsafe for busses to drive kids to school but I could drive and other desperate parents who needed to get to work or just get their kids out of the house could drive – I pulled my car out onto our unshoveled driveway and uttered a prayer out loud: Please God. Please. Please. Please. Please. Throw me a bone. Let him enjoy this. Let him have a good time. Let things go smoothly. … [Read more...]


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