We Must All Live Truthfully

Ali Family Autism Truths #30 – April 30, 2016I read an article in the other day about prenatal testing, about a family of two scientist-parents who invented a machine that could sequence and separate genes to better and earlier tell if an unborn baby would have Downs Syndrome or a host of other disabilities.The article was titled, “How A Prenatal Test is Transforming Modern Medicine.” One of the main scientists interviewed in the piece, who has an adult son with Downs, said that after eve … [Read more...]

Why is Setting up a Village of Support so Difficult?

Ali Family Autism Truths #11 - April 11, 2016As we wrapped up our monthly meeting, we pulled out our calendars to schedule our meeting for the next month.How about May 12? She asked me.No, I said. That’s my birthday. I don’t want to be depressed on my birthday.She laughed. Depressed?No, I’m serious, I said. Just consider this for a minute. We’re inclined, as humans, to try and live positively. No matter what is hard or difficult for us or our children, I try to live with the b … [Read more...]

Absence Makes the Heart Grow Fonder

Growing up, I can only recall one time when my parents left us in the care of a babysitter. Part of it was where we grew up (in a small Midwestern town away where there wasn’t much by way of entertainment). Another part was just how my parents were – more of homebodies who just weren’t inclined to leave their children. They didn’t seem to have a lot of complaints or difficulties, even when I ask them now, when it came to our upbringing.Were we easier kids to parent than our own children are n … [Read more...]

Lean On Me

My mother always told me that one of our biggest fallacies is that when ten good things and one bad thing happens, we will fixate on the bad, worry about the bad, lose faith over the bad, get depressed over the bad, despair over the bad – and not remember the good. She is a smart woman.We’ve had a nice week or so with Lil D, sandwiched between two very, very awful incidences. And though I’m inviting trouble by writing this (telling you about the good days – because that always seems to jinx t … [Read more...]

Walking Away from Autism

You can’t. Walk away from autism, that is, no more than you can walk away from any of your children. For that matter, if you have a child with any sort of disability or sickness (autism, downs syndrome, leukemia, cancer, what have you), the first thing that becomes painfully clear is that your child cannot walk away from what troubles him; therefore, you cannot walk away. Ever. No matter how much you want to at times. And we all do – even the most warrior of warrior mothers at some point loses he … [Read more...]


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