Eligibility Where it Matters Most

Search For Solution

Have you read the report, Mrs. Ali?Do you have any questions?One by one, they asked me these two questions – regarding the observation report, speech and language evaluation, education report and the newest one – a functional vision assessment. (We waived the need to do a psychology evaluation this time, as everyone on the team agreed nothing had changed in that area.)Yes, I have read the report.No, I don’t have any questions.(I have a million questions, but none of them perta … [Read more...]

Deserving Respect

holding-on

So many things are different now.So many.And though I know that parenting is a journey, and we learn from our early selves and fine-tune our methods as the years progress, that we make many mistakes, and that sometimes mistakes need to be made for us to learn and grow – but that doesn’t lessen the guilt or heartache that I wish I had known then what I know better now.That as important as it is to teach Lil D how to do things he doesn’t very well want to do, or navigate situations he d … [Read more...]

The Unbearable Lightness of Being

Lil D and his sister walking together.

Last night, after dinner, with my in-laws out visiting my sister-in-law and my husband upstairs putting our youngest to bed, I drew the curtains on the world and called Lil D to join me on the family room sofa. Amal was already there, nose buried in a Nancy Drew mystery. And Lil D came bounding up the stairs. Seeing me on the sofa, no phone in hand, no laptop open nearby – his face lit up.I could almost hear the thoughts in his head: Ahhhh Mamma. We’re going to chill now. No dis … [Read more...]

The Magician Who Can’t Make Autism Numbers Disappear

Autism puzzle

He’s a regular parlor-room magician. But instead of pulling a never-ending trail of colorful handkerchiefs or a bouquet of flowers from his sleeves, we are retrieving remote controls, spoons, wads of tissues, beads, toy cars, small stuffed animals and hairbrushes.Yesterday, when I announced bed time to him, he stood up sleepily and started to stagger upstairs. In true Lil D style of late, he was wearing two hoodies over an undershirt.(He just finds them around the house and piles them o … [Read more...]

I Hit (and Scream, Pinch, Bite, Kick, Cry or Drop) for a Reason

puzzleandhand3

I am often stressed by the sheer number of decisions I make for Lil D; making educated guesses at what he wants, what he likes, what he needs, when he must follow through on a something or endure a situation, and when we should cut him some slack. What therapies we try, what treatments we pursue, which doctors we see and when we let things ride.Two articles I recently read have burrowed their way into my head, one from an adult with autism and one from a special education consultant. Both … [Read more...]

Don’t Let Newtown’s Tragedy become an Autism Backlash

Newtown shrine

The early morning scramble to get the kids up, dressed, fed, and out the door to their three different schools is more hectic this week as we count down to winter break. Whereas I was much more organized during the start of the school year and more dutiful in getting things done before I woke the kids, now I’m barely getting up ahead of them and am rushing to get lunches made, meds administered, coats and shoes on and bags packed as they chow down their breakfast in anticipation of busses c … [Read more...]

The Selfish Prayer and Fifth Grade Graduation

Daanish cake

We ate cake tonight, baked and decorated by our daughter for her big brother. We were celebrating Lil D’s fifth graduation with cake and biryani, and although he had eaten his meal half an hour before and had since retreated upstairs, it was still a celebration. I served the cake to the family on a familiar square yellow platter, decorated with red and blue large dots and covered with Arabic and English writingBismillah-ir-Rahman-ir-Rahim -- In the Name of God, Most Gracious, Most Co … [Read more...]


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