Ali Family Autism Truths #10 – The Unbearable Business of Trust

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April 10, 2015 - Autism Awareness Month, Autism Truths #10We trust.We trust the bus driver to transport him safely. The bus aides to make sure he is comfortable, not upset and not injuring himself. And after nine years of trying and trusting, we say enough. And we drive him ourselves.We trust.We trust the teachers and therapists in his school to teach him, make sure he is safe, look out for his wellbeing, see that his clothes are worn properly after he visits the bathroom and … [Read more...]

The Ease and the Glory

When we first were officially told that D's diagnosis was autism, we were devastated. This may be insulting to some on the spectrum, but I'm keeping it real. There has been so much heartache mixed in with joy these past 11 years since that day that it all seems inexplicably intertwined.You can't have one without the other. As much as I've tried to lessen and alleviate D of the excruciating hard parts of autism, it's still there, perhaps to remind us that the beautiful moments and the joy are … [Read more...]

I Plan, God Laughs

Welcome To The Future Green Road Sign with Copy Room Over The Dramatic Clouds and Sky.

“Never be afraid to trust an unknown future to a known God.” -- Corrie ten BoomA soft plush white ball. A small turquoise blue-striped oblong pillow. A puppy-dog pillow pet. A fuzzy throw that is supposed to be draped on our sofa. These are the four go-to’s for D when he is feeling unwell or his anxiety is up, and he needs to stuff something up his shirt.Usually the signs are clear and indicative of the level of his anxiety or well-being. The arms go in the shirt. The hood goes up on his … [Read more...]

Eligibility Where it Matters Most

Search For Solution

Have you read the report, Mrs. Ali?Do you have any questions?One by one, they asked me these two questions – regarding the observation report, speech and language evaluation, education report and the newest one – a functional vision assessment. (We waived the need to do a psychology evaluation this time, as everyone on the team agreed nothing had changed in that area.)Yes, I have read the report.No, I don’t have any questions.(I have a million questions, but none of them perta … [Read more...]

There is No Timeline on Progress in Autismland

Yellow bath sponge

There is no timeline on progress.There is no deadline on learning.It never ends, it never stops; the door is always ajar, waiting to nudged open, slowly but surely, or even kicked wide open.Lil D will be turning 14 this summer. And he has come so far in various aspects of his life while spinning his wheels in other areas. Sometimes we try to teach him something, some new skill, only to realize after a while that the backburner is where that skill needs to go. Maybe even off the … [Read more...]

Deserving Respect

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So many things are different now.So many.And though I know that parenting is a journey, and we learn from our early selves and fine-tune our methods as the years progress, that we make many mistakes, and that sometimes mistakes need to be made for us to learn and grow – but that doesn’t lessen the guilt or heartache that I wish I had known then what I know better now.That as important as it is to teach Lil D how to do things he doesn’t very well want to do, or navigate situations he d … [Read more...]

The Magician Who Can’t Make Autism Numbers Disappear

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He’s a regular parlor-room magician. But instead of pulling a never-ending trail of colorful handkerchiefs or a bouquet of flowers from his sleeves, we are retrieving remote controls, spoons, wads of tissues, beads, toy cars, small stuffed animals and hairbrushes.Yesterday, when I announced bed time to him, he stood up sleepily and started to stagger upstairs. In true Lil D style of late, he was wearing two hoodies over an undershirt.(He just finds them around the house and piles them o … [Read more...]


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