Why Did You Leave Me?

Lil D hoody smiling

I picture it happening like this: He walks in the door, weary after traveling thousands of miles and sitting for hours on a plane, then driving nearly three hours more – across time zones and battling jet lag – and drops his bags and calls out to his son. The edges of the picture fade into a blur and the room goes silent as the focus turns with a sharp clarity onto Lil D, spinning his beads and pacing the length of the family room. It’s time for the big moment, the story-book reunion between fat … [Read more...]

Happy Birthday Lil D – Not so Lil Anymore

Daanish 13 birthday

It isn’t a celebration unless we eat biryani, and that our family did – in two different continents.I woke yesterday morning to the sound of bleating goats in the front yard. Normally it would’ve been the sing-song sounds of Lil D roaming the house, as he gets up pretty much as early on the weekend as he does on the weekday. But he is not here with me. He is far, far away, like a line out of a fairy tale.I am in India. He is at home in Virginia with my parents. And I am not with him on th … [Read more...]

It’s Not Just About You

Amal sheparding Lil D on the beach

The only thing predictable about autism and Lil D in our house is that it and he are unpredictable. You can say that about life in general. It’s not a unique characteristic owned by autism or my child in particular. And yet, it is unique to us in its manifestation.We met with Lil D’s speech and occupational therapists last week at school at my request to discuss some things we want to change/try with his assistive communication device (his iPad), as well as figuring out a plan to help deal wi … [Read more...]

Zen and the Art of Autism Maintenance – Part One

kids

Note: There are a lot of things I want to share with you regarding our winter break, managing Lil D’s autism through the break, our adventures in flying and finding some sort of peace with the chaos that is our life. So I’m doing this in parts. This, of course, is part one.They went back to school this week, my kids – after two weeks of winter break. We survived. We did something radical, we had some fun and we had some very, very awful days. The last few days were tantrum and anxiety-filled … [Read more...]


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