The Unbearable Lightness of Being

Lil D and his sister walking together.

Last night, after dinner, with my in-laws out visiting my sister-in-law and my husband upstairs putting our youngest to bed, I drew the curtains on the world and called Lil D to join me on the family room sofa. Amal was already there, nose buried in a Nancy Drew mystery. And Lil D came bounding up the stairs. Seeing me on the sofa, no phone in hand, no laptop open nearby – his face lit up.I could almost hear the thoughts in his head: Ahhhh Mamma. We’re going to chill now. No dis … [Read more...]

Growing His Voice

Daanish with backpack

Every morning the routine is the same – I get up about 30 minutes before the kids and get things ready. Lunches are put into backpacks, notes are written, breakfast is put on the counter (if I’m lucky), the cat is fed and Lil D’s iPad is taken off the charger, zipped into its case and put in his backpack.Oh that iPad. That electronic device that has grown its own personality in this house – Lil D’s sidekick; his “little buddy” (unlike Gilligan was to the Skipper, but I’m dating myself now); h … [Read more...]

Fighting for His Voice

ipad woman

Whenever I lost something, my parents taught me to immediately utter the du’a (prayer), Innal ilahi wa innal ilayhi raji’oon. Say it, and surely God will bring whatever you lost back to you, my parents, in-laws, and so many elders told me. This du’a is the proper thing to utter when someone passes, but also it’s a du’a for loss of any kind. The phrase comes from the Quran, Surah al Baqara, verse 156. The full verse is: “Who, when a misfortune overtakes him say: ‘Surely we belong to God and to Him … [Read more...]

Losing His Voice

Daanish and iPad

Ever lost your voice to a bout of laryngitis? It’s pretty frustrating not to be able to say what you want. One day you can talk, and the next day your voice is all hoarse and croaky and then the day after that you go silent.Lil D lost his voice this weekend, and not to laryngitis. His iPad, his assisted communication device – his voice – was lost/stolen on Saturday on an outing to Target where we live in Central Virginia.He lost his voice. A voice he (and we) have fought so, so, so hard t … [Read more...]

Finding His Voice

ipad-education

“Two roads diverged in a woods, and I, I took the one less traveled by, And that has made all the difference.” – Robert FrostAfter doing this mothering stuff (and this autism mothering stuff) for this long, I’ve come to appreciate words – spoken words, written words, and most of all, communicative words. When Amal was born, my husband and I prayed for her to talk so much that it would drive us crazy. (God answered that prayer in multitude.) At that point, Lil D still wasn’t talking outside of … [Read more...]


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