Mama, out on the town at her favorite hamburger joint. She made the bead necklace she’s wearing at Adult Day Care — her “Job.”
My mother smoked like a diesel for almost 70 years.
I guess she was lucky.
She didn’t get lung cancer. She never had asthma. But at the ripe old age of 85 or so, she developed COPD.
I’d heard of this disease, which, nearly as I can tell, is basically emphysema with complications and a larger understanding. But I didn’t know a lot about it. I have to admit that now that I’ve been the caregiver for someone who has it, I still don’t know a lot about it.
Extreme old age is tricky.
People this age have an overall feistiness that, when it combines with the lack of memory that goes with dementia, means they can fool you. One of my worst memories of care-giving was the time about a year ago when my mother almost died because I thought that making an appointment with the doc and taking her in the next day would be enough.
As I said, extreme old age is tricky.
They can be doing their “I’m ok,” feisty act one minute and gasping for breath the next.
We’ve had several close calls in which we had to literally pick her up and carry her to the car, then drive the few blocks to the nearest ER (if it had been further, I would have lost her.) But that day was the closest of close calls, and it was, as these things always are if you don’t act quickly enough, complicated by other problems.
Extreme old age is tricky.
Everything in the body is worn out and running on habit. When one thing (breathing) goes wrong, then the old heart starts to beat funny, and when the heart starts to beat funny, the lungs get cloudy, and when the lungs get cloudy, the heart stops being able to do its job, which somehow or other craters into kidney failure.
All in a matter of minutes.
If you don’t get it stopped at the breathing is getting difficult point, it’s like taking that first step out the hatch of the airplane without your parachute. It can take days to get her back ticking again.
That particular night, it was hours of ER close calls and docs who told me they didn’t “like the looks of it” followed by a week in the hospital.
Then Mama came home, feistiness fully intact, and thanks to no-short-term memory, blissfully unaware of most of what had happened. But I remembered. For a while after that, I was taking her to the ER if she coughed twice.
Extreme old age is tricky.
And the primary care-giver is also the first diagnostician. I make a lot of medical calls for my mother, including the all-important when to go to the doc or the ER. That’s dicey for the simple reason that I don’t know what I’m doing. I’ve never dealt with this oddball combination of small child skating along on the ice in an 88-year-old body before.
And she is a small child.
A pampered, spoiled, demanding small child.
The further she gets into the dementia, the more childish she becomes. For instance, she loves for me to take her out for drives.
She loves for me to take her out for drives frequently. In fact, I think she would be happy to have me chauffeur her around all day, every day.
If I’m working on something, she says, “I want you to take me out for a drive now.”
I say, “I’m busy. We’ll do it in a few minutes.”
She looks at me almost exactly like the actor pretending to be a toddler demanding a cookie in Convos with My Two-Year-Old, and repeats “I want you to take me for a drive now.”
She doesn’t quit until I give up and do it.
She goes to Adult Day Care every day. I am going to write in more detail about Adult Day Care. It is a wonderful program. She loves her “job” as she calls it.
She loves it so much that she gets up about 5 every morning and starts announcing that it’s time to “go to work” and she’s going to be late. You can’t turn her off. It’s. Every. Morning.
Even though she loves Adult Day Care, she has a very short attention span. If there’s a lull in the good times, she’ll call me and tell me to come get her. Sometimes, she’ll announce that everybody is just sitting around doing nothing and she wants me to come get her. I remember once when I called the Director of the Day Care Center and told her Mama had called and I was coming to pick her up and she said, “You don’t want to watch the dancers, Mary?”
There were dancers, getting ready to perform, and my elderly toddler got tired of waiting for them to get with it and called for me to come get her. If I’d gone over there, she would have gotten miffed because I stopped her from “having fun” watching the dancers.
If the “I’m bored,” explanation doesn’t move me to come get her, she’ll tell me she’s sick. I always go when she says she’s sick. I don’t have a choice, since there’s no way to know if it’s real or bluff.
In fact, I got one of those calls just a few days ago. Obedient daughter that I am, I drove over, parked the car, went in and got her. As I was guiding her and her cane/jacket/stuffed animal-she’d-won/painting-she’d-made to the car, she told me “I was having fun.” It seems that between the sick call and when I got there, the staff had gotten the fingerpaints out and Mama had gone from too sick to stay to having too much fun to leave.
On the last day of May, the whole town was under threat of the widest tornado in history. As our family gathered around the tv to watch what was happening and decide what to do, Mama kept talking.
She does that.
Talk, I mean.
Non-stop. Just like a toddler. You can’t really have a conversation with her anymore, but she rattles non-stop as long as she’s awake.
I usually just un-huh her the way I did the kids when they were babies.
But we needed to hear the tv.
“Hush,” I told her.
She paused for a beat, then started in, talking about one of the lamps or something.
“Mama,” I said, waiting until she stopped chattering and looked at me, “Hush.”
She stared at me a moment, then turned away. “Well alright. I guess if I can’t say anything, I’ll just be quiet. I don’t know why I can’t talk. But if you want me to just sit here and not say anything, then, I’ll shut up. If that’s what you want, then I guess I’ll have to do it, but I don’t see why I can’t talk
“That lamp shade is crooked. Or maybe it’s made to look like that. No. I think it’s crooked. Mary Belle had a lampshade like that. Only hers was pink. Or maybe it was purple. I want you to take me for a drive …..”
We give her the medicine she’s supposed to have. Then, we watch her swallow it. Otherwise, (for reasons I do not know) she will hide it behind her bed.
We hide her medicine so she can’t find it. Otherwise, (again, for reasons I do not know) she will decide she’s not getting enough and upend the bottle into her mouth.
I give her money to take with her to her “job.” But I can’t give it to her too soon because she will hide it, and then she’ll forget that she hid it and tell me somebody stole it.
She gets lost in the house.
She tells everyone that I “stole” her car from her.
And to this day, if I needed a heart transplant, she would say, “Here. Take mine.”
My Mama. My sweet, baby Mama.
I love her so much it makes my teeth ache.
It is no burden, taking care of my Mama.
It is a blessing and a privilege. I cherish every day with her.