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May 16, 2018
To the Top of the Bleachers! – FA Awareness Day
I raised my head, looked up at our reserved seats, and felt a stomach-punching flood...
March 22, 2018
Recognition: Jean Vanier and “Summer in the Forest”
"I think that we human beings have a compass, a mysterious compass, which leads us...
March 01, 2018
Rare Disease Day: A Sick Pilgrim Lobbies on Capitol Hill
The sun was setting, and this Cajun was still not freezing. In the distant north...
March 30, 2017
Sick Confessions: I’m a Bad Pray-er
"You arrive at enough certainty to be able to make your way, but it is...
February 27, 2017
Interview with Two Disabled Dudes
Tuesday, February 28, is the day Mardi Gras is celebrated this year. The day before...
February 09, 2017
To Bill Nye, Fellow Ataxian
...while Nye dreams of outer space, it's his own DNA that worries him. "My family...
February 02, 2017
The Grand Canyon by Wheelchair
Maybe I missed out on a fundamental aspect of being a Cajun. Maybe my ancestors...
September 07, 2016
“For the [Not Quite] Dead”
When I was a junior in high school, I was having a rough time. Learning...
May 20, 2016
Friedreich’s Ataxia Awareness- Dark Devotional
Note: May 21 is Friedreich’s Ataxia Awareness Day. Part of me is afraid that I...
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