Why School Is Scary, and Great

Penny and William on their first day of school last month

I’m years away from being an “empty nester,” and although I suspect that Penny will one day live independently, there’s always the possibility that our daughter with Down syndrome (or, for that matter, our typically-developing son or daughter) might end up under our roof for many years of their adulthood. Still, with William in pre-school and Penny in kindergarten, I have a guess as to what it might feel like.

There’s the scary part. I’m entrusting my children to other people–teachers, administrators, therapists, other kids, other parents–for many hours of every day. This sending forth feels particularly scary for Penny. Although she is loving kindergarten, she’s also struggling every day to have “quiet hands.” Most days she touches things she shouldn’t touch and hides things she shouldn’t hide. Last week, she also hit and pushed her friends. Repeatedly. The chance that they won’t be her friends for long looms large, and I can’t do much about it from a distance. We talked about it a lot, and she tells me that she went back the next day and apologized to each of them in turn, and there were no more reports of pushing or hitting as the week went on. But still, all I can do from a distance is hope that we’ve offered her and her teachers a good foundation to learn how to be in kindergarten, and pray.

With William, I don’t worry so much. He loves school and he is already Mr. Obedient. At home it’s a different story. A few weeks back, he hit Penny. Peter, trying a new tactic, said, “William, what would happen if you hit one of your friends at school?” William looked puzzled. “Dad, I would never hit one of my friends at school!” Right. So I don’t worry so much about him making friends or obeying his teachers, but I’m still entrusting him to other adults for hours every day, and I’m still inviting other people to participate in shaping his world.

But two cool things happened this week, things that never would or could have happened in the context of our own home. First, there was the note home from William’s teacher. She wrote:

The kids love to pretend to have restaurants . . . So one day, I ordered a jelly donut from them. Then I bit into my pretend jelly donut and described how the filling tasted. What I described was not jelly at all. “Ewww! This is not jelly! It tastes spicy, it’s yellow, and it goes on a hotdog!” William screamed, “IT’S MUSTARD!” and laughed so hard he literally fell off the bench.”

Thank the Lord for teachers who make my kid laugh so hard he falls off his bench.

Then, the day after Penny’s hitting and pushing incidents, I got a long note home and an email about her day. It still included some infractions, but overall she did a great job. Lots of stickers and positive reinforcement. It concluded with the reward that meant most to her–she got to “be the teacher” and “read” a book to another class. She talked about it all afternoon. So again, thank the Lord for teachers who interrupt their regular schedules to allow our daughter to read a book about a tiger coming to tea.

And thank the Lord for the times when vulnerability leads to trust and trust leads to joy.

About Amy Julia Becker

Amy Julia Becker writes and speaks about family, faith, disability, and culture. A graduate of Princeton University and Princeton Theological Seminary, she is the author of Penelope Ayers: A Memoir, A Good and Perfect Gift (Bethany House), and Why I Am Both Spiritual and Religious (Patheos Press).

  • http://www.facebook.com/deusami Patricia Crews Tice

    Even the photo is precious!! How amazing! Kudos to her teacher.

    I’ve always seen school as a delegation of the responsibilities God has given us as parents–and a good one. This year, PJ was crushed that he was still in the class of new kids while most of his friends from Kindergarten on were still in the other class. He wrote a carefully worded letter (with help) about his frustration and desires but got no response at all. His teacher this year is a converted publishing editor and a real kindred spirit with our family. We can already see that she will be a family friend for many years and PJ is already trying to get her and her husband back over for dinner and a movie. He’s also learning to encourage his new friends to a righteousness they have never known. I could not teach these lessons, but God has arranged them for him there and I am grateful.

    Trust comes hard for me, especially in the academic realm. I have wondered many times whether to pull him out. I was always working so I didn’t have the choice, but I seriously considered it this year since I’ve been home. Every struggle has made me question whether we could do this better together. I have felt vulnerable and let down many times by this school. Still, they do things with him that I can’t and until the Father shows me otherwise he is safe and growing there.

    Vulnerability…trust…joy… One step at a time.

  • teecobb

    I recently heard a quote that really resonated for me…”overcoming the notion that one must be regular will interfere with the reality that they can become extraordinary”….I am so grateful that Jesus didn’t choose disciples based on their Ivy League degrees and I’m so grateful that as an obedient son He surrendered His life to the Father to die so that we might have life everlasting; the hope that He also gives in spite of the health and well-being that is stolen from so many of us. On this day, I am especially grateful as a single mother homeschooling an 8 yr old masterpiece diagnosed with Ds…to have that gift, a choice to homeschool him and allow him to grow with the brain that he’s been given.

    Bob Doman, founder and director of the National Association of Child Development said in his vlog on Social Developmental of our children with Ds, “Why would anyone put their child in a room of six year olds when they have a brain that responds like a 3 yr old.”

    Prayers go out to all those teachers who are being asked to teach such a wide range of needs in one classroom and expect each child to get what they deserve: love, joy and the burning passion to know Jesus so that they can cope in this lost world.

  • http://www.facebook.com/people/Krista-Gage/1577465274 Krista Gage

    I have been freaking out a little bit the last few days. My son, Kyler, started Kindergarten this year too. He also has Down syndrome. He is a twin to Taegen. Taegen does not have Down syndrome. I have really been struggling with the whole idea of letting him go and be with a teacher or other adults all day. I don’t know what is going on. I don’t know how the transitions go between the special education room and the general classroom. I don’t know what my expectations are. I don’t know what he is or isn’t learning. i don’t know who his friends are or what he does at recess. I have similar fears for Taegen but Taegen comes home and tells me all about his day. He tells me about his friends. He tells me what he does at school and what he is learning. I don’t have that same level of communication with Kyler. Anyways, I was just googling random things to see if I could find someone else who is may have ideas or information that might make me feel better. I came across your website and felt like you may be going through the same thing I am going through. It just feels good to know others are nervous and not sure about things too. Thanks.

    • amyjuliabecker

      Krista, Thanks for joining the conversation! Are Taegen and Kyler in the same class? Is Kyler’s teacher willing to give you updates? We are in a really nice situation because Penny’s teacher has been sending home daily reports on how things go. They are literally breaking the day into 10 minute increments and she gets a sticker every 10 minutes that she has “quiet hands.” (Clearly, impulsivity is a real issue here.) It’s going well, but it is a huge effort on their part. I’m not nearly as concerned with her academic learning at this point as I am with her social learning, if that makes sense. I hope this helps a little bit, even if just to let you know you aren’t alone! Amy Julia

  • http://margie.ransomfellwoship.org Margiehaack

    Amy, as always, you are eloquent, honest and gracious. I think you speak for parents of all ages. My children are all grown, and I still think it can be scary and challenging.