January 22, 2014

Von woke up with a low-grade fever, and he coughed nearly the whole night long.  It seems like he has the never ending cold.  Everyone says that kids are sick for the first 2 years, but I never imagined it to be like this for him.  He can’t seem to catch a break.  A friend of mine asked me yesterday does his PHP make him more susceptible to illness.  The short answer is that his immune system is fine.  He… Read more

January 21, 2014

Every mom has one, right?  I’m seriously going crazy because Von is so out of sorts.  The whining and the constant crying is just a lot for my brain to handle.  He’s been running a fever for 4 days now.  The doctor says he has a virus, and we just have to let the virus run its course.  Unfortunately, my patience level for this fever ended on Sunday around 1 pm.  He’s been a hot mess.  He won’t eat, he’s… Read more

January 20, 2014

Von has a virus it seems. We are day three on a fever. He’s cranky, not hungry, and very needy of mommy and daddy. We had a rough morning, but I caught this smile after his nap. He’s on triple dose of his medication. He’s had 2 nebulizers as well. Grandma and grandpa are coming tomorrow to babysit Read more

January 20, 2014

It appears Von has an ear infection. Please keep him in your thoughts. Read more

January 20, 2014

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January 19, 2014

I have that yucky feeling today. No matter what I do I can’t shake my anxiety. A year ago at this very moment, Von was still in the PICU. He had just been diagnosed after a crash that had nearly killed him. We had just started him on his new medications, and he was starting to improve. I know he’s doing ok today, but the anxiety and the PTSD from the trauma we experienced last year is palpable. I can… Read more

January 18, 2014

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January 18, 2014

Von woke up with a fever this morning. I hate days like today. He isn’t really that congested, has a slight cough, but he is whiny, clingy and tired. It’s 10 am and he’s already down for a nap. I am not sure if healthy kids get random fevers, but I’m learning that children with PHP often run fevers with no other symptoms due to hypothalamus dysfunction. The hypothalamus helps your body regulate temperature, and it sits right above the… Read more

January 18, 2014

Good morning from our favorite little boy! Read more

January 18, 2014

He wasn’t always this filled out. In fact before Von started thyroid medication and growth hormone he was no where near the CDC growth chart. We had to do weekly weigh ins, and his pediatrician remained totally perplexed about why he wasn’t gaining weight. Von was diagnosed last January. He’s grown 10 inches and gained more than 11 lbs since we started his hormone treatment. He is in both the 10% for weight and height. Anytime you meet a child… Read more

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