{"id":83,"date":"2016-01-14T05:23:00","date_gmt":"2016-01-14T05:23:00","guid":{"rendered":"http:\/\/admin.patheos.com\/blogs\/felixculpa\/2016\/01\/an-experiential-log-of-chronic-illness-and-other-weirdness.html"},"modified":"2016-01-14T05:23:00","modified_gmt":"2016-01-14T05:23:00","slug":"an-experiential-log-of-chronic-illness-and-other-weirdness","status":"publish","type":"post","link":"https:\/\/www.patheos.com\/blogs\/felixculpa\/2016\/01\/an-experiential-log-of-chronic-illness-and-other-weirdness.html","title":{"rendered":"An Experiential Log of Chronic Illness and Other Weirdness"},"content":{"rendered":"<!DOCTYPE html PUBLIC \"-\/\/W3C\/\/DTD HTML 4.0 Transitional\/\/EN\" \"http:\/\/www.w3.org\/TR\/REC-html40\/loose.dtd\">\n<html><head><meta http-equiv=\"content-type\" content=\"text\/html; charset=utf-8\"><meta http-equiv=\"content-type\" content=\"text\/html; charset=utf-8\"><\/head><body><div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-YW8UfV4KbJk\/VpSVI2VqeSI\/AAAAAAAAA4o\/20YPG2RKLBg\/s1600\/IMG_2577.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-YW8UfV4KbJk\/VpSVI2VqeSI\/AAAAAAAAA4o\/20YPG2RKLBg\/s320\/IMG_2577.JPG\" width=\"179\"><\/a><\/div>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><\/div>\n<p>Chronically ill people live life by constantly pushing themselves. If we don\u2019t feel like cooking, we whip out a recipe, dig in the pantry, and cook anyway. When we got up in the morning, if we feel like puking and feel a magnetic pull toward our beds, we battle through, get in the shower, and start the day. Go to Wal-Mart. Meet and disciple our friend. Do the laundry. Take care of ailing, aging parents. If we\u2019re fatigued and feverish, we <i>smile<\/i>, keep calm, carry on, and crash from exhaustion as soon as humanly possible.<\/p>\n<p>It becomes a way of life to push, push, push. And sometimes, we don\u2019t know when to call it quits. We convert inner cries to throw in the towel into pep talks to push a little harder. <i>I think I can, I think I can, I think I can \u2026<\/i>\u00a0Problem is, this way of handling non-stop illness can make us insensitive to the needs of our own bodies.<\/p>\n<p>This was the case for me Sunday morning. I really thought I could handle going to church. I took my shower the night before so I wouldn\u2019t have to rush as much, and I skipped Sunday School. I was tired on the way to church, but I didn\u2019t feel overly taxed \u2026<\/p>\n<p>Until I laughed with a few peeps and sang a few songs. Then I was d-o-n-e, done. So I walked out and fantastic Andrew was kind enough to drive me home.<\/p>\n<p>I typically judge whether I can do something or not by asking myself, \u201cCan I do this and not disrupt anyone\u2019s life unnecessarily?\u201d And \u201cIf I do this, what\u2019s the likely recover time?\u201d Most of the time, I judge pretty well, but the surgery has thrown me for a loop and I can\u2019t seem to judge with any accuracy what will or will not be too much.<\/p>\n<p>Cardiac pacemakers are becoming a pretty common thing, so perhaps you know of someone who had the surgery, was down for a week, and bounced back like a pro. This is my fourth pacemaker, and I\u2019ve had one \u201cbounce back like a pro\u201d experience. This is definitely not a repeat of that experience. Just getting the surgical site to heal in a reasonable time frame has been difficult. Of course, I\u2019m trying to heal a deep wound with very little resources, since I eat like a bird on a slightly less than rounded diet. But besides that, the pacer is set at a ridiculously high voltage, which causes challenges akin to sticking a finger in a light socket. Sort of. It\u2019s hard to explain, but I\u2019ll try.<\/p>\n<p>Because the lead is new, they turned up the voltage for two to three months to create scar tissue, which will serve to keep the lead securely fastened in my heart. This is pretty important since, if the lead falls out, I have to go back into surgery to put it back in. Problem is, with the high voltage, I feel the lead zapping me anytime I:<\/p>\n<p>-eat<br>-exert myself at all<br>-experience emotional stimulation, good or bad<\/p>\n<p>I\u2019m also experiencing a lot of blacking out and some near fainting spells if I over-do in any of the above scenarios. So \u2013 high voltage, low nutritional reserves to heal, and a delicate internal system that has been knocked silly with copious amounts of really cool drugs has thrown me for a loopedy-loop.<\/p>\n<p>My point? I don\u2019t really have one. I think I just wanted to log this pacemaker replacement experience in a place I could easily find for next replacement so I\u2019m prepared, realistic, and free to give myself a break come post-surgery. As I said, I\u2019m usually a pretty good judge of what I can and cannot do, but sometimes, I fail. Case in point: my attempt to scratch off a bucket list item by going hunting in the dead of winter and instead freaking my husband out by getting hypothermia. While last Sunday was not quite that dramatic, it would\u2019ve been had I not high tailed it out of there and instead pushed through like my \u201cguilty\u201d conscience is always telling me to. <\/p>\n<p>As I told my small group \u2026<\/p>\n<p>For now, it\u2019s best to just keep calm and read a book. And perhaps live as a hungry hermit in a cave. Throw me a few scraps, make me nap, clean my toilets, make your own food for a while, and don\u2019t overstimulate me emotionally. It\u2019s a simple as that! Another great opportunity for Shaun to live out<br>\u201cin sickness and in health.\u201d<\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-yYuFhfmhz8U\/VpW5oX4TniI\/AAAAAAAAA6c\/WlR-2kBU8hw\/s1600\/IMG_0065.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-yYuFhfmhz8U\/VpW5oX4TniI\/AAAAAAAAA6c\/WlR-2kBU8hw\/s320\/IMG_0065.JPG\" width=\"320\"><\/a><\/div>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><\/div>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-K0Ayy7AIkUw\/VpXC4FwpqEI\/AAAAAAAAA64\/9Vwk3ljRDXE\/s1600\/IMG_0214.jpg\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-K0Ayy7AIkUw\/VpXC4FwpqEI\/AAAAAAAAA64\/9Vwk3ljRDXE\/s320\/IMG_0214.jpg\" width=\"240\"><\/a><\/div>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><\/div>\n<p>And I must say \u2026 he\u2019s nearly perfected that calling. I often wonder what is more taxing: being chronically ill or being a constant caregiver. I won\u2019t delve into that here, but know that we both covet your prayers. What is rough on me is rough on him, and it\u2019s not easy for me to <i>have<\/i> a thorn in the flesh or to <i>be<\/i> a thorn in his flesh. And while we hardly ever say anything to anyone about our ongoing struggles, if asked, we would both admit that it gets tiring, overwhelming, financially straining, and just plain yuck, yuck, yucky.<\/p>\n<p>I am tired from sitting up. The ticker calls me to knock it off for a while, and I think I\u2019ll heed the warning. Thank you\u00a0for listening. That is, if you didn\u2019t accidentally start napping on the second paragraph.<\/p>\n<p>I know I\u2019ve dripped with cynicism and a little negativity in this post. But don\u2019t worry. Be happy. I\u2019ll be dancing the evening away on a pier in no time.<\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-f5Z8EDmhcWQ\/VpW1a9GP7UI\/AAAAAAAAA5M\/YmaRDE4q5X4\/s1600\/IMG_0311.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-f5Z8EDmhcWQ\/VpW1a9GP7UI\/AAAAAAAAA5M\/YmaRDE4q5X4\/s320\/IMG_0311.JPG\" width=\"240\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/2.bp.blogspot.com\/-d993ioB2vbA\/VpW1aMJkqwI\/AAAAAAAAA5I\/dDckGSA2-KI\/s1600\/IMG_0312.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/2.bp.blogspot.com\/-d993ioB2vbA\/VpW1aMJkqwI\/AAAAAAAAA5I\/dDckGSA2-KI\/s320\/IMG_0312.JPG\" width=\"240\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/1.bp.blogspot.com\/-z2HtGd7ZoN8\/VpW1mzTBn5I\/AAAAAAAAA5g\/4vebOD6hSWc\/s1600\/IMG_0314.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/1.bp.blogspot.com\/-z2HtGd7ZoN8\/VpW1mzTBn5I\/AAAAAAAAA5g\/4vebOD6hSWc\/s320\/IMG_0314.JPG\" width=\"240\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-0Mdb2-oYiZw\/VpW1qQXFKpI\/AAAAAAAAA5o\/3OWgqG42AU4\/s1600\/IMG_0315.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-0Mdb2-oYiZw\/VpW1qQXFKpI\/AAAAAAAAA5o\/3OWgqG42AU4\/s320\/IMG_0315.JPG\" width=\"240\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/4.bp.blogspot.com\/-DHk2Ua04qLI\/VpW1qcWCmNI\/AAAAAAAAA5s\/yBptiw_2uEM\/s1600\/IMG_0316.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/4.bp.blogspot.com\/-DHk2Ua04qLI\/VpW1qcWCmNI\/AAAAAAAAA5s\/yBptiw_2uEM\/s320\/IMG_0316.JPG\" width=\"240\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/4.bp.blogspot.com\/-N1tooHmjCuI\/VpW11OY1VJI\/AAAAAAAAA54\/l7-szyDgRNM\/s1600\/IMG_0317.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/4.bp.blogspot.com\/-N1tooHmjCuI\/VpW11OY1VJI\/AAAAAAAAA54\/l7-szyDgRNM\/s320\/IMG_0317.JPG\" width=\"240\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-A5rR-AZRNzY\/VpW14fzn0RI\/AAAAAAAAA6A\/gDPdkcHdW-k\/s1600\/IMG_0318.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-A5rR-AZRNzY\/VpW14fzn0RI\/AAAAAAAAA6A\/gDPdkcHdW-k\/s320\/IMG_0318.JPG\" width=\"240\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-ateK1hA92nE\/VpW14lPuLKI\/AAAAAAAAA6E\/aLd2hLJslNE\/s1600\/IMG_0319.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-ateK1hA92nE\/VpW14lPuLKI\/AAAAAAAAA6E\/aLd2hLJslNE\/s320\/IMG_0319.JPG\" width=\"240\"><\/a><\/div>\n<p>Didn\u2019t know I could be such a free-spirited dork, did ya\u2019? Neither did the wide-eyed couple I found staring at me at the end of this photo shoot for Ashlee\u2019s sewing business. That\u2019s right, people. I was <i>hired<\/i> to be a dork.<\/p>\n<p>Having said that, we did get a few appropriate pics, and I\u2019ll leave you with those images, so as not to freak you out permanently or scare you away for good.<\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-LnA-c77k3KE\/VpXI9nsBvSI\/AAAAAAAAA7I\/eQxE4y7zqzw\/s1600\/IMG_0297.jpg\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/3.bp.blogspot.com\/-LnA-c77k3KE\/VpXI9nsBvSI\/AAAAAAAAA7I\/eQxE4y7zqzw\/s320\/IMG_0297.jpg\" width=\"240\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/2.bp.blogspot.com\/-0JPn-gsGVFY\/VpXJIDpSzLI\/AAAAAAAAA7Q\/ZFMvAkALWRU\/s1600\/IMG_0295.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"240\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/2.bp.blogspot.com\/-0JPn-gsGVFY\/VpXJIDpSzLI\/AAAAAAAAA7Q\/ZFMvAkALWRU\/s320\/IMG_0295.JPG\" width=\"320\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/4.bp.blogspot.com\/-NmnB1Sjp56E\/VpXJZUBWJhI\/AAAAAAAAA7Y\/v0jjKvjJfxE\/s1600\/IMG_0303.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/4.bp.blogspot.com\/-NmnB1Sjp56E\/VpXJZUBWJhI\/AAAAAAAAA7Y\/v0jjKvjJfxE\/s320\/IMG_0303.JPG\" width=\"320\"><\/a><\/div>\n<p><\/p>\n<div class=\"separator\" style=\"clear: both; text-align: center;\"><a href=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/1.bp.blogspot.com\/--8LRfDDNE4k\/VpXJg79F_rI\/AAAAAAAAA7g\/3hI7Ln2EJNA\/s1600\/IMG_0309.JPG\" imageanchor=\"1\" style=\"margin-left: 1em; margin-right: 1em;\" class=\" decorated-link\" target=\"_blank\"><img loading=\"lazy\" decoding=\"async\" border=\"0\" height=\"320\" src=\"https:\/\/wp-media.patheos.com\/blogs\/sites\/757\/1.bp.blogspot.com\/--8LRfDDNE4k\/VpXJg79F_rI\/AAAAAAAAA7g\/3hI7Ln2EJNA\/s320\/IMG_0309.JPG\" width=\"320\"><\/a><\/div>\n<p>P.S. Ashlee listed this patriotic shirt in her shop this last 4th of July. It is long past sold out, but if you like it, you can check out her shop<a href=\"http:\/\/www.moxxyshop.net\/\" class=\" decorated-link\" target=\"_blank\" rel=\"nofollow\"> here<\/a>. She\u2019s a super duper seamstress!<\/p>\n<p>Okay! I\u2019m really going now! This is totally enough weirdness for one day.<br><a href=\"http:\/\/www.pinterest.com\/pin\/create\/extension\/?url=https%3A%2F%2Fwww.blogger.com%2Fblogger.g%3FblogID%3D1475605767609349462%23editor%2Ftarget%3Dpost%3BpostID%3D819333119407318796%3BonPublishedMenu%3Dposts%3BonClosedMenu%3Dposts%3BpostNum%3D0%3Bsrc%3Dpostname&amp;media=https%3A%2F%2F3.bp.blogspot.com%2F-YW8UfV4KbJk%2FVpSVI2VqeSI%2FAAAAAAAAA4o%2F20YPG2RKLBg%2Fs320%2FIMG_2577.JPG&amp;xm=h&amp;xv=sa1.37.01&amp;xuid=FwNYRF1207RK&amp;description=\" style=\"background-color: transparent; background-image: url(data:image\/png; border: none; cursor: pointer; display: none; height: 20px; left: 263px; opacity: 0.85; position: absolute; top: 54px; width: 40px; z-index: 8675309;\" class=\" decorated-link\" target=\"_blank\" rel=\"nofollow\"><\/a><a href=\"http:\/\/www.pinterest.com\/pin\/create\/extension\/?url=https%3A%2F%2Fwww.blogger.com%2Fblogger.g%3FblogID%3D1475605767609349462%23editor%2Ftarget%3Dpost%3BpostID%3D819333119407318796%3BonPublishedMenu%3Dposts%3BonClosedMenu%3Dposts%3BpostNum%3D0%3Bsrc%3Dpostname&amp;media=https%3A%2F%2F3.bp.blogspot.com%2F-YW8UfV4KbJk%2FVpSVI2VqeSI%2FAAAAAAAAA4o%2F20YPG2RKLBg%2Fs320%2FIMG_2577.JPG&amp;xm=h&amp;xv=sa1.37.01&amp;xuid=FwNYRF1207RK&amp;description=\" style=\"background-color: transparent; background-image: url(data:image\/png; border: none; cursor: pointer; display: none; height: 20px; left: 263px; opacity: 0.85; position: absolute; top: 54px; width: 40px; z-index: 8675309;\" class=\" decorated-link\" target=\"_blank\" rel=\"nofollow\"><\/a><br><a href=\"\" style=\"background-color: transparent; background-image: url(data:image\/png; border: none; cursor: pointer; display: none; height: 20px; opacity: 0.85; position: absolute; width: 40px; z-index: 8675309;\" class=\" decorated-link\" target=\"_blank\"><\/a><a href=\"\" style=\"background-color: transparent; background-image: url(data:image\/png; border: none; cursor: pointer; display: none; height: 20px; opacity: 0.85; position: absolute; width: 40px; z-index: 8675309;\" class=\" decorated-link\" target=\"_blank\"><\/a><\/p>\n<\/body><\/html>\n","protected":false},"excerpt":{"rendered":"<p>Chronically ill people live life by constantly pushing themselves. If we don\u2019t feel like cooking, we whip out a recipe, dig in the pantry, and cook anyway. When we got up in the morning, if we feel like puking and feel a magnetic pull toward our beds, we battle through, get in the shower, and [&hellip;]<\/p>\n","protected":false},"author":421,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-83","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v21.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>An Experiential Log of Chronic Illness and Other Weirdness<\/title>\n<meta name=\"description\" content=\"Chronically ill people live life by constantly pushing themselves. 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