{"id":94,"date":"2014-04-23T13:24:00","date_gmt":"2014-04-23T13:24:00","guid":{"rendered":"http:\/\/admin.patheos.com\/blogs\/rebeccafrech\/2014\/04\/still-no-clue-but-improvement-anyway.html"},"modified":"2014-08-22T16:02:32","modified_gmt":"2014-08-22T21:02:32","slug":"still-no-clue-but-improvement-anyway","status":"publish","type":"post","link":"https:\/\/www.patheos.com\/blogs\/rebeccafrech\/2014\/04\/still-no-clue-but-improvement-anyway.html","title":{"rendered":"Still no clue, but improvement anyway"},"content":{"rendered":"\n<\/head>

We still don\u2019t know\u2026<\/p>\n

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Our chiropractor suggested that Ella might have pandas which is encapsulated strep that can cause nerve issues. (You get exposed to strep, and your immune system fights it off but not all the way. The weak strep finds an out of the way place in your body to burrow in and wait. It builds a shell around itself and sits dormant and multiplying inside the capsule. Just being there can cause muscle weakness. That\u2019s not the most common presentation, but it\u2019s common enough. Got it? Good.) She was<\/i>\u00a0exposed to strep about three weeks before the weakness began, so this seems like a possibility.<\/div>\n
<\/div>\n
The thing with pandas is that there is no test for it. The body doesn\u2019t register that it\u2019s fighting an infection because the strep is hiding and dormant, and it\u2019s inside its colorful candy shell so she wouldn\u2019t even test positive for strep. It\u2019s a differential diagnosis kind of thing, which a fancy way to say educated guess.\u00a0Pandas comes and goes in some people with the symptoms worsening if the immune system gets weak or there is a fresh strep exposure.<\/span><\/div>\n

<\/span><\/div>\n
All that to say that she seems almost back to her normal self and we don\u2019t know what happened. It was clear that her quad muscles were not firing at all, they would do a jello quiver when she tried to walk or stand and that was all. Today they are. Which leaves us scratching our heads and asking is it pandas? (The treatment for that is 2-12 months of high dose antibiotics, so we don\u2019t want to just try it out and see.) Is she better thanks to our amazing chiropractor? Or is it the extreme elimination diet that our favorite GP has her on? We don\u2019t know.\u00a0<\/span><\/div>\n

<\/span><\/div>\n
We do care though. Because if it\u2019s the diet then we need to continue it, clearly. If it\u2019s the chiropractic care, then he needs to be a regular visit in our busy schedule. If it\u2019s pandas then we need to get her started on antibiotics before it happens again, as there was already noticeable atrophy to her quad muscles especially on her left leg. If it\u2019s something else entirely, then how do we prevent it from happening again if we don\u2019t know what happened in the first place?<\/span><\/div>\n

<\/span><\/div>\n
And I know in my mama heart that this will happen again. It\u2019s just a matter of time. It\u2019s like the arthritis. It\u2019s just another factor in her life that we work with and around. I\u2019m so glad that it\u2019s better, I just wish it had a name.<\/span><\/div>\n<\/body><\/html>\n","protected":false},"excerpt":{"rendered":"

We still don\u2019t know\u2026 Our chiropractor suggested that Ella might have pandas which is encapsulated strep that can cause nerve issues. (You get exposed to strep, and your immune system fights it off but not all the way. The weak strep finds an out of the way place in your body to burrow in and […]<\/p>\n","protected":false},"author":1979,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-94","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\nStill no clue, but improvement anyway<\/title>\n<meta name=\"description\" content=\"We still don't know...Our chiropractor suggested that Ella might have pandas which is encapsulated strep that can cause nerve issues. 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