January 22, 2017

Hey there! How have you been? Wow, man time flies! We have known each other for 4 years, and I just want to say something. We are over you. See, I have been fighting with you for a while. Each and every day, I have tried ways to make you not be there. We have tried chewy sticks, smelling food, eliminating food, adding food, reducing textures, pureeing, mashing, and even liquifying the food. It’s come to my attention that it isn’t working… Read more

January 20, 2017

Today seems anything but hopeful. It is the day the 45th President will be sworn in to the United States. For many in the disabilities and medically fragile community, we are scared. We are scared that the services we have fought so hard for will be stripped from our children. We are worried that the tolerance that was created under President Obama will be obliterated and harmful words we worked hard to destroy will return. As a parent, I worry… Read more

January 19, 2017

I’m in a season of my life, where things are really exhausting and I don’t get a break. It’s a season that I don’t really know if is an actual season or a lifetime. My son is medically fragile, and he has severe sensory processing disorder. Our lives are very busy, very exhausting and very chaotic. There are a lot of joy, giggles and progress made each and every day. However, there is also a lot of exhaustion and feelings of… Read more

January 18, 2017

For 4 years, I have been a part of a community I never wanted to be in. I never wanted to be a parent to a child that was medically fragile or had special needs. I realize that in and of itself sounds terrible but it’s the truth. I, like most parents, prayed and hoped for a healthy baby. It was all I cared about during my pregnancy. Then I gave birth to a precious little boy that was incredibly… Read more

January 16, 2017

Dear Parents, It is the dreaded time of season where snot flows from our children’s noses, cheeks are red and flush, coughs are at times dry and other times moist and productive, and fevers are spiking left and right. Flu and cold season happens every single year. Each year it is a struggle for all of us to keep our children well, but I need to make a plea to you this year. If you have an otherwise healthy child that… Read more

January 14, 2017

We wrote this a while back – and I think it needs another view! Please read and enjoy! Read more

January 13, 2017

Screen time is the nemesis many therapists, teachers, doctors, and friends tell you is the worst possible thing you can give your child. When we’re out, I see how people look at me and judge my parenting because my child is watching a video while we eat. I see how they shake their heads and whisper about how I must be a lazy parent not to just engage with my child while we eat. I see it all, and I’m… Read more

January 12, 2017

Being a friend to a parent of a child with special needs is not an easy task. The lives of a parent of a child with special needs are fairly chaotic, unpredictable, slightly self serving, and messy. I am a parent to a sweet little boy, and he is the biggest blessing we have ever experienced. He has several diseases that are life threatening, and he is developmentally delayed. Our lives are pretty busy most days, and he requires supervision… Read more

January 10, 2017

Dear Senators of the GOP, Hello. My name is Katie Paulson. I live in Minnesota, and I am the caregiver to my son, Von, who is disabled. I want you to know that the talk of repealing the Affordable Care Act, because that is what it is actually called, is petrifying to me. When the law was passed several years ago, it opened up windows to our life that made us no longer have to live in fear. You see… Read more

January 9, 2017

You can’t handle this. This is another disease that could end his life. This can’t be happening. What if he dies in his sleep? What if he doesn’t wake up? What if he falls off his bed, I don’t hear it and he goes in to shock? What if I don’t know how to help him? What if I’m not capable? No, I’m not capable. I can’t do this. This is too hard. I’m not strong enough for this. Why… Read more

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