New Curiouser And Curiouser On Burzynski – And Storify Of #scioADEL #scio13 Tweets!

I feel terrible – I missed noticing that this article is out! Never mind, you can head here straight away and read it for yourself:
The Birthday Of Burzynski – Skeptics Fundraise For St. Jude Children’s Research Hospital

On January 23, the Skeptics for the Protection of Cancer Patients delivered a birthday present to Houston cancer quack Dr. Stanislaw Burzynski and the Burzynski Clinic: a donation of around $13,000 raised in his name to St. Jude Children’s Research Hospital – with a request that the clinic match those funds for the hospital.

While the effort was initially to raise $30,000 (which happens to be as much money as it takes to enter a clinical trial of antineoplaston treatment at the Burzynski Clinic) every dollar helps and the site will continue to accept donations. I spoke to Bob Blaskiewicz and David Gorski about the fundraiser, and why the Burzynski clinic is such a concern.

I couldn’t help asking the OBVIOUS question:

Kylie: Why is he getting away with it?

David: Well, Kylie, that’s where I was about to jump in, because the one thing that he does that burns me, as a cancer doctor and a researcher, is that he charges patients to be on his clinical trials. There are rare exceptions, and he’s not one of them, but it’s generally considered highly unethical to charge patients to be part of a clinical trial. Pharmaceutical companies don’t even do that. If they did, people would be totally up in arms, but he charges patients to be in his clinical trials.

Now he’s had since the mid‑90s about sixty some odd clinical trials, most of them Phase II, which is one of the more preliminary ones. He never really publishes in any decent journals the results of these clinical trials, but he apparently kept enrolling patients on them. It just drives me crazy, and I can’t figure out how he does it, or how the FDA keeps letting him do it, but he does.

Bob: This will be something that the newly‑formed group, the Skeptics for the Protection of Cancer Patients, is going to investigate.

You can follow the interviewees Dr. Robert Blaskiewicz and Dr. David Gorski on Twitter at @rjblaskiewicz and @gorskon.

While I’m writing about Twitter – in other news, you may have a Twitter feed that’s absolutely filled with the hashtag #scio13. Mine certainly is and it represents the Tweets coming from the Raleigh, South Carolina un-conference ScienceOnline2013, which is being held from Jan 30th – Feb 2nd.

What you may not have realised is that there was a #scioADEL Watch Party being held over Saturday and Sunday, and while I’m sure there’s someone collecting all the #scio13 Tweets, I thought I could gather together the closer-to-home #scioADEL Tweets and check out their views and summaries.

I’m looking forward to the 2013 ScienceRewired conference that’ll be held later this year, and the use of social media networking service like Storify helps keep track of some of the topics du jour that are going on at similar conferences like #scio13.

So – here’s Saturday’s #scioADEL’s Tweets and I hope to see some of the participants at ScienceRewired!

[View the story ” #scioADEL Tweets” on Storify]

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