The reality is it isn’t easy. By the time you’re actually approved for disability you’re usually destitute. There’s no other way to put it. Even if you get a large sum of back pay, you’ve exhausted your savings and built up so many medical bills and other expenses that by the time you see your check, it’s all but spent. Don’t get me wrong, I’m extremely grateful to be able to sustain myself with what I receive from social security. And to know that I can also write on the side and teach students in my spare time to keep myself busy when I’m feeling up to it makes me happy. But none of these things create a windfall for me. I’m scraping by every month and barely surviving. If it weren’t for my mosque supporting me with zakat (charity), and help from my ex-husband occasionally, I wouldn’t make it. The thing is I used to have money. When I was married, things were fine. Better than fine, actually. But getting sick ruined my finances. And I haven’t been able to get myself together ever since. It’s like I’m treading water every month. I’ve often mentioned my issues with eating and my disordered patterns, but frankly, sometimes I just don’t have the money for groceries. So I don’t eat, simple as that. Everybody I know on disability is in a similar position. No matter how much they receive. They all tell me that their initial savings went quickly and they have trouble managing on what they receive each month. It’s really challenging. But nevertheless, I am still grateful for the fact that I have health insurance and some semblance of a paycheck. Things will get better. They always do. And my writing has already been helping me so much lately. So I can’t complain. I just wish more people were understanding of my situation. It’s hard struggling in silence. I feel like I’m alone in what I’m going through, until I remember those dealing with the same situation. That helps me not dwell on my problems and feel so sad. I’m eagerly awaiting the day when I don’t have to decide between paying a bill and buying a meal for the day. Then I’ll be able to focus solely on my emotional and mental well-being, and spending more time with my kids. It’s coming, I can feel it… 🙂
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