Hi there, good peoples. I say you’re good because I am buttering you up to be extra generous. As most of you know, I have Primary Progressive Multiple Sclerosis and there are no drug treatments for me on the NHS in the UK. As a result, I only have one option and that is to go for the pretty hardcore HSCT treatment. Therefore, since I will almost certainly need to go to Russia to get this, I am fundraising to cover the pretty significant costs (£40,000+, but if Sterling crashes…). If you want to take time to watch the video and donate, I will be truly grateful. Legends, one and all. Sorry to bother you, it really is uncomfortable for me to do so. Loads more details below from the GoFundMe link.
Here is the full GoFundMe description:
I am presently a teacher, author, blogger and public speaker, and more importantly a father to twin boys and partner to Helen. I was recently diagnosed with Primary Progressive Multiple Sclerosis for which there is presently no drug treatment in the UK. The only option for me is to undergo HSCT: “Haematopoietic stem cell transplantation (HSCT) is an intense chemotherapy treatment for MS. It aims to stop the damage MS causes by wiping out and then regrowing your immune system, using your stem cells.”
Basically, I want to crtl, alt +del my immune system.
As fun as this sounds, it is not without its massive risks. But you gotta do what you gotta do. Something’s got to keep allowing me to cultivate these massive mutton chops.
Successful treatment means that the MS symptoms will stop progressing, which is why it is important to get it done as soon as possible. This will allow me to continue working and continue contributing to society in the same way.
There are several options for doing this, and the most likely is to do it privately in, most probably, Moscow, at some considerable expense. This fundraising is to contribute to the treatment and recovery expenses. It is, however, available on the NHS at one hospital in London, but there are many hoops to jump through and it is unlikely I will qualify. Therefore, I am hedging my bets as this treatment needs to be done as soon as possible.
Look, I’ve done a fun disembodied head video to accompany this:
The fundraising will fund treatment that will require inpatient chemotherapy and isolation in Moscow for 30 days, with all the drugs and whatnot that goes with this. If the pound doesn’t crash post-Brexit (ha!), this treatment should cost around £40,000, but there are many more costs on top of this (travel, visas, etc.).
I am looking to create a raffle scheme, giving donors a chance of winning some cash. You can have a choice of buying these, or donating directly. Details to follow.
While I see if my low-probability appeal to the NHS goes through, I will be fundraising for this treatment in Russia as time is of the essence here. In the unlikely event of the NHS coming through and me taking on the treatment with them and not needing to go to Russia (in reality, a tiny chance), I will be using the fundraising to adapt my life and house to the demands of MS, including localised treatment (oxygen machine etc). Any excess fundraising will be donated to AIMS. I will not use the fundraising for anything non-MS related. If, in the event of NHS treatment, you want more info or any donations refunded if I do not go to Russia, then let me know in writing.
AIMS are a new MS charity with a focus on HSCT – find out more here: https://www.facebook.com/pg/aimscharity.org/about/?ref=page_internal
They look to be an awesome charity, helping people in situations similar to my own.
Life throws up some challenges. Sometimes you gotta meet them head-on.
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