This was what I posted to my GoFundMe page the other night:
I am now back in the UK. Evidence of my celebration includes such fun, Russian mirror-gazing as this:
As most of you know, I have PPMS (Primary Progressive Multiple Sclerosis), had stem cell treatment (HSCT) six months ago in Russia (Moscow), and have returned for my follow-up MRI scan. Which I had today, and met with the doctor on the same day to discuss the results.
So the news is good – Dr F. gave my brain a clean bill of health – no new lesions and no increase in size of lesions. All inactive. He seems to think there is no reason it shouldn’t stay that way for the rest of my life. I’ll take that for now! (I’m not cured, but progression has so far stopped.)
Just need to stay healthy in body and in mind.
Thanks for all of your well-wishing, and a massive debt of gratitude to those who kindly donated to my appeal! I literally owe my health to you. I am writing from my hotel in Moscow thinking that I am so lucky to have had the help from y’all that I did. I obviously hope that this brain health maintains and that I can do all the things – well, most of them – that I had wanted to do with my life before diagnosis.
I’m going to have a celebratory beer (coz that keeps me healthy in mind, I’m sure). I think you should all have a celebratory drink (or cupcake) too for being generally awesome. Well, very specifically awesome. Basically, you’re just awesome.
Big love and eternal thanks. Well, hopefully 40-odd years of thanks that if I keep banging on will feel eternal.
In conclusion: some very welcome brain stasis. I may not be as sharp as I used to be, but I ain’t about to get any worse.