George Estreich reflects upon two different Today Show stories: "In one, we’re supposed to feel good about the presence of Down syndrome; in another, about its absence. For me, the separation, the fact of two stories rather than one, is the heart of the problem." Read more
"I have started to believe that falling in love again and again takes a lot of very hard work..." Read more
What I wish I could have said to Penny about how I felt after I learned she had Down syndrome... Read more
One mother's experience of prenatal testing, and how she supports women now Read more
A story of inclusion and friendship, and a website for parents of kids with special needs. Read more
One mother's story of a prenatal diagnosis of Down syndrome that led her to choose termination. Read more
I released an ebook (What Every Woman Needs to Know About Prenatal Testing) two weeks ago about prenatal testing. It covers my own experience of prenatal testing as well as providing information for women who are trying to figure out their own approach to testing. It’s a combination of story, facts, and reflections that I hope will serve as a helpful resource for all pregnant women. As I wrote, I had two realizations. One, I wanted to present, without judgment,... Read more
When a patient says she doesn't want to terminate her pregnancy, doctors need to stop offering termination. Nancy Iannone shares her story and advice for medical professionals. Read more
Every pregnant woman will be offered prenatal testing for some genetic conditions. What should you do? Read more
Two articles worth reading. One, a Wired Magazine take on prenatal testing: This Simple Blood Test Reveals Birth Defects–And the Future of Pregnancy, and two, an Atlantic essay: There’s More to Life than Being Happy. The Wired article describes a woman’s decision to end her pregnancy after she discovered her baby had Down syndrome: She says she needed to talk through the decision to end the pregnancy, but her husband never had any doubt. “His coping mechanism was just to... Read more
Thin Places-Faith, Family and Disability
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