2012-07-03T10:49:50-04:00

Last updated on: July 3, 2012 at 10:49 am   By

Jill’s House steps in to provide a weekly or monthly overnight break for parents, celebrating the children while renewing their families. Read more

2012-07-02T12:35:14-04:00

Last updated on: July 2, 2012 at 12:35 pm   By

I mentioned a few weeks ago (What Matters to you During this Election?) that I would be blogging about issues related to the upcoming election for Parents.com. My first post is up, and it is a response to the Supreme Court’s recent decision to uphold most of the Affordable Care Act, aka Obamacare. I represent the “moderate” political voice. Last week, parents.com posted a “liberal” response, Obamacare: We Should Rejoice by Sharon Lerner, in which she wrote: Although the Affordable... Read more

2012-07-02T12:48:14-04:00

Last updated on: July 2, 2012 at 12:48 pm   By

I continue to believe that there is something about Down syndrome that is good, that prompts love and joy and laughter and brings people together. Read more

2012-06-28T09:38:08-04:00

Last updated on: June 28, 2012 at 9:38 am   By

I hope that having Penny in my life has taught me first and foremost to see other people as gifts instead of products Read more

2012-06-27T10:56:09-04:00

Last updated on: June 27, 2012 at 10:56 am   By

I don’t want to subject my kids to needless danger but I do want to teach them and myself, that I can’t control every aspect of their lives. Read more

2012-06-25T14:29:13-04:00

Last updated on: June 25, 2012 at 2:29 pm   By

Jill’s House is the only facility in the United States that provides these amazing families of children with severe disabilities with a “rhythm of respite,” emphasizing long, overnight stays. Read more

2012-06-25T10:12:23-04:00

Last updated on: June 25, 2012 at 10:12 am   By

Every perfectionist knows that perfection (by any measure) isn’t possible, but the pretense of it is. A child with Down syndrome can’t pretend to be perfect. Penny’s presence in my life knocked the perfectionism out of me, which was incredibly jarring at first, but also incredibly freeing over time. Read more

2012-06-21T21:37:46-04:00

Last updated on: June 21, 2012 at 9:37 pm   By

Is your identity comprised of what you do? Or who you love? Read more

2012-06-19T08:15:59-04:00

Last updated on: June 19, 2012 at 8:15 am   By

My goal is not to dictate what they believe or to think that if we do it right they will conform to our desires. I just want to lay out a net for them, in hopes that later in life, when they discover suffering or betrayal or heartache, they will have a safe place to fall. Read more

2012-06-18T10:15:52-04:00

Last updated on: June 18, 2012 at 10:15 am   By

Especially if you are a parent, what issues matter most to you as the election approaches? Read more

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