Thin Places-Faith, Family and Disability
The discipline of place, the books I'm loving, and a smattering of articles on faith, family, and disability. Read more
The discipline of place, the books I'm loving, and a smattering of articles on faith, family, and disability. Read more
"What mega-vitamins are you taking to overcome your deficiencies?" Lawyer, bioethicist, and blogger Mark Leach considers what the golden rule has to do with treating Down syndrome. Read more
Mother and blogger Leticia Velasquez considers whether she would use gene therapy to mitigate the effects of Down syndrome for her daughter Christina: "How does her future look right now? Difficult, unless there is a medical breakthrough." Read more
Blogger Lisa Morguess considers whether she would chose therapeutic interventions to mitigate the effects of Down syndrome for her son Finn. "If what we are talking about it quality of life, then we have to ask ourselves: do smart and able equal happy and successful? Is an easier life a better life? Is a life with fewer struggles a better life?" Read more
As a part of my ongoing series about whether or not “curing” Down syndrome is a desirable goal, I’ve asked three parents of children with Down syndrome to offer their perspectives. Last week, we heard from Rachel Adams (The Damaging Language of “Cure” and Down Syndrome) about the social and linguistic problems with this idea. We also heard from Fayal Guedj, one of the doctors who has been researching this topic (Down syndrome: Toward a new research era and effective... Read more
It is my privilege as a mother to be the one who knows why and how my kids are exceptional, even if no one else ever sees it. Read more
Bossypants, Power, Ruthie Leming, and a host of articles to read, in all your free time... Read more
Dr. Faycal Guedj summarizes research related to treating patients with Down syndrome and answers my questions about cognition, heart defects, and his sister Imene. Read more
Once again we’re hearing news of a breakthrough in research on drug therapies to enhance the cognitive processing of people with Down syndrome. And once again, the discussions seem to fixate on the controversial notion of a “cure.” Why do we keep having the same conversation? A guest post by Columbia Univsersity Professor and author of Raising Henry, Rachel Adams. Read more
In honor of Down Syndrome Awareness Month, a series of posts to address the problems and potentials of research to mitigate the effects of Down syndrome. Read more
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