November 13, 2018

Devoted… an important word, one which we often hear, and a word that we all probably think we fully understand; but do we? How truly deep a word is it? And what might it mean in the context of caring for a child or young person with special needs; whether as parent, carer, other family member, children’s/youth worker, etc? Dictionaries gives two very helpful definitions of the word ‘Devoted’: 1. Very loving or loyal; “He is a very devoted parent”(devoted to… Read more

November 8, 2018

Staying connected to the real world can be a challenge for caregivers, whether the loved one being cared for is a new baby, a child with special needs, a disabled spouse, or an elderly parent. I’ve been  primary caregiver in all those relationships and know the effort required to avoid becoming isolated. Along the way, other caregivers have shared their top strategies for staying connected to the real world. Five of those strategies can be found in a previous post,… Read more

November 6, 2018

Count it all joy. That’s what it says in James 1:2. But what about that part of the Bible where it tells us we will have seasons for everything; weeping and laughing, mourning and dancing? (Ecclesiastes 3) I am for sure in that weeping and mourning part. Sounds come out of the pain I did not know existed within my voice. Joy and pain. It can be really difficult to rectify counting this grief as joy. Yet, I am to count… Read more

November 1, 2018

It was 2012, South Sudan (a country in Africa) was only a year old at that point. I was in a refugee camp on the border of South Sudan and Sudan. Refuges were flooding into the camp daily by the thousands, as tanks were attacking only 8 km away. I met Beauty as I was helping lead a trauma healing program for the refugees. Beauty came to our workshop so she could be trained to help her family and tribe… Read more

October 30, 2018

One thing is true about parenting. We don’t know more than we know. Think about it. Johnny is having a hard time because he lost an argument with his brother. Do you … check if the rules of good conversation were adhered to, and punish whoever wasn’t a good sport? add more coping mechanisms to his in home therapy program tell Johnny that’s how life is? listen to Johnny and encourage him to tell his brother how he feels about… Read more

October 24, 2018

We recently got this comment on our Facebook page: This is a VERY optimistic and maybe unrealistic point of view. I’m sick and tired and just want a little dose of normal. Everyone puts a good foot forward when in a group, but in reality, we aren’t really very happy people. Over it. I wondered how true that was for special-needs parents. Are we faking it? Are we happy? Should we be? My older sister has Down syndrome, so I’ve… Read more

October 18, 2018

Ryan was meeting a girl at a coffee shop. They had been communicating online and this was the first time they were to meet in person. We arrived at the coffee shop a few minutes early. Ryan wanted to get inside to get his chair settled under the table before she arrived. I followed him as he rolled through the door and up to the table. Once settled, he looked up at me and said, “You can go now mom.”… Read more

October 16, 2018

I know this sounds shallow. I really can’t believe that I am admitting this to you but I am battling some grief over finding out our last family member who has had no prior diagnoses has been diagnosed with a rare disorder. I don’t know why this matters so much to me or why I’m taking it so hard. Perhaps my perspective is skewed. Maybe I have put hope in this one person who didn’t have the struggles that the… Read more

October 11, 2018

The words that Christian parents dread hearing just passed by my teenage daughter’s lips. “I don’t  know if I even believe in God … and I’m not going to church,” she said, with a frightening (to me) confidence in her voice. My heart sunk. I feared this could happen because Katie faced emotionally painful challenges during childhood that were never fully resolved. God had not answered her prayers in the way she hoped (curing her high-functioning autism—or at least stopping… Read more

October 9, 2018

“My wife thinks our son has autism.” It was morning and I was sitting in the office of a colleague of mine. He had just asked how I was doing and that was my reply. There was a disassociation there, as I didn’t want to believe it yet. It took me longer to accept the diagnosis than what it did for Sarah. For Sarah, the diagnosis was a relief because it gave direction and helped her better understand what was… Read more

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