Ali Family Autism Truths #10 – The Unbearable Business of Trust

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April 10, 2015 - Autism Awareness Month, Autism Truths #10We trust.We trust the bus driver to transport him safely. The bus aides to make sure he is comfortable, not upset and not injuring himself. And after nine years of trying and trusting, we say enough. And we drive him ourselves.We trust.We trust the teachers and therapists in his school to teach him, make sure he is safe, look out for his wellbeing, see that his clothes are worn properly after he visits the bathroom and … [Read more...]

Ali Family Autism Truths #9 – The Best Muslim, the Innocence of Humanity

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April 9, 2015, Autism Awareness Month, Autism Truths #9I’ve noticed a trend during the past few years of families performing Umrah during their kids’ spring breaks. I think it’s great – a wonderful way for families to come together for a moving, spiritual pilgrimage and introduce their children to some of what is most special, most beauteous, most humbling and true about Islam.Year after year, right before spring break rolls around, I get at least five or six messages/emails, or read on s … [Read more...]

Ali Family Autism Truths #8 – To be Known, Understood

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April 8, 2015 – Autism Awareness Month, Ali Family Autism Truths #8 As I write this, you lie next to me, the sleepiness finally hitting you with gentle waves, silencing the sounds you make and bringing stillness to your ever-moving limbs. You watch me type, seeing the words flow on this screen, and I wonder if you're reading what I'm writing. Maybe you can read. Maybe. There is so much I still don't know about you, about all you may be able to do. If you are reading this, I wonder -- are you ok … [Read more...]

Ali Family Autism Truths #7 – The Places We Go

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April 7, 2015 - Autism Awareness Month, Ali Family Autism Truths #7We're in that stage now where D doesn't want to go much of anywhere. If he can stay home, then that's just fine by him. There was a long period of time, until maybe about four of five years ago, that we went nearly everywhere as a family. If for whatever reason where we were going just wasn't going to work for D, his Baba or I would stay back with him. Hiring babysitters and caregivers just to hang out with him so the rest of … [Read more...]

Ali Family Autism Truths #6 – Finding Our Okay

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April 6, 2015 – Autism Awareness Month, Ali Family Autism Truths #6 Our milestones and firsts have never been other family's milestones or firsts. When it comes to D, we follow his timeline on progress and no other. We face our firsts, sometimes with sadness and fear, sometimes with great joy -- always truthfully. I wrote this today on Facebook:More milestones in Autism land for the Ali Family. Every time things feel complacent and just our "norm," I'm reminded of all the cheerful (and d … [Read more...]

Ali Family Autism Truths #5 – How Inclusive was Your Easter or Passover Service?

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April 5, 2015 – Autism Awareness Month, Ali Family Autism Truths #5 In private conversations with friends today, friends celebrating Easter or having celebrated Passover, we shared some of our frustrations in trying to participate in religious ceremonies and attend services at Houses of Worship with our autistic children. While many churches, synagogues (and even some mosques) and other Houses of Worship have made great strides in tailoring services for all in their congregation, or at the very … [Read more...]

Ali Family Autism Truths #4 – Two Different Worlds, One Home

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April 4, 2015 - Autism Awareness Month, Ali Family Autism Truths #4There are days when it feels like two completely different world exist under my roof.There is D, spending the majority of this first day of his spring break spinning his beads in our bedroom, or in the basement bedroom where his grandparents sleep. The connection is distant today between him and the rest of us, as we enter in that final furious stage of shopping/packing/cooking/readying for a spring break trip and a big … [Read more...]


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