The New York Times (!) has a sympathetic and moving look at his daughter Bellaโs illness, and how it has shaped Santorumโs life and affected his campaign:
Isabella Santorum, the fragile 3-year-old daughter of Rick Santorum, has pulled through again.
She came down with pneumonia over the weekend, a frightening turn of events given that Bella, as she is known, received a diagnosis of a fatal chromosomal disorder called Trisomy 18 shortly after her birth and has lived longer than most babies born with the illness. About two weeks after her birth, doctors sent her home from the hospital on hospice care, which is usually reserved for the end of life, not the beginning, saying her condition was โincompatible with life.โ
Bellaโs condition is a constant challenge for the entire family, especially for Mr. Santorumโs wife, Karen, and their six other children.
But her health issues present another kind of challenge to Mr. Santorum. As a presidential candidate, he is constantly traveling and must devote considerable time and energy to his campaign. Yet he is still a father. And ultimately, voters may judge him on both of his roles โ as a candidate and a parent.
โI think his priorities are right, if you have a sick child โ whether youโre running for dog catcher or president of the United States โ your family comes first,โ said Gail Hebert, president of the St. Petersburg Republican Club in Floridaโฆ
โฆBella has emerged as the emotional centerpiece of Mr. Santorumโs campaign. His references to her are easily the most riveting moments of his speeches, usually leaving audiences silent and weepy. He has even built entire speeches around Bellaโs story, telling certain audiences, especially those in churches, every painful detail of her birth and how the family has embraced her as a blessing.
On the campaign trail, the Santorums share the lessons they have drawn from Bella. Mr. Santorum told a church gathering in Charleston, S.C., that Bella can never โdoโ anything in her life in the traditional sense, except love him.
โShe is a font of love,โ he said. โAnd she made me understand that thatโs how the Father looks at me. Iโm disabled and unable to โdoโ anything for him โ except love him. And he loves me unconditionally.โ
Many in the congregation wiped away tears.
Mr. Santorum concluded that he had decided to run for president even with a child who needed so much โbecause we wanted to make sure we had a health care system and we had a society that respected the dignity of every human life. And what better way to go out and defend that than by talking about the dignity of every human life in our own lives?โ