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August 2014
August 26, 2014
Because They’ll Carry You
We parked her wheelchair on the boardwalk at the edge of the dunes, and I...
August 22, 2014
My Homeschooler Goes to High School
My eldest son went to high school yesterday. His first day of 9th grade was...
August 20, 2014
Bribery Worthy Banana Bread
One of the first things I realized, as the mother of a chronically ill child,...
August 19, 2014
Weeding It Out
For the past couple of months, I've complained to my family that we're drowning in...
August 18, 2014
Moved
Blogging has been my sanity, my salvation, and my friends for a good many years....
August 16, 2014
Assumed
(I've known for a few weeks that my blog was changing addresses and moving to...
August 12, 2014
What I Spent It On
Last week, I was very fortunate to have two friends give me some money to...
August 08, 2014
Fun and Frivolous
If someone gave you $50 with a note that said "Here's a little gift for...
August 07, 2014
At Least She Didn’t Say Conversion
It wasn't quite what we had hoped that it would be....Dr I was supposed to...
August 06, 2014
Dreading The Morning
Here it is nearly 11:00 and I'm still not sleeping. I have to be up...
August 04, 2014
It’s About Time!
If you're anything like me, you're tired of the portrayal of fathers as stupid, inept,...
August 02, 2014
From the Rheumatologist’s Office
We saw Ella's rheumatologist, Dr G, last Tuesday. I've struggled since then with what to...
July 2014
July 29, 2014
On The Funny Bone
* I'll be writing about Ella's doctor appointment from last week tomorrow. It's a lot...
July 26, 2014
Hey Cathmom5!
You won Luca's book!!!!I'm sorry it took so long to tell you, but Blogger decided...
July 22, 2014
Flawless
All morning, I've been thinking back to the girl I was in junior high and...
July 21, 2014
You Made It Possible
A few weeks back, we picked up Ella's new-to-her wheelchair. It was functional and comfortable,...
July 16, 2014
You Should Totally Buy Luca’s Book (Giveaway!!!!)
Last year, I undertook an epic journey through Hell and Buffalo, Texas to see my...
July 12, 2014
This Is What Proof Looks Like
I didn't believe them when they said that her nerves were normal. Call it instinct...
July 08, 2014
The Strangeness of the Internet – Turning on the Lights
The internet is a very weird place...thing...entity. I don't really know what it actually is,...
July 03, 2014
Mystery Illness – We Have to Start at The Beginning
***Before you start reading, please know that Ella has been tested three times for Lyme...
June 2014
June 30, 2014
Panic and Frustration
I've never had panic attacks before. I suppose it's because I've never really had a...
June 27, 2014
And Then She Was Ten
Ella turned ten on Saturday with a quiet birthday celebration with her best friend. The...
June 20, 2014
Don’t Bring a Knife to a Gun Fight
There's been quite the kerfuffle in the Catholic corner of the internet over whether or...
June 19, 2014
Go Ask Your Brother
We are really trying pretty hard to wrap up the school year around here. While...
June 16, 2014
Completely and Totally Blessed
Last week, I finally made peace with the idea that Ella may be in a...
June 15, 2014
Happy Annifathersversary Day
I had this long list in my head of the things I wanted to write...
June 13, 2014
What It’s Like – by Ella
I asked Ella to write what it's like to lose the ability to walk when...
June 13, 2014
You Should Definitely Be Shopping Around
LI don't know why it doesn't occur to me to think about shopping around for...
June 09, 2014
….and it’s Monday…
I made an early morning grocery store run with Wendy this morning. She's a joy...
June 07, 2014
An update from home
We're home again this afternoon. We have orders for a battery of tests, but none...
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