What I Wish I Knew

 

When I found out Mom was pregnant with a baby who would have Down syndrome, I confess.  I was scared.  I didn’t know what it would mean for his life or for ours.  Well, recently World Down Syndrome Day was celebrated, and I saw this sweet post by  Amy Julia Becker, who lists five things she wishes she had known when she learned that her daughter was born with Down syndrome.  Here are two that jumped out at me:

You think Down syndrome means tragedy, and people will compare your experience to that of losing a child in a car accident or to cancer or some other horrible fate. And though you will experience a sense of loss, you will realize eventually that you have lost a hypothetical child, and that the child right in front of you, this child, with her sparkling eyes and crooked teeth and warm soft hand, this child is a blessing. In time, because of the privilege of knowing and loving her, you will realize that your grief has turned to gratitude and that your worry has turned to wonder.

and

You think Down syndrome means isolation, but you will discover that it brings a world of connections. It’s not only that you will now feel a bond with other parents of children with Down syndrome throughout the country and around the globe. It’s that having a child who looks and acts somewhat different from what you expected, a child who you see as beautiful and funny and kind and smart and brave, will help you to recognize that same beauty in everyone else. You will think your world has become smaller, when it has only begun to grow.

Read the other three here.

I can say Trig is one of the best things that has ever happened to our family!  I love him so much!! He shows life in a different light, he’s just a love bug. Now that he’s been in preschool, I can tell he’s learning so much.  I love seeing him grow up. It’s like everything he does is so big now! We’re so proud of him for everything he accomplishes. He just lights up our life. I love you, brother!

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  • http://twitter.com/imjustleanne leanne

    God bless you and your entire family! :)

  • Tootie

    Your whole family is a testimony for all as to how to love and cherish a child with this disease. God bless you.

    Bristol, we were so encouraged that Christians in Paris marched for traditional marriage. We were beginning to think no one was willing to stand up for Jesus and His plan for man. Think of it, no one is saved until he first realizes he is in need of salvation. A homosexual must come to that conclusion so that he can be delivered and lead a normal, happy life in Jesus. Oh, and may I add, he will not go to hell so long as he continues with the Lord.

    • TrueBlue

      “Oh, and may I add, he will not go to hell so long as he continues with the Lord.”

      Well, damn, Tootie, with you here on Earth dispensing your infinite wisdom, why wait for the second coming?

  • Tootie

    Trig with his glasses is adorable!

    Britol, we were so encouraged when we saw on the internet many Christians marking peacfully for tradional marriage. Oh, many more need to realize that patting sin on the head and, in so doing, condoning it helps no one.

    • daryl

      Amen

  • Thotocv

    Tootie your religious beliefs are yours. They are not everyone’s. and thus, they have no place in government affairs.

  • Thotocv

    What a minute! Something is amiss:

    “When I found out Mom was pregnant with a baby who would have Down syndrome, I confess. I was scared”

    Bristol supposedly knew Trig had DS before he was born? That’s not the story Sarah tells. She claims she kept it from everyone until he was born, including her children. She lays out a big story about their reaction in the hospital after he was born. Don’t believe me? It’s in her book. Hmmmm do what’s going in here? Did Sarah lie? Did Mrs Francais not ask Bristol to review this before she posted it? Interesting. It must be hard living a facade.

  • Thotocv

    What a minute! Something is amiss:

    “When I found out Mom was pregnant with a baby who would have Down syndrome, I confess. I was scared”

    Bristol supposedly knew Trig had DS before he was born? That’s not the story Sarah tells. She claims she kept it from everyone until he was born, including her children. She lays out a big story about their reaction in the hospital after he was born. Don’t believe me? It’s in her book. Hmmmm do what’s going in here? Did Sarah lie? Did Bristol not review this after it was written fir get? Interesting. It must be hard living a facade.

  • Thomas

    Thotocv you a serious issue that needs to be addresed, you really should take a long look at youself!

  • Thotocv

    Thomas, what issue? The question is, hiw could Bristol be scared that her brother would be born with DS when she apparently didn’t know until after he was born. Hmmmm?

  • melory

    Hey Thotocv, ole buddy, ole pal, just because you are a liar doesn’t mean everybody is a liar.

    You will never catch Bristol’s mom lying – she has been scrutinized more than any politician ever in the history of America and she is still as clean as the wind-driven snow. All you liberals have are lies – so go fact-check the liberals who gave you your info – you did not read her book.

    The media went through thousands of emails of Bristol’s mom and here is what LA Times reported:

    “The media have yet to find a smoking gun or email cursor amid some 24,000 pages yet.
    The Briton writes that far from being embarrassed by any findings in the trove of her electronic missives, Palin “is likely to emerge from the scrutiny…with her reputation considerably enhanced.”

    http://latimesblogs.latimes.com/washington/2011/06/sarah-palin-god-letter-trig-down-syndrome.html

    Sarah Palin email frenzy backfires on her media antagonists!
    http://blogs.telegraph.co.uk/news/tobyharnden/100091820/american-way-sarah-palin-email-frenzy-backfires-on-her-media-antagonists/

  • melory

    Trig is so cute with those glasses!

    I believe the Lord hand-pick the parents and families of these beautiful babies – because He knows they cannot be entrusted to just anyone. If people understood this they would not abort these babies, they miss out on so much – if they only know how honored and highly favored they are that the Almighty God found them worthy to be parents and family to these special children of His! The enemy robs them of that blessing and honor when he convinces them to get rid of these babies before they are born.

    A blessed Easter to everybody:

    The Darling of Heaven cruzified, worthy is the Lamb!

    Thank you for the cross, Lord.
    Thank you for the price you paid.
    Bearing all my sin and shame, in love you came
    And gave Amazing Grace.

    Thank you for the scars, Lord.
    Thank you for the nail-pierced hands.
    Wash me in Your cleansing flow, now all I know…
    Your forgiveness and embrace.

    Worthy is the Lamb
    Seated on the throne.
    We crown You now with many crowns
    You reign victorious!
    High and lifted up
    Jesus, Son of God.
    The darling of Heaven, crucified…
    Worthy is the Lamb.
    http://www.youtube.com/watch?feature=player_detailpage&v=AR4CCLnmf1Q

    • melory

      should be “crucified”


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