Prayer Request

A reader writes:

Hi, I have a major prayer request I hope you can share with readers. My friend’s roommate’s son Kreed is a beautiful teenage boy with autism who’s got a host of horrible physical disorders as well, including epilepsy, a severe metabolic disorder and an immune deficiency.He’s been suffering from bad pain in his limbs for months now and doctors have dismissed him as just acting out autism, but he’s finally got a diagnosis of length-dependent, axonal and demyelinating, sensory and motor peripheral neuropathy (please excuse any misspellings since I’m not a doctor!). As far as I can understand it’s a condition that ruins all your nerves over time starting with the very long ones. In a “normal” child this would have been tested for and diagnosed at the first tingle, but since Kreed had to suffer for months he’s already lost all sensation and most motor skill in one foot and in both hands (which is a disaster, because his only form of verbal communication is with a touch screen speech device). They’re giving him palliative medications and therapy, but apparently the only way to stop the disorder is to find out what caused it,and that will require genetic testing. Otherwise, he is likely going to lose the ability to walk and eventually it will kill him. However, his insurance company has already denied genetic testing twice, and they even stated in writing that it was denied because he has autism.
Please pray for a healing miracle for Kreed, or at minimum that he’ll be able to get the testing and treatments he needs. And please always remember in your prayers the mentally ill and mentally disabled– I know from witnessing it in many of my friends that the kind of neglect Kreed has suffered is the norm for them and not the exception.

Father, hear our prayer through your Son Jesus Christ. Mother Mary and St. Luke, pray for him, his caregivers and those who love him.

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  • Marthe Lépine

    An idea came as I was reading this: Why not ask the intercession of the Church two most recently canonized saints, Saint John-Paul II and Saint John XXIII for this young man, and not only ask for this particular problem to be healed, but for complete healing of the autism and all its complications?

    • S. Murphy

      I will if you will. It’s a great idea!

    • Marchioness Pezzulo

      Thanks, I’m the reader and Kreed’s family friend and we will all pray. If you want to follow Kreed’s progress, just look up the links I posted in the first reply.

  • Justin Soutar

    Mark, Please tell this reader about the book “Autism–Prevention Care and Management: The Plight of the Canary Children and Their Release from Captivity” by my good friend Doctor Marvin Anderson, M.D. Dr. Anderson is a devout Catholic who has been treating autistic children with remarkable success for the past ten years, and his book is full of groundbreaking research on the diagnosis and treatment of these increasingly common behaviorial disorders. Please direct your reader to this book. It will help Kreed get the relief he desperately needs.
    You may also be interested to read my review of the book, “A Lesson from the Canary Children” ( just google that).

    • Marchioness Pezzulo

      Thank you, I’ll be sure and check it out! My friend who lives with Kreed full time is a therapist specifically for autistic children. They’ve got him in music and physical therapy, and she’s the one who found him a speech device that actually speaks in all kinds of sentences instead of only saying “I want _____.” the way the older models do. Kreed’s progressed enormously through this– two years ago he self-harmed constantly and hand tantrums all day long, but now he’s extremely quiet and attentive, and even wrote out a couple of words (with a lot of help) at Christmas in a card for his mother. He’s making huge strides mentally, and if they can just keep his physical health up that will hopefully continue to improve. I’ve posted two links above to Kreed’s caregivers’ blog on and Facebook page, if you’d like to follow his progress or talk to them yourself.

  • MrsF

    If there’s a way a way to make a donation to this family, please let us know here. I’m sure this child’s medical expenses will be oppressive (even if the insurance kicks in).

    • Marchioness Pezzulo

      Thank you, I’m the one who sent the request. I don’t know if they’re holding a fundraiser of any kind yet, but they may soon. You can follow Kreed’s progress and ask his caregivers yourself here, if you’ve got Facebook: https://www.facebook.com/kreedsworld?ref=br_tf

    • Marchioness Pezzulo

      Or if you don’t have Facebook there’s also a blog, which is not updated as often: http://kreedsworld.blogspot.com/

  • neveraname

    I was faced with a $5000 genetic test and my insurance wouldn’t cover it. Eventually they (the genetic testing company) called and we explained that we simply had no money and would have no way, even with the parish’s help. We were stunned when they said, oh well then we’ll do it for $49.!! So tell them to make the call. Also go onto NIH’s site and type in the condition. It will link you to every lab in the world that can do genetic testing for that condition. Often if one lab has no “compassionate” price, another will. Pray to Blessed Jerome Lejeune!! He was the scientist who figured out Down Syndrome and patron almost-saint of genetics patients!

  • PeonyMoss

    his insurance company has already denied genetic testing twice, and they even stated in writing that it was denied because he has autism

    Is this a violation of the ADA, I wonder?

  • jenny

    I pray…


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