Why is Setting up a Village of Support so Difficult?

Ali Family Autism Truths #11 - April 11, 2016As we wrapped up our monthly meeting, we pulled out our calendars to schedule our meeting for the next month.How about May 12? She asked me.No, I said. That’s my birthday. I don’t want to be depressed on my birthday.She laughed. Depressed?No, I’m serious, I said. Just consider this for a minute. We’re inclined, as humans, to try and live positively. No matter what is hard or difficult for us or our children, I try to live with the b … [Read more...]

Hard Truths that Demand to be Lived With

Ali Family Autism Truths #10 - April 10, 2016There was a big group of teenage boys out practicing lacrosse on the field today where I took D for his weekly Open Gym session, better known as The John Maloney Project. Young, strapping 14-17 year olds, from what I could guess, going through sprints and lacrosse formations. Healthy young men, calling out to each other, joking, listening to their coach, sweating and putting in a good practice.All the while D and his other compatriots walked … [Read more...]

It’ll Never Be Enough

Ali Family Autism Truths #9 - April 9, 2016The house is full of family tonight, with my sister-in-law and kids joining us for a late dinner. D’s used to his cousins in and out of the house, and finds his own spaces to chill when the human population of the home becomes too much.It used to be that life more or less revolved around D, his activities, his therapies, his needs and what he could manage and could not. The rest of the children were much younger back then, and they didn’t have th … [Read more...]

To Sleep, Perchance to Dream. There’s the (Autistic) Rub

Ali Family Autism Truths #8 - April 8, 2016At 5:30 a.m., my phone rang. Or rather, it vibrated on the nightstand next to my bed. When I woke out of deep sleep to its hum and grabbed it, bleary eyed, I saw that it was my mother-in-law, calling from downstairs (where their bedroom is).I began to panic. With my father-in-law home from the hospital seven days ago after his triple bypass surgery, and with them sleeping by themselves downstairs the past three days, the rule was that they … [Read more...]

Conversations with Daughter A: Laying Down Truths in School

Ali Family Autism Truths #7  April 7, 2016Scene: In the car, today, after I picked up daughter A (who is 12 years old) from school then drove over to get D from his school. The following conversation ensued. It’s not word for word accurate, but pretty much spot on.A: So there are these two girls in my gym class, and I don’t mean to be mean about them but …Me: What?A: They’re saying stuff about another boy in P.E. He has some sort of disability – I don’t think its autism – I don’t … [Read more...]

It Takes a Village to Live this Autism Life

Ali Family Autism Truths #6 - April 6, 2016In the span of three weeks, D’s two trusted, tried and true therapists/care givers both gave their notice. One took a different job in town and couldn’t fit after-school home therapy for D into his schedule anymore. The other took a job out of state and is moving on to new adventures.I hate seeing good therapists/care givers go, though I always wish them well. When we first started bringing therapists and caregivers into our home to help D more t … [Read more...]

Somethings in Life Cannot be Fixed – They Can Only be Carried

Ali Family Autism Truths #5 - April 5, 2016Somethings in life cannot be fixed. They can only be carried.I am not the originator of that profound and immense thought. I wish I was. Surely I have felt it in my soul numerous times.Like so many people, I have numerous articles and links saved in different places – on Facebook, on my computer, copy and pasted into a note in my phone, or cut out of magazines (yes, I still read actual magazines and newspapers and – gasp – books from time to … [Read more...]


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