Ali Family Autism Truths #9 – The Best Muslim, the Innocence of Humanity

April 9, 2015, Autism Awareness Month, Autism Truths #9I’ve noticed a trend during the past few years of families performing Umrah during their kids’ spring breaks. I think it’s great – a wonderful way for families to come together for a moving, spiritual pilgrimage and introduce their children to some of what is most special, most beauteous, most humbling and true about Islam.Year after year, right before spring break rolls around, I get at least five or six messages/emails, or read on s … [Read more...]

Ali Family Autism Truths #8 – To be Known, Understood

April 8, 2015 – Autism Awareness Month, Ali Family Autism Truths #8 As I write this, you lie next to me, the sleepiness finally hitting you with gentle waves, silencing the sounds you make and bringing stillness to your ever-moving limbs. You watch me type, seeing the words flow on this screen, and I wonder if you're reading what I'm writing. Maybe you can read. Maybe. There is so much I still don't know about you, about all you may be able to do. If you are reading this, I wonder -- are you ok … [Read more...]

Ali Family Autism Truths #7 – The Places We Go

April 7, 2015 - Autism Awareness Month, Ali Family Autism Truths #7We're in that stage now where D doesn't want to go much of anywhere. If he can stay home, then that's just fine by him. There was a long period of time, until maybe about four of five years ago, that we went nearly everywhere as a family. If for whatever reason where we were going just wasn't going to work for D, his Baba or I would stay back with him. Hiring babysitters and caregivers just to hang out with him so the rest of … [Read more...]

Ali Family Autism Truths #6 – Finding Our Okay

April 6, 2015 – Autism Awareness Month, Ali Family Autism Truths #6 Our milestones and firsts have never been other family's milestones or firsts. When it comes to D, we follow his timeline on progress and no other. We face our firsts, sometimes with sadness and fear, sometimes with great joy -- always truthfully. I wrote this today on Facebook:More milestones in Autism land for the Ali Family. Every time things feel complacent and just our "norm," I'm reminded of all the cheerful (and d … [Read more...]

Ali Family Autism Truths #5 – How Inclusive was Your Easter or Passover Service?

April 5, 2015 – Autism Awareness Month, Ali Family Autism Truths #5 In private conversations with friends today, friends celebrating Easter or having celebrated Passover, we shared some of our frustrations in trying to participate in religious ceremonies and attend services at Houses of Worship with our autistic children. While many churches, synagogues (and even some mosques) and other Houses of Worship have made great strides in tailoring services for all in their congregation, or at the very … [Read more...]

Ali Family Autism Truths #4 – Two Different Worlds, One Home

April 4, 2015 - Autism Awareness Month, Ali Family Autism Truths #4There are days when it feels like two completely different world exist under my roof.There is D, spending the majority of this first day of his spring break spinning his beads in our bedroom, or in the basement bedroom where his grandparents sleep. The connection is distant today between him and the rest of us, as we enter in that final furious stage of shopping/packing/cooking/readying for a spring break trip and a big … [Read more...]

Ali Family Autism Truths # 3 – Spinning in Circles

April 3, 2015 - Autism Awareness Month, Day Three of Ali Family Autism Truths"A" came with me today when I went to pick up D from school. She and her little brother, H, had half-days, as Spring Break has now begun. With H off to Jummah prayers with his grandparents, A kept me company on my afternoon drive. The other kids rarely come with me when I get D. They're both coming home on busses at that time themselves. So it was a little disconcerting to A to see her older bro pulling his arms … [Read more...]


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