Ali Family Autism Truths #26 – What We Are Afraid to Say Out Loud

April 26, 2015 – Autism Awareness Month, Autism Truths #26 Sometimes it all feels so fragile — life held together by bits of tape and pieces of string, with prayers and promises. The slightest quiver in the universe and it all falls apart, despite all our planning, all our praying, all our hopes for the future. We can try and secure the future for our loved ones as best as possible. We can try and keep them safe. But nothing is… Read more

Ali Family Autism Truths #25 – The Right of Choice

April 25, 2015, Autism Awareness Month, Autism Truths #25 D brought his iPad to me just a few minutes back to request something to eat. We discovered something new with his ability to make choices a few weeks ago when he requested chips off his iPad – that all chips are not the same. A few weeks back, he pressed the button for “I want” and then pressed “chips,” saying kippa to us (his verbal approximation of the word, chips)…. Read more

Ali Family Autism Truths #24 – Present with Each Other

April 24, 2015 – Autism Awareness Month, Autism Truths #24 It’s time to write this post, and so I ask my family tonight what I should write. The husband says – let’s all give our perspectives tonight, and you write them down. But before we can wax eloquently on #autismtruths, D pulls H to the sofa for a tickle fight. Dadima (their paternal grandmother) is sitting at the edge of the sofa, reading her evening Quran, and the H gets… Read more

Ali Family Autism Truths #23 – What is God’s Truth in All This?

April 23, 2015 — Autism Awareness Month, Autism Truths #23 It seems like we are always living waiting for the other shoe to drop. Even when things are relatively smooth and good, we wait, wondering when it will all fall apart. It’s falling apart in front of my eyes. Something is distressing D right now, at the end of the day. Distressing him pretty badly. Something internal, perhaps something external, something I don’t know how to fix. The shoe is… Read more

Ali Family Autism Truths #22 – The Double Standards

April 22, 2015 – Autism Awareness Month, Autism Truths #22 At dinnertime this evening, my seven-year-old son H laid a good one one me. His older brother D, who had been sitting with the six of us at the dinner table plowing through his dinner, got up and left the table with a few more bites to go. We called him back – D, come and take another bite! He came back and protested, pushing my husband’s hand away as he… Read more

Ali Family Autism Truths #21 – The Most Vulnerable

April 21, 2015 – Autism Awareness Month, Autism Truths #21 When I picked up D today from school,, his lead teacher escorted him to my car (usually it’s one of the teaching assistants). She tends to come out to the car line usually only to tell her students’ parents something great that happened that day — or something bad. Great, not bad, please — I said to myself. She started with the great – D had a great day today…. Read more

Ali Family Autism Truths #20 – To Just Be Present

April 20, 2015, Autism Awareness Month, Autism Truths #20 He grows sleepy, trying to find a comfortable position in the uncomfortable waiting-room chair as the medicine takes it’s effect. I put his head on my shoulder, but in a few seconds he moves it away. I put my arm around him so he can lean on it, but he shrugs away. D’s never been one to lean on anyone too much. He seeks out foot pressures and back rubs sometimes,… Read more

Ali Family Autism Truths #19 – The Unattainable Truth

April 19, 2015 – Autism Awareness Month, Autism Truths #19 I’ve seen my fair share of hijab (headscarf) “fat suit” stories – you know, the ones where a woman decides she’ll wear a hijab for a month to see what it feels like to be a Muslim woman. (The 2015 version of the woman who dons a “fat suit” to feel what it’s like to be overweight.) The first one or two such articles I read impressed me. I mean… Read more

Ali Family Autism Truths #18 – Sometimes the Truth Hurts

April 18, 2015 – Autism Awareness Month, Autism Truths #18 We are winding down our Saturday, me sitting on my bed banging this post out, and D chilling and winding down on the chaise lounge in my room, twirling his beads on an especially long piece of plastic. I’ll be asking him to relinquish his beads soon, as the final lapse toward sleepy time will be hard to come by if he keeps stimulating himself with the beads. Between two… Read more

Ali Family Autism Truths #17 – Brotherly Love

April 17, 2015 – Autism Awareness Month, Autism Truths #17 His brief seven years on this earth is littered with the best exchanges with his big brother, D. Driving home from school the other day: D bhai, do you know that you have a mustache? He says to his 14-year-old brother. Ya! His brother answers back. I stifle my laughter as I drive the car. Or, a few months earlier: Mamma, will you come downstairs with me? (He wants to… Read more

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