I like George Will, now even more

From George Will:

When Jonathan Frederick Will was born 40 years ago — on May 4, 1972, his father’s 31st birthday — the life expectancy for people with Down syndrome was about 20 years. That is understandable.

The day after Jon was born, a doctor told Jon’s parents that the first question for them was whether they intended to take Jon home from the hospital. Nonplussed, they said they thought that is what parents do with newborns. Not doing so was, however, still considered an acceptable choice for parents who might prefer to institutionalize or put up for adoption children thought to have necessarily bleak futures. Whether warehoused or just allowed to languish from lack of stimulation and attention, people with Down syndrome, not given early and continuing interventions, were generally thought to be incapable of living well, and hence usually did not live as long as they could have.

Down syndrome is a congenital condition resulting from a chromosomal defect — an extra 21st chromosome. It causes varying degrees of mental retardation and some physical abnormalities, including small stature, a single crease across the center of the palms, flatness of the back of the head, a configuration of the tongue that impedes articulation, and a slight upward slant of the eyes. In 1972, people with Down syndrome were still commonly called Mongoloids.

Now they are called American citizens, about 400,000 of them, and their life expectancy is 60. Much has improved. There has, however, been moral regression as well.

Jon was born just 19 years after James Watson and Francis Crick published their discoveries concerning the structure of DNA, discoveries that would enhance understanding of the structure of Jon, whose every cell is imprinted with Down syndrome. Jon was born just as prenatal genetic testing, which can detect Down syndrome, was becoming common. And Jon was born eight months before Roe v. Wadeinaugurated this era of the casual destruction of pre-born babies.

This era has coincided, not just coincidentally, with the full, garish flowering of the baby boomers’ vast sense of entitlement, which encompasses an entitlement to exemption from nature’s mishaps, and to a perfect baby. So today science enables what the ethos ratifies, the choice of killing children with Down syndrome before birth. That is what happens to 90 percent of those whose parents receive a Down syndrome diagnosis through prenatal testing.

Which is unfortunate, and not just for them. Judging by Jon, the world would be improved by more people with Down syndrome, who are quite nice, as humans go. It is said we are all born brave, trusting and greedy, and remain greedy. People with Down syndrome must remain brave in order to navigate society’s complexities. They have no choice but to be trusting because, with limited understanding, and limited abilities to communicate misunderstanding, they, like Blanche DuBois in “A Streetcar Named Desire,” always depend on the kindness of strangers. Judging by Jon’s experience, they almost always receive it.

Two things that have enhanced Jon’s life are the Washington subway system, which opened in 1976, and the Washington Nationals baseball team, which arrived in 2005. He navigates the subway expertly, riding it to the Nationals ballpark, where he enters the clubhouse a few hours before game time and does a chore or two. The players, who have climbed to the pinnacle of a steep athletic pyramid, know that although hard work got them there, they have extraordinary aptitudes because they are winners of life’s lottery. Major leaguers, all of whom understand what it is to be gifted, have been uniformly and extraordinarily welcoming to Jon, who is not.

Except he is, in a way. He has the gift of serenity, in this sense:

The eldest of four siblings, he has seen two brothers and a sister surpass him in size, and acquire cars and college educations. He, however, with an underdeveloped entitlement mentality, has been equable about life’s sometimes careless allocation of equity. Perhaps this is partly because, given the nature of Down syndrome, neither he nor his parents have any tormenting sense of what might have been. Down syndrome did not alter the trajectory of his life; Jon was Jon from conception on.

This year Jon will spend his birthday where every year he spends 81 spring, summer and autumn days and evenings, at Nationals Park, in his seat behind the home team’s dugout. The Phillies will be in town, and Jon will be wishing them ruination, just another man, beer in hand, among equals in the republic of baseball.

 

 

About Scot McKnight

Scot McKnight is a recognized authority on the New Testament, early Christianity, and the historical Jesus. McKnight, author of more than fifty books, is the Professor of New Testament at Northern Seminary in Lombard, IL.

  • Scott Eaton

    This piece makes me feel better about the world, somehow.

  • Steve Sherwood

    Unlike you, except when he’s writing about baseball, I’ve rarely liked much of George Will’s stuff. This, however, is beautiful and wonderful. People are rarely summed up well by the labels we put on them, huh? (talking to self).

  • http://LostCodex.com DRT

    Natalie Merchant has never said exactly why she wrote “wonder”, but I have felt it is because of people like Jon from the moment I first heard it. May be may fav song ever.

    http://www.youtube.com/watch?v=6zpYFAzhAZY

  • http://www.allanbevere.com Allan R. Bevere

    “This era has coincided, not just coincidentally, with the full, garish flowering of the baby boomers’ vast sense of entitlement, which encompasses an entitlement to exemption from nature’s mishaps, and to a perfect baby.”

    Yes, indeed!

  • Kyle J

    It’s a wonderful story. Unfortunately, it’s a major exception to Will’s normal method, which is to write and think solely in ideological terms (albeit very well crafted ideological terms), rather than taking the time to examine the real world impact of policies on people. For example, I’d be very interested to know how federal health care policy affects adults with Down Syndrome. Instead, Will’s columns on health care inevitably boil down to diatribes against the “entitlement state.”

  • tessa

    @Kyle, can we not leave a person’s politics out of it and let it be simply a powerful piece from a loving father? Profoundly moving.

  • http://shanescottonline.com Shane Scott

    I just got back from preaching for a week in Chicagoland (Portage, IN), at a church I worked with for six years, and one of the people I missed the most was a lady named Leona. She was born with Down’s, but was taken care of by her sister and bro-in-law for many years. She worked at Opportunity Enterprises, a place that hired people with special needs and gave them a chance to enjoy the dignity of work. She always sat by the door I usually entered at church, and she was always early, so every time I went to worship I was greeted by her warm, enthusiastic, and completely genuine smile and “hello.” This column reminded me of her! Thanks for sharing!

  • http://www.herenowkingdom.com Andy Catsimanes

    “We make men without chests and expect of them virtue and enterprise. We laugh at honour and are shocked to find traitors in our midst.”

  • John Morris

    Could only appreciate this story thanks to the kindness of another subscriber. Liked reading what I did. George Wil: thanks.

  • Kim Brandt

    Thank you. I had forgotten this about Mr. Will and family. Not too sentimental, just lovely.

  • Mike M

    The problem is that earlier and earlier detection of Trisomy 21 in utero has led to earlier and earlier abortions based on genetic mapping alone. As Dr. McKnight knows, I called this extermination (yes, 90% in the US and 99% in Europe) “geneticide” which is the eradication of whole populations based on genetics alone. Having an extra chromosome is their only crime meriting the death penalty. Remarkably, many of these people don’t have physical disabilities while some of them do. Our own son Jon is short and has an expressive language disorder. Are those reasons to kill him? Yet the pressure to abort was overwhelming. We didn’t and now his love and life are the greatest testimonies to God’s love we have ever witnessed.

  • Larry Barber

    Why all of a sudden is it alright to take such gratuitous swipes at “baby-boomers”? Substitute “women” or “African-Americans” for baby-boomer and see what happens. Judging someone’s morality based on when they were born is simple bigotry.

  • http://LostCodex.com DRT

    If you all have not seen this one yet, it is worth a watch.

    http://www.youtube.com/watch?v=aeItyVFx0Zo

    Wow.

  • http://LostCodex.com DRT

    I’m sorry, I should have told you what it is.

    It’s about a young woman showing papers with her writing on them while she is holding her baby and describing their experience of the baby being born with some non-standard attributes, quite a choker in the middle.

  • Kyle J

    Sorry, tessa. I’ve spent a lot of time reading Will’s stuff. Read almost all his compiled works in my younger, more conservative days. Couldnt resist the pull to analyze this in the context of his broader work.

    Absolutely a wonderful ongoing story.


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