Not Living in the Past – Living for the Future

Ali Family Autism Truths #13 - April 13, 2016 When you're picking up your kid from school and it's taking a very long time for the teachers to bring him out.You think the worst. Because, experience.‪#‎autism I posted that on Facebook while I sat in the car today nervously watching the minutes tick away, waiting for D to come out. It was taking a long time for his teachers to walk him to the car, and that was making me late to head over to A’s school next and get her.I was sure he wa … [Read more...]

Conversations with Son H – Where He Lays Down Truths

Ali Family Autism Truths #12 - April 12, 2016Scene: At our kitchen table where eight-year-old H is doing his homework, and I am doing office work on my laptop:H: Hey Mamma?Me: Hey what?H: When did you know D bhai was autistic?Me: When he was very little. The doctor officially told us when he was three years old, but I knew a long time before that.H: Did you know when …Me: When what?H: Nevermind.Me: Tell me!H: Did you know D bhai was autistic when he was in … [Read more...]

Why is Setting up a Village of Support so Difficult?

Ali Family Autism Truths #11 - April 11, 2016As we wrapped up our monthly meeting, we pulled out our calendars to schedule our meeting for the next month.How about May 12? She asked me.No, I said. That’s my birthday. I don’t want to be depressed on my birthday.She laughed. Depressed?No, I’m serious, I said. Just consider this for a minute. We’re inclined, as humans, to try and live positively. No matter what is hard or difficult for us or our children, I try to live with the b … [Read more...]

Hard Truths that Demand to be Lived With

Ali Family Autism Truths #10 - April 10, 2016There was a big group of teenage boys out practicing lacrosse on the field today where I took D for his weekly Open Gym session, better known as The John Maloney Project. Young, strapping 14-17 year olds, from what I could guess, going through sprints and lacrosse formations. Healthy young men, calling out to each other, joking, listening to their coach, sweating and putting in a good practice.All the while D and his other compatriots walked … [Read more...]

It’ll Never Be Enough

Ali Family Autism Truths #9 - April 9, 2016The house is full of family tonight, with my sister-in-law and kids joining us for a late dinner. D’s used to his cousins in and out of the house, and finds his own spaces to chill when the human population of the home becomes too much.It used to be that life more or less revolved around D, his activities, his therapies, his needs and what he could manage and could not. The rest of the children were much younger back then, and they didn’t have th … [Read more...]

To Sleep, Perchance to Dream. There’s the (Autistic) Rub

Ali Family Autism Truths #8 - April 8, 2016At 5:30 a.m., my phone rang. Or rather, it vibrated on the nightstand next to my bed. When I woke out of deep sleep to its hum and grabbed it, bleary eyed, I saw that it was my mother-in-law, calling from downstairs (where their bedroom is).I began to panic. With my father-in-law home from the hospital seven days ago after his triple bypass surgery, and with them sleeping by themselves downstairs the past three days, the rule was that they … [Read more...]

Conversations with Daughter A: Laying Down Truths in School

Ali Family Autism Truths #7  April 7, 2016Scene: In the car, today, after I picked up daughter A (who is 12 years old) from school then drove over to get D from his school. The following conversation ensued. It’s not word for word accurate, but pretty much spot on.A: So there are these two girls in my gym class, and I don’t mean to be mean about them but …Me: What?A: They’re saying stuff about another boy in P.E. He has some sort of disability – I don’t think its autism – I don’t … [Read more...]