Supreme Court Unexpectedly Upheld Regulatory Elimination of Down Syndrome

Supreme Court Unexpectedly Upheld Regulatory Elimination of Down Syndrome August 2, 2012

I meant to post this earlier, but so much has been going on!  But I wanted to tell you about this, which made me so mad!  Mark Leach, a Kentucky lawyer whose daughter has Down syndrome, recently wrote a must-read article on Thin Places.  It’s about how the Supreme Court’s recent ruling regarding the Patient Protection and Affordable Care Act would impact the lives of people:

A common reaction to the recent Supreme Court decision upholding the Patient Protection and Affordable Care Act (PPACA) was that it was “unexpected.” The Chief Justice reportedly sided with the dissenters to overturn the entire law, only to then switch and author the majority opinion. But buried within the PPACA regulations is something that for many also should be unexpected. If it’s not addressed, it does not matter what else PPACA does for individuals with Down syndrome and their families.

Pursuant to PPACA’s provision for no-cost preventive care services for women, insurance policies will be required to provide no-cost prenatal genetic testing starting August 1, 2012. A preventive treatment exists in response to many non-genetic prenatal tests. For instance, when my wife was expecting our daughter, she was prenatally tested for gestational diabetes and was able to monitor her condition so that it did not negatively impact the pregnancy. This is not the case, however, for prenatal testing for Down syndrome, the condition our daughter has had since at or near her conception.

There is no treatment pre- or post-natally for the extra 21st-chromosomal material that causes Down syndrome. Currently, an estimated 400,000 Americans have Down syndrome. Characterizing prenatal testing for Down syndrome as “preventive care” expresses a policy that fetuses diagnosed with Down syndrome should be prevented from being born. Indeed, a member of the Court’s majority, Justice Ginsberg, previously stated in an interview that one purpose of abortion is to reduce “populations that we don’t want to have too many of.” Population reduction is exactly what happens where there is a public policy for prenatal genetic testing…

To say that a genetic condition should be prevented, with the only means of that prevention being abortion, is morally objectionable.

Remember when my mom warned about “Death Panels?”  Well, here we are.

When I think about people aborting their babies just because they might be like my brother, it makes me so angry and sad at once.  Please read Mark Leach’s article and pray that the PPACA regulation’s requirement for no-cost prenatal genetic testing for conditions that cannot be treated be rescinded.

P.S. This was my 100th post!!!  Who’s read all of them?

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  • Anita


  • I read every one!

  • Justine Stewart

    I absolutely read all of them!! On another note, where did your instagram go?!

  • Sue Lynn

    I read everyone….Love your posts nd insite. Love the pictures you share with u. Keep up the great work Bristol!

  • Cassandra Daniels

    Thanks for sharing this, Bristol! I had no idea this was included in the ACA. I guess I’m not surprised, seeing as how corrupt the gov’t is. This is truly demonic behavior. 🙁

  • kayla

    ive read them all.. i think.. some a few times. thanks for the posts! <3

  • Heather Laurin

    As the parent of a child with Down Syndrome, this both angers and scares me to no end. Keep fighting the good fight Bristol. We need people like you and your mom speaking up for us and for our beautiful children. Give your angel brother a big kiss and hug from Palin supporters in Texas!

  • Jocelyn

    Wasn’t planned parenthood created and supported by democrats to to reduce “populations that we don’t want to have too many of.” – In planned parenthoods case and democrats – Black People.
    Too bad most people don’t see or care the government is way too involved in our lives, next they will want to off Autistic children.
    Love your show Bristol. (I would like to see piper more) Love your family for the way they handle everything.
    Thank you for stand up for what is right.

  • I just began subscribing to your blog but I’ll read each one! Congrats on 100 of them. It’s too bad more people don’t believe in the “Death panels” – they’re coming if we don’t do something about it. Thank you for posting a link to Mark Leach’s article. I will put a link to it on my blog. Bless you, Bristol.

  • Jay

    For 37 years I have been blessed to work in the field of Developmental Disabilities. I have known hundreds of people with all manner of genetic and acquired issues. I’ve toilet trained men in their 60’s and taught teen-agers to feed themselves. Not one of them were unable to learn and develop. Not a one failed to bring joy into someone’s life, especially mine. Now we are returning to the philosophy of Margaret Sanger and Adolph Hitler? God help us!

  • Jan Page

    I’ve read them all, Bristol. Keep up the good work!

  • Kirstin

    I’ve read all of them! Been here since the first.
    This one made me sad though!:( I don’t understand why someone would kill a child, especially one as sweet as a down syndrome child..

  • Christy

    Bristol, love your show. You are such a good mom. It is rare to see a young mom who puts her child first before herself. What a wonderful role model you are. I wasn’t aware of the Down Syndrome remarks. As a special education teacher, I find it to be rude, tasteless, and ignorant. I love your family and their values. You aren’t afraid to publicly declare your love for Christ, also, rare and amazing for someone your age. I look forward to watching more of your adventures.

  • Abby

    I have recently started but will be keeping up for next 100!! Thank you for all you do. You make me SO proud to be Alaskan!!

  • Michael Mills

    The situation in Washington has gotten out of hand. I don’t believe in abortion, but I believe that it is the parents decision whether to have the baby or not. I don’t believe anyone else should be able to force that decision on anyone. We need to get these nuts out of Washington before they completely remove America’s freedom. If they want to end freedom, then what is the point of living in America? If it is not free, then it may as well be any other country.

  • Mark Leach is an amazing advocate for our children, I used his research to write this article on the Affordable Care Act and pre-ntatal testing.

  • Julia

    Every time I find myself sort of liking the Palin women, I am abruptly reminded why I’m just setting myself up for dissapointment. It’s really too bad that the chips on you and your mother’s shoulders are so deep that you’ve got to resort to hyperbole and in her case so often, flat out insults, to probe your points thus validating yourselves. Listen, this test isn’t a death panel. Nothing about a test can or should compell a woman to choose an abortion if that isn’t where her heart is already. Your own mother got this test! The only change is that it’s more accessible. And even if you can’t change the outcome of the baby, you would sure want to know and be prepared! So get off it.

  • Sara

    I’ve read every single one!! Did you delete your Instagram?

  • Bristol, you keep posting and we will keep reading!!! God Bless our nation and keep fighting for our citizens that have down syndrome.

  • Amy

    This is amazingly sad and horrifying. Let us pray that Obamacare is overturned. Will we become China and tie women down, drug them and abort their children? Sickening. But closer than we think.

  • Jburgess

    Everyone :).

  • Monique

    I have read all your posts and watch your show. I am always a week behind but have enjoyed it so far. I admire you sharing your life like that on TV. I am not sure I could do it but all it has taught me is you are human just like the rest of us. Take care!

  • Thomas Hubbard

    When I look at Trig and I see that big smile I think to mself what a joy to know. I also say to myself what a lucky kid to have Sarah as is Mom, and to have the family that he has.

  • bellagrazi

    Justice Ginsberg’s comments are chilling. Thank you for posting this, Bristol. And congrats on your 100th blog post! I’ve not only read all of them, but I’ve commented/shared/tweeted all of them! Bristol, you’re an inspiration to not only your generation, but your mom’s. (I’m your mom’s age!) Keep up the good work. You’re definitely having a positive impact with your posts.

  • Donna Stewart

    We must unite and ban together with once voice to maintain our Republic! The American spirit is alive and well! We need to rise up like we have so many times and squash tyranny that threatens our freedom.
    We are the voice of our down syndrome citizens!

  • Gary Ernsthausen

    We all know that people like BO will slip thru the ‘cracks’ of testing and just look at what he whole world has had to put up with ! ! I will take Trig any day over BO!

  • Julia

    THERE IS NO MANDATED ABORTION! What are you people reading that I’m not? How is this not just a test, just like how people always got these tests??? You’re just looking for boogiemen. Seek and ye shall find.

  • Tori

    Bristol~ My brother James, 34 yrs old, has Down Syndrome. We are 16 months apart and I cannot imagine my life without him. It would take me forever to tell you how great he is and how truly blessed we are to have him in! Thank you for your posts on these issues! Prayers to the people who need a little help understanding what life is about!

  • 100 already ???
    Yep … read them all
    oh, and anoyne who wants to know what the greatest threat to humanity is needs to see the movie Gattaca …
    … no … the threat is not science … it is the temptation to use it like that … see it yourself as I won’t spoil it …

  • Myra Watts

    Bristol I read your comments and posts all the time. I wish more of our younger generation was as informed about life around them as you are. Everyone around us seems to think life will go on the way they are used to for many years to come. I see this as the last year of the norm no matter how bad it has been getting. If this evil thing continues to control our country, the people and the land will be doomed. I don’t usually look at life in such a depressed way, but I can’t believe the people will be strong enough to fight it. We thought Hitler was bad. Most of us will be taken out immediately. We all need to stop this before it goes any further. Do you read our comments?

    • minnesotaguy

      Myra Watts I totally agree with your post.

  • Katie DiFrancesco

    This ruling by the Supreme Court makes my stomach sick. I’ve worked with individuals with special needs including Down’s Syndrome. These individuals are so beautiful inside and out and I wouldn’t trade them for the rest of the world.

  • Lily

    Yes, we all remember when Bristol’s mom claimed there would be death panels. We also all now this was quickly debunked. And in this current example, there remains no ” death panel” deciding on anyone healthcare. There is , however, the same prenatal testing for all that Sarah Palin has/had for free under her family government-sponsored plan ( as native Americans through Todd).

    Nice try.

  • Cortney

    That makes me sick! Down Syndrome isn’t a disease…they are just special in every way possible! I have read all your posts and I love to see a person who actually knows what they are talking about!

  • amy

    I read all of your posts and love them all! you are such an amazing person.
    BTW I eat at Chick-Fil-A yesterday.

  • BlueVA

    I would protest the surface reading Bristol gives to the referenced blog post, and I would encourage her fans to look up Justice Ginsberg’s quote and see that it’s shamefully misconstrued here…but given the IQ of Bristol’s adoring followers, I realize challenging them to learn and think for themselves is better asked of a box of rocks.

    • hrh

      Why don’t you post Ginsberg’s quote here? If we can look it up, so can you.

      As one of Ginsberg’s “adoring followers” I’d think you’d give a better defense than that.

      BTW, Ginsberg told Egypt not to consider the U.S. Constitution as they form their new government. Really? You support a Supreme Court justice who is supposed to uphold the U.S. Constitution going abroad and saying our Constitution is not a good model for countries to use?

      Ginsberg should be impeached for this.

    • brenda

      whatever caused you to come dowh from your ivory tower and lower yourself so to even read this blog and the writings of this lowly rock.???

  • Ian


    I’ve read all your posts! Congrats on the 100th! WooHoo!!

    I’m looking forward to many more posts from you too. They’re intelligent and insightful, a welcome treat on my FB News Feed.

    I hope all is going well with you and your family.



  • don’t go back

    Q: Are you talking about the distances women have to travel because in parts of the country, abortion is essentially unavailable, because there are so few doctors and clinics that do the procedure? And also, the lack of Medicaid for abortions for poor women?

    JUSTICE GINSBURG: Yes, the ruling about that surprised me. [Harris v. McRae — in 1980 the court upheld the Hyde Amendment, which forbids the use of Medicaid for abortions.] Frankly I had thought that at the time Roe was decided, there was concern about population growth and particularly growth in populations that we don’t want to have too many of. So that Roe was going to be then set up for Medicaid funding for abortion. Which some people felt would risk coercing women into having abortions when they didn’t really want them. But when the court decided McRae, the case came out the other way. And then I realized that my perception of it had been altogether wrong.

  • Chris in Ottumwa

    I have read all the posts! They are great and no matter what the media trys to say, just remeber you and your entire family have a ton of people out here that support you and stand with you.

    Thanks for sharing with us!

    PS: How is Geno? Any more rings yet?

  • Michael Katz

    Bristol, I have read all of you posts! And you’re such an inspiration, like eveyrone in your family, from your wonderful mom and dad, to all your siblings, inlcuding your youngest brother.

  • haley

    That’s truly terrible, and even though i don’t know anyone with DS, it saddens me to no end.

    On a side note, what was up with Gino’s voice on the past 2 episodes of Life’s a Tripp?

    • amy

      Ya I noticed the voice thing too?

  • Hi Bristol, I think you might enjoy this:
    Health Star of the Week: This Little Girl Has Down Syndrome, & She’s a Swimsuit Model!
    “Valentina Guerrero, a 10-month-old from Miami who’s modeling for the Dolores Cortés Kids USA swimwear catalog.”
    “People with Down syndrome are just as beautiful and deserve the same opportunities,” designer Dolores Cortés told Adweek.
    I hope you and others will follow her on twitter @BraveWarriorVG
    God bless!

    • minnesotaguy

      Iram, I would like to agree with your posted about the 10-month old girl from Miami. I had a classmate that graduated with me that had Down Syndrome and let me tell you that kid could play the piano. It was shocking because our whole 2007 graduating class was in a room where there was a piano and he sat down and started playing the piano and we were all shocked that he had Down Syndrome and he could play piano. That is why i also agree with your saying ” People with Down Syndrome are just as beautiful and deserve the same opportunities.”

  • Holley

    This is so terrible! What is wrong with this world? Don’t people realize that no one truly is “perfect”. Whether we have down syndrome or not. Our view of perfect is NOTHING compared to God’s. He knew your sweet baby brother, Trig, even before he was conceived, just like other people with downs. And just like you and me! We are made in the imagine of God. Who are we to say who isn’t born and who is! How are we to know that person’s future! God creates us all for a purpose. He LOVES us all! I am praying with you Bristol. And I’ve read almost all your posts 🙂

  • MiddleRoader

    Death panels? Really, Bristol? Really?
    Didn’t your mother have prenatal testing? Didn’t this help her prepare for Trig’s birth?
    All ACA is doing is offering (not mandating) no-cost prenatal tests. Some women might use that info to get an abortion (which ACA does not pay for); some might not. Without prenatal testing some older women might get an abortion out of fear of having a DS baby; a prenatal test negative for DS could change their minds. I work in the spec ed field; I think most DS kids have a remarkable outlook on life. If I were pregnant with a DS baby, I wouldn’t have an abortion. But like your Mom, I’d like to know. Like your Mom, I can afford a test, if my health plan didn’t cover it (which I think it did anyway). But some people can’t. I believe they should be able to have the same info your Mom had.
    I’ll grant you that the term “preventive” might not be the best word choice. But 2 synonyms for it are “defensive” and “protective,” (per
    And BTW, once a child is born ACA provides no-cost autism, hearing, and other health screenings and behavioral assessment at various ages. How great is that?
    You’re pro-life and you should (and do) advocate for your cause.

    • Allie

      You are making way too much sense. All people around hear is wahwahwah. It’s the bubble they live in.

    • cuddleme72

      Prenatal testing for DS should not be included under “preventative” care.

    • Agkcrbs

      O.k., it’s plain that you cheer for the Democrat health reform, warts and skeletons and all. You make a fair post, but, first of all, repeatedly asking “really?” does not constitute a rebuttal. It’s an annoying feature of the jargon of liberals and their audience.

      Second, you suggest some older pregnant women may automatically lean toward abortion on a 1%-or-less chance of a given malformity. That strange notion unfortunately drifts into the “abortion as birth control” view. Tests or not, it’s inescapable that an older woman will have elevated dangers with childbirth. Of course, if an older woman doesn’t want a child, one would not assume her to pursue that goal by creating but then fearfully aborting a child on an increased but comparatively miniscule risk, but rather to have enough sense to not create the child at all.

      It may be admitted that pre-natal tests are valuable for “planning”, but their controversy has a different focus: the fact that they are more valued for their earliness; or as the author here argues, that they are felt to be “preventitve”. The point is more important than to drape a semantic sheet over it, as you do. Entire pregnancy websites may tip-toe around this fact without using the “a” word, but several-week-earlier warnings of foetal problems are simply not crucially relevant to prepared motherhood, except in one respect: that it can be significantly easier to abort a younger child. That’s the entire complaint here, not that screening and somewhat riskier invasive testing should necessarily be characterised as harmful, or be opposed. The problem is the one alluded to in this article, the obvious (even if unspoken) motive animating a certain segment of society: that the procedure will facilitate the ad hoc abortion of developmentally impaired children. It need not be denied or dismissed; it needs to be addressed, and the discussion of a growing sympathy toward eugenics needs to be raised.

      As for your parenthetical insistence that the PPACA doesn’t fund abortion, it’s just more evidence for your somewhat eager swallowing reflex. The facts are, to secure passage of the act, an early House version stipulated blocking abortion funding. The stipulation was absent in the Senate and removed from the final House version. Obama then provided a substitutional executive order, 13535, to reassure anti-abortion Democrats. The order charges the HHS and others with enforcement and concludes with some weakening material. Free from constraining language in the reform bill itself, the order, like all executive orders, is subject to revocation or delay at any time, as well as potential administrative bias from certain agency directors with preferences (and funding ties) known to contrapose the goals of the order. Every major anti-abortion group rejected the effectiveness of the president’s move.

      Three weeks ago, an empowered IOM advised PPACA administrators that “preventative” care included FDA abortifacients. This itself is only a half-step to surgical and or later-term abortions, but it does further confound the very definitions commented on by the present article. Another PPACA development is the requirement for separate accounts for abortion fee payments, meaning that however else they travel, insurance reimbursements would not go DIRECTLY to abortion providers. This led to the obvious allegation of simple laundering of federal abortion funds with dual accounts.

      That, of course, points to the bigger fishes with federal abortion funding: despite three decades of a rule against it, the government continues to pump money into both A) state welfare systems that turn around and fund abortions locally, and B) abortion providers like Sebelius’ Planned Parenthood. The objection is entirely lame, that tax money being tagged against abortions (yet still funding a huge chunk of PP operations) provides any kind of functional barrier against tax-paid abortions. That WOULD be the case if the cost of abortion work outweighed federal receipts, but as it is, PP revenue from both the government and other sources is many times the expense of abortion provision, allowing a very simple internal diversion of funds while still disclaiming U.S. sponsorship for abortions. In addition, PP has assured its backers of successfully lobbying for preferential PPACA inclusion.

      Anyway, no, it can’t really be said that either the ACA or the Obama Administration “does not pay for” abortions.

  • I am quiet sure I have read all your posts…did not know it was a 100. Watched all of “Life is a Tripp ” . Am anxious for dwts. Keep up your good work and continue to seek God’s will for your life especially when it comes to marriage .

  • Thomas Hubbard

    To you who dislike the Palins and what they stand for, just take a walk. Only by Bristols grace you are able to continue to post comments here. Enough of your nasty, and hateful attitudes.

    • James

      Bristol wants to criticize others through this blog. I give her credit for being able to take the criticism back.
      Although I disagree with Bristol and her mom on most everything… it does take a strong person to be able to take what she dishes out.
      Many consider Bristol’s opinions a form of hate and intolerance as well. So we speak up about it, just like Bristol speaks up when she sees something she doesn’t agree with.
      So if you don’t like someones statements take your own advice and ignore it… as long as Bristol is willing to hear her critics who are you to deny them.

  • AR

    Bristol you are such a lovely young woman. I so enjoyed watching your show and seeing how close your family is. You are truly blessed! On a different note, Willow needs watch her language in front of small children. I enjoyed seeing so much of her on the show,she definitely is a “firecracker”. Best of luck in all that you do in life. You are a bright girl who is beautiful inside and out. I hope they bring your show back for another season so we can see how things have gone with Gino and much Tripp has grown!

  • Holley

    What happened to your instagram account?

  • Skittles

    Yes I have read them all, Bristol!! Congrats on 100!!!! Keep ’em coming!

  • Maleena

    Congrats on your 100th blog!!! I enjoy reading them. Oh, did you delete your Instagram?

  • sodakhic

    If Ginsberg was in charge: limit 2 children per household, all genetically perfect, women will have every test to inform them of possible problems, government highly suggests you won’t be too happy if you keep a damaged baby, thus consider abortion, you’ll thank us later.

    • dont go back

      wow what about ginsberg comment says anything about 2 children or genetic imperfection. I wish people would stop taking half a sentence out of an answer from 3 years ago and twist it into something it isn’t. Please educate yourself with the facts before writing your comments.

  • MotherBushIsBack

    Bristol its your party that screams “Let him die!” and then applauds.

  • James

    I think you should actually take your mom’s advice and

    “Quit making things up!”

  • Bonny Batman

    The only reason this screwball media and the likes are so obsessed with your Mom – is not only is she smart enough to see between the lines of what these misguided fools are trying to do , she has gotten herself into the position of voicing her opinion (the Truth) – not fiction – people understand what she is saying and do agree with her. Common sense is alot of it, but who has common sense anymore? God Bless you guys, Your Mom and Dad, Track for his service to his country, you two spit-fire- crazy fun watching you and Willow duke it out, Piper growing fastest then we can follow, and Trig the little guy with the big smile. AND– it does seem like Trip is a Trip!! Enjoying the blog and keeping up with some sane people for a change. Love you guys

  • Piscean Gal

    MotherBushIsBack, you are absolutely correct! THAT is the ULTIMATE show of hypocrisy!

  • Piscean Gal

    There are no death panels. Since the Palin’s are pro- life, it seems to me they are calling those parents who are pro abortion/ pro choice, “death panelists”

  • Julia

    Disagreeing with hyperbolic lies is not being a “hater”, by the way, so you can’t just write off everyone who thinks you’re talking out of your rear end because you haughtily think they just personally dislike you. That’s a real babyish way to look at things.

    • Agkcrbs

      Yet it’s still clear from your high insult-to-idea ratio that you have a deeply ingrained dislike of the author, apparently borne not from fair consideration of two sides of a debate, but from simple partisanship. Your bias may be confusing to yourself, but it’s easy to spectators.

  • Timbit

    I love you Sarah, you are sooo beautiful

  • Piscean Gal

    James, I posted two things earlier this morning, and while they were there this morning, they are no longer here now, so if she really doesn’t like what is said, she or her “handlers” delete posts.

  • Piscean Gal

    Good afternoon, Jellybean!

  • Piscean Gal

    Hi MiddleRoader, yes, her mother did have the test done, as she wrote about it in her book. I quoted pieces from it twice today. One time it showed up and was removed and the second time it didn’t show at all. I’m thinking the “powers that be” didn’t like my opinion, based on what her mother wrote. 😉

  • David Dempsey

    The woman should have the right to make the decision — no one else should be allowed to make the decision for her — especially the Federal Government.

    • MiddleRoader

      Agreed. And no one is making the decision for the woman.

  • MiddleRoader

    Sorry for the length of this post, but I wanted to put in the entire quote, so people don’t say it’s out of context. This is from the Mayo Clinic website (date of info April 2011):

    “Screening for Down syndrome is offered as a routine part of prenatal care. A mother’s age has traditionally been a factor in the decision to screen for Down syndrome. But now, the American Congress of Obstetricians and Gynecologists recommends offering various screening tests for Down syndrome to all pregnant women, regardless of age. Although screening tests aren’t perfect, they can help you make decisions about more-invasive diagnostic tests and the course of the pregnancy. If your baby is diagnosed before birth with Down syndrome, you’ll also have more time to prepare for caring for a child with special needs. Your health care provider can help you weigh the pros and cons of these tests.”

    OB/GYN is NOT my area of expertise, so I could be missing something, but looks to me like the outrage to provision in the ACA is a tempest in a teapot. I welcome any opposing views and/or clarifications.

  • Misty

    Bristol, to lift your spirits a little, here is a story about a Downs baby landing a fashion campaign deal! Your brother Trig is cute enough to be in one himself!:)

  • Jake

    Although Bristol…I do want to encourage everyone to spay and neuter their liberals, gotta control the population! Just kidding liberals. It’s just a joke! Learn to laugh a little. We laugh at your comments on Bristol’s blog every time one of you comes here to rant and rave because once again Bristol has confused you with common sense and logic!

  • Robin

    Thanks for posting this Bristol. And congrats on the Dancing thing. I was praying we’d get to see you dance again. Kick butt girl.

  • chris

    So, I am not sure where the talk of “death panels” was in that article. I will read it again to make sure I did not miss anything. What I read was that women who are pregnant will be given the opportunity to check the health of their babies in a more comprehensive manner at no cost. Now, given that Republicans feel health care should only be given to those who can afford it, I can see why you would be against this provision. However, in regards to this provision creating “death panels” I would say your tactics on the matter are a bit misleading, perhaps sensationalist.

    Curious though, if the prenatal tests could indicate the likelihood of homosexuality, how would you feel about women aborting their potentially gay children?

    • Agkcrbs

      As you well know, the author is opposed to infanticide. It’s a transparent manoeuvre on your part to assault her character with a reckless inference that she may suddenly be in favour of it. But if leftists are o.k. with straw men and wrongful associations, then I’ll admit my own lingering curiosity, hoping you’ll recognise your own stupidity in it: how would a child molester like yourself feel about fewer potentially pliant victims being born in consequence of such tests?

  • wendy

    This post full of alarm about prenatal tests illustrates the power of paranoid thinking. There are in fact many advantages to early knowledge that a baby will have Down Syndrome, one being that there are sometimes prenatal treatments that can improve health and wellness. There is nothing in this policy that would make a reasonable person have concerns about “regulatory elimination”–

  • I’ve read them all! So sad to hear about these babies. 🙁

  • mistah charley, ph.d.

    i think every mother should have the same opportunity that sarah had to have tests done and be knowledgeable about the child’s condition and so on

  • Dennis McHale

    Excellent Post Bristol. Your are inspiring a new generation, like your your mom has inspired so many. May you be inspired to write hundreds more.

  • MiddleRoader

    Good site, Wendy. Something else to think about is that genetic testing of couples before they get pregnant can predict the likelihood their childeren will have certain diseases (such as Tay-Sachs, cystic fibosis, some forms of musular dystophy), so the couple can decide whether they want to get pregnant, or adopt, or not have kids. I know some would say this is playing God, but if those diseases ran in my family, I would want myself and my husband to get tested, and if we both had the genetic marker, I would choose to adopt. Other people might make different choices, but I think they should have the option to know the chances. Not sure if pre-pregnancy testing is part of PPACA (might be part of the contraception coverage). These are all such difficult questions and choices….

  • MotherBushIsBack

    Interesting how Bristol asks for liberals point of view and then deletes any comments she (Nancy) disagrees with or doesn’t like. This is now officially just a FAN Club. Enjoy hearing people tell you how great you are. I hope you don’t get too much sand in your ears.

    • Charlotte

      Funny, I would think if she deleted all the comments she just disagreed with she would have deleted yours.

  • Hi Bristol,
    I was moved to tears and action as I read your article. I’ve long wanted to connect with your family as we are blessed with Bethany- just turned 12, with downs syndrome. She is the best treasure I never knew our family needed. Yes! We need her! We are stronger, more compassionate, and see life clearer than ever before. She defines what’s important- LOVE. It’s also so fun to see her achieve and break down the low expectations held by many. She excels at dancing, loves to worship, texts her five siblings every day, has friends and her best subject is reading! Blessings to you and your whole family!!!! Keep speaking out- maybe some will be saved.

    • CJ

      Oh, Cindy….now I’m the one who’s tearing up at what YOU wrote! You just summed it all up so simply and so beautifully! <3
      Children with DS DO teach us so many things…IMPORTANT and BEAUTIFUL things.
      They are AWESOME! They help us to see life in the way I think GOD wishes we could see and live it. They have a precious message to bring to ALL of us, if only "the world" would take the time to see and understand this! They are gifts of AMAZING LOVE and SWEETNESS unencumbered by all the garbage that plagues the rest of us on a daily basis. These children are rays of sunshine throughout their lives and have lifted many clouds in my own, just by spending some time with them at work. If they have abundantly BLESSED my life in our limited time together, I can only imagine how much more they BLESS their families who are privilleged to share even more time together.
      Justice Ginsberg has gotten her beloved DEATH PANELS. There she arrogantly sits on her authoritative throne, imbued with the power to define who "contaminates" HER PLANET and who does not. I believe the label applied by those in her elitist Progressive snake pit is "Useless Eaters" as is clearly engraved on the Georgia Guidestones, the Creed of the New World Order.
      She, too, was created by GOD with the potential to be a blessing to this world. But, she has chosen to abide by her own laws, NOT HIS…….and will be judged accordingly. May GOD have mercy on her soul and lead her to repentence through Christ , our LORD. AMEN

  • Thank you Bristol and Mark Leach for pointing out that the Obama Administration is not interested in paying for my daughter’s health care. She is ten and has Down syndrome. By pushing universal prenatal testing, Obamacare is trying to eliminate unborn babies with Down syndrome. They are counting 0n the high abortion rate of such babies making sure that almost none slip through the net. This is eugenics, pure and simple. Read Michelle Buckman’s novel “The Death Panels” to see what a future looks like when we allow this type of health care system to dictate the tone of our society.

    • Timbit

      Yes! Yes! YES! Obummer is pushing this and wants abortion! He knows that Christians don’t get abortions and it is a way to get rid of future Christians! The left love abortion. They use it as birth control. Liberal women who believe in abortion rights give birth to babies who are the spawn of the devil. Homosexual mass murdering pedophiles are devil spawn born from liberal abortion loving women. Evil politicians like HUSSEIN Obummer and BAWNY FWANK are devil spawn from liberal, abortion loving mothers. God gives the most vunerable to good Christian conservative women, because he knows they will be cared for.

      • I’m sorry but seriously? No one “loves” abortion, people who want to keep it legal do not love it and they would rather it not happen (and many try to educate people on PREVENTIVE measures so it doesn’t happen, ie sex ed that actually teaches more than DON’T HAVE SEX)
        Homosexuals (which in no way should be compared to pedophiles or mass murderers) are not only born to liberal women, I’ve known many Christian families who (gasp) have had children who were not heterosexual or cis-gender.

        Anywho, in regards to the blog post: I agree, it should not be used as a preventative test, though if I was pregnant I would want to know everything possible in advance so I could make the arrangements necessarily to care for said child, so I’d very much want to know if they would have down syndrome BEFORE I gave birth.

    • DJ

      Did you read the article? It has nothing to do with Obama not paying for your kids healthcare.

  • MsAmericanPatriot

    If they do this for Down Syndrome. What next? Autism. I am autistic. I was raised I should fear the government. Now I am living in fear of it. That isn’t right at all.

  • Jackie

    ACOG began recommending pre-natal testing of ALL pregnant women, to determine if the baby has T21, a few years ago. As testing has become increasingly less invasive, less likely to cause miscarriage, the professional recommendations are to test all women. The March of Dimes has, more or less, the same view. Women should know, however, that they do not need to agree to any testing or screening while pregnant. Though I was over 35, I did not participate in any screenings or diagnostics beyond a GD test, and a sonogram.

    • After having a child born with Down syndrome, I chose the non-invasive blood test at 12 weeks with the NTS. It put me at extremely high likelihood of having a child with trisomy 13/18 – a “not-compatible with life” diagnosis (actually it is compatible with life – just ask the moms). So instead of having another home birth, we had her born in the hospital. Turns out she did not have trisomy 13/18 and was perfectly healthy. Next baby we declined genetic counseling – just wanted an ultrasound at 20 weeks to see if we should have a hospital birth or a home birth. Our perinatologist REFUSED to be our doctor unless we sat through another genetic counseling session. We already had our son with trisomy 21 (DS), we’d lived through a false positive of trisomy 13/18 with our daughter, and yet the doctor still felt we needed to be re-educated (we went through the genetic counseling appointment when I was pregnant with my daughter previously) on our “options” and what kinds of problems our baby might have. Obviously, I went elsewhere.

  • Surie

    “Death panels”??? Really??? I thought it was BS the first time your mother brought it up – very interesting to see you parrot the same. Scare tactics and misinformation aside – it’s MY decision to receive testing on MY foetus in utero. And IF that child is NOT healthy or has some sort of disease or genetic mutation, it is MY CHOICE to have an abortion (which I *absolutely* would have). I wouldn’t want to bring a disabled child into this world – I don’t think they’re a “blessing” – and I think that people who go around saying they are “blessed” are full of it. They’ve been given a bad hand, and are FORCED to deal with a disabled child. Sadly, most use religion and “god” to justify the existence of that child – when they could’ve been tested, gotten informed, and made a choice.

    Then again, I’m just a highly-educated, liberal, atheist who believes in making informed, intelligent choices. I’m also a great believer in having the correct information before trying to “educate” the general public. And I doubt that this comment will even be allowed on the blog. We’ll see.

    • You’re right in saying it’s your choice- but your decision to selectively kill based on genetics is faulty thinking- all of our genetics are damaged in some way and at any time you could develop Alzheimers or suffer a trauma which would render you “less than” perfect- where does the killing stop? Downs syndrome? if they discover a gene for Autism? if you don’t like the way the child is going to look or it’s sex? For a highly educated person- you have become judge and juror of whose life has “value”. I understand that as an atheist, you don’t have respect for life but as a Christian, I am compelled by God’s love to love all of His creation. (btw- I’m highly educated too 🙂 )

    • Marlie

      Surie, people have disabled children everyday and think they are a blessing. You seem to be forcing your own agenda on these families.

    • Becky

      My dear you are HELL bound if you do not repent and change your ways. You believe that you are GOD and you have the right to take another life because it does not suit your fancy. Well dearie ONE day you will stand before GOD almight. Yes YOU will stand before him no matter how hard you try to pretend he does not exist or you know better than he does. You WILL be told your name is NOT written in the book of life and you WILL be cast into the lake of fire. How do I know this? The Holy BIBLE tells me so. You should take the time to read it and then this vile demonic language would not be leaving your lips. I pray one day you find the only way to eternal life before it is too late. PS No amount of education will get you into Heaven.

    • Agkcrbs

      Well, Surie, if you’re not just pulling one on us, I guess that pretty much makes you a bad human being. How does it feel? Fulfilling? …Or as empty as you sound? You can gloat about being “highly educated”, but even if you had shown any signs of it, it would only in the same morally broken sense that that Batman shooter was. Fat lot of good his overloaded, misfiring neurons did him. At least you should be grateful that most of us are more respectful of your meager right to exist than you seem to be of those you look down on. Corrupt or not, you too are in the image of God, and he’s seen fit to leave you here until whenever your sudden car crash, heart blockage, or overdose eases the world of you. So there may well remain some possibility of benefit in your life, though it’s hazy to the rest of us. Do try to make better use of your short, probably inconsequential time here than advocating such self-worshipping soullessness as that the burdensome handicapped, generally the most innocent specimens of our race, should be freely aborted.

    • CJ

      You may want to watch this.
      Stay with it……you’ll understand why I sent it to you.

    • Trina

      thank you for your comment. i was absolutely SHOCKED & DISMAYED by what I read here. Pre-natal Genetic testing is just that: A TEST! just because the result comes back positive for a T21 mutation doesnt mean you have an “automatic abortion”! THINK, YOU FOOLS! ALL of these tests are supposed to be preventative: FOR THOSE THINGS THAT CAN BE PREVENTED! I was over age 35 when having BOTH of my children and GLADLY had Pre-Natal Genetic Testing! It told me my chances for having issues with my birth, embryo/fetus and family issues! My husband and I discussed at length what we would do if there were any genetic issues. Since it IS a CHOICE and NOT a REQUIREMENT, and I was fortunate not to have any of the issues they test for, I didnt have to make a CHOICE…. both my children were born early but healthy. Please, before you assume that the president (of which this article is NOT about) is ordering you to have an abortion just because your baby has Downs Syndrome, remember, ABORTION IS A CHOICE, NOT A REQUIREMENT.

      • Trina


    • Kate Maloney

      Surie – It’s a good thing for you that your parents didn’t share the same view.

  • Perry Jones

    great points…i haven’t read all 100 blogs but i am working on it. Congrats!

  • Julia

    But most people get these tests now! What is the problem????